Discussions By Condition: Nerve conditions

Somebody please help... I have seizure or TIA like episodes but nobody seems to know

Posted In: Nerve conditions 12 Replies
  • Posted By: Seeking Answers
  • March 22, 2009
  • 02:54 PM

It has been happening for a year and a half. I get a funny feeling come over me... I hold my mouth differently and it feels like I might drool. My breathing changes... I think it may get shallow but not sure... I start to talk and when I do I sound incredibly intoxicated... my words are slurred and garbled... my body feels like cement, loss of balance, weakness in my legs, this goes on for awhile and then I get myself to a safe place because I know I usually loose consciousness. A deep sleep or LOC is the only thing that seems to take away the symptoms... sometimes I am out for hours. Usually when I wake up I am fine. They thought they saw a basiliar artery thrombus when they did a CAT scan but later an MRI showed my brain and arteries were perfectly normal. The TIA clinic didn't think it was a mini stroke because both my legs got weak. And they didn't think it was seizures because they lasted for so long and I remember what happens. I have sleep apnea but when I asked the sleep neurologist if this could be causing it he said no because my CPAP machine is set so that I no longer have any apneas... and I use my machine all the time. I also have prediabetes but have tested my blood during an episode and it's normal. PLEASE HELP ME I DON'T KNOW WHERE TO TURN TO NEXT. I have had to go off work because of the symptoms... they were happening every day until I asked the sleep neurologist to put me on an anti seizure med... He put me on trileptal 300mg 2x/day. Since then (about 1 month) I have only had 7 episodes... coincidence???? PLEASE HELP I AM FEELING DESPERATE... I hate these things I feel physically aweful when they occur... THANKS FOR LISTENING TO MY STORY.

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12 Replies:

  • How old are you and are you male of female? Please list ALL medications you are currently taking, including birth control if female. Best wishesDOM
    acuann 3080 Replies Flag this Response
  • I am a 35 caucasion female... no longer on birth control... was on allesse up until a week ago, I am on zeldox, trileptal, lasix, low dose of clonazapam to sleep, and L-thyroxin (but my tsh tests all show as being within the normal range)... all of these meds (except the L-thyroxin) were started after the episodes began.
    Seeking Answers 3 Replies Flag this Response
  • I am a 35 caucasion female... no longer on birth control... was on allesse up until a week ago, I am on zeldox, trileptal, lasix, low dose of clonazapam to sleep, and L-thyroxin (but my tsh tests all show as being within the normal range)... all of these meds (except the L-thyroxin) were started after the episodes began. How long were you on birth control total? When did you start taking bc pills?DOM
    acuann 3080 Replies Flag this Response
  • for at least 10 years maybe a little longer... maybe 12... but they kept changing them because of inconsistent and non existant menstration.
    Seeking Answers 3 Replies Flag this Response
  • Well, bc pills can cause a TIA or stroke. Now that you are off of them, are your symptoms improving? You need to be TOTALLY off of any form of hormonal bc, including an IUD like Mirena. I strongly believe there is a connection there. I had a friend on Norplant who had a TIA at age 38 - very scary stuff. Best wishesDOM
    acuann 3080 Replies Flag this Response
  • Thanks DOM, I will keep an eye on my symptoms... that is scary!!!!! I wondered about the TIA like symptoms... we will see if they go away or not... Thanks again for writing!!!! I really appreciate your input... thanks again!
    Seeking Answers 3 Replies Flag this Response
  • It sounds like Temporal Lobe Epilepsy to me. The sensations you describe are very unpleasant, yes. I began having such episodes in my 20s; the doctors all told me I had migraine. It was several years before a neurologist diagnosed me - he confirmed it with an EEG but interrupted me only a few sentences after I began describing my symptoms to say:"You're describing the classic symptoms of temporal lobe epilepsy.." He also told me that unfortunately, because there's no loss of consciousness involved, many doctors fail to recognize the condition. Though each case differs in the type of aura experienced, and how the seizure plays out, many of the sensations are the same. As you say, a funny feeling comes over you. I do hope you can find a doctor who will listen carefully to you. Good luck!
    ASPASIA 1 Replies Flag this Response
  • I am not a doctor but it sound like you have grand mal seizures. You need to see a doctor who specializes in seizures. There are surgeries which they do in the brain to help with these seizures. Mayo Clinic is a great place to start I have been to their doctors and have greatly helped me as well. Here is a epilesy foundation link which should help you find a doctor in your area. http://www.aesnet.org/go/find-a-dr/epilepsy-foundation
    Anonymous 42789 Replies Flag this Response
  • I am not a doctor but it sound like you have grand mal seizures. You need to see a doctor who specializes in seizures. There are surgeries which they do in the brain to help with these seizures. Mayo Clinic is a great place to start I have been to their doctors and have greatly helped me as well. Here is a epilesy foundation link which should help you find a doctor in your area. http://www.aesnet.org/go/find-a-dr/epilepsy-foundation Again, this can be caused by birthcontrol pills as well. If you are taking bc pills, please look them up on www.drugs.com to be aware of ALL of the side effects. Best wishesDOM
    acuann 3080 Replies Flag this Response
  • It sounds odd but you have symptoms similar to my 7 year old son who has benign rolandic epilepsy. Children grow out of this by the time they hit puberty so it would be odd that you have it, though. The seizures usually happen during the night but they have happened to him during the day. His mouth will pop open a bit and then one side of his mouth/chin would twitch and he would drool. He'd try to talk but couldn't say anything coherent. It would last a few seconds and then he would be fine. He doesn't get the tired feeling that you have but that is typical with seizures. This type of epilepsy starts in the rolandic area of the brain. Some people who have this type of epilepsy will have an EEG that confirms it and others wont. Again, it's a childhood epilepsy but the symptoms are definitely the same as yours in many ways. You may have simple partial epilepsy that originates in the rolandic area of the brain. Not an expert but I do know some about this condition. He's about 80 pounds and takes 150 mg of Trileptal in the AM and 600 mg in the PM. I thought 600 for the day sounded low for someone who at 35 I think weighs more than he does. Maybe your Trileptal needs to be increased. Since starting on it his seizures have been under control. (knock on wood) Best of luck. I'm sure it's scary.
    Anonymous 42789 Replies Flag this Response
  • have your doctors checked your electrolyte levels potassium ion channelopathy can cause many of your symptoms do some research and see if this may apply to you katts:)
    kattsqueen 29 Replies
    • August 22, 2009
    • 03:40 AM
    • 0
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  • my sister, brother and father all suffer from this thing. My sister went to numerous neurologists dr.s in new york,pennsylvania,and even farther.and was told she needs to see a therapist.she learned to deal with it. Just recently my younger brother started to suffer from these and again no one knows what it is even though the heart rate slows down,slurred speech,mussel loss,then goes to sleep afterwards.they say they believe its all in the mind.my dad never went to the dr., he had no need to after they never helped my sister .the dr.s all have a good explanation your crazy. good luck trying to figure this out i've been online trying to figure this out before it gets to another family member or worse myself.
    Anonymous 42789 Replies Flag this Response
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