Discussions By Condition: Nerve conditions

severe sensitivity to light

Posted In: Nerve conditions 3 Replies
  • Posted By: gypsee
  • November 6, 2006
  • 11:11 PM

My 20 yr old son has absence seisures which are a type of epilepsy and had this since he was approx 12 yrs of age. More recently he had a few episodes which I have been advised are not related. Severe pain to the head, severe sensitivity to light, vomiting and pain in the neck. The only way he could get relief of the pain is to contort his upper body in a way that had me thinking it could be nerve related. He has had football injuries in the past and complains about a sore neck but doctors have also said nothing to worry about. These episodes have been so bad that an ambulance had to take him to hospital twice, paramedecs thinking it was meningitis. He had a lumbar puncture and all was ok plus a CT scan. His neurologist put it down to migraine. I am a migraine sufferer myself and I know this was no migraine as the pain was so bad that he couldn't walk, sit ..he could only vomit. The hypersensitivity to light was that bad he had his head wrapped in a towel. These the episodes went as quickly as they come, within a few hrs. I would appreciate any help at all as this worrying. If anyone wants to ask me about epilepsy please feel welcome.

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3 Replies:

  • Hi. I'm 21 female and have been diagnosed with epilepsy for the past year. also just recently the doc put me on migraine meds (sandomigran) because i could barely function during an episode. The light sensitivity to the extent you discribed can be suggestive of migraine (at least that is also what i have been told). When i get a 'migraine' the darkest of rooms sunnies and pillow over my head has not been enough. The pain can be so intense and you really do just vomit everywhere.I've also had 'spit up' sessions, where i 'vomit' but it kinda runs out of my mouth in a drooly feel (like a baby spits up, with no 'blaah' noise first).Is the contortion you speak of kind of like a rigid spasm? Head and neck arch backwards and go stiff? If so i was told that they can be another form of seizure activity. I'd take him back to the specialist that originally diagnosed him and ask about it. Also invest in some full round deepest tint sunnies. these at least at night might give a tad of relief.Just last week my doc gave me permision to give disprin direct a go too. but this is normally a nono i've been told for epileptics so be sure to check first.I can imagine that what you and your son are going through must be just horrible for you all. You have my love sympathy empathy and prayers.
    Anonymous 42,789 Replies
    • November 7, 2006
    • 03:36 AM
    • 0
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  • Please don't feel fobbed off with a 'migraine' diagnosis. There are many different types of migraine, producing a wide range of vascular and neurological symptoms and the effects can be as severe as you describe in your son. Do push for further information and treatment though, as migraine isn't something that you just have to put up with because it is thought to be 'common'. There are some sub-types that bring with them other problems such as unconsciousness, vulnerability to strokes, etc - so ask for more tests.There are treatments and research is bringing up new things all the time so keep researching and find a good support group.Visit: http://www.relieve-migraine-headache.com/basilar-migraines.html
    Anonymous 42,789 Replies
    • December 15, 2006
    • 06:39 PM
    • 0
    Flag this Response
  • I agree with the first two responders-- Migraines can definitely be a serious and debilitating condition, and there are certainly connections to epilepsy. Keep an eye on their progression, though, in case they increase in severity or frequency. Has his doctor perscribed him any pain medications for the headaches?
    eleven 55 Replies
    • December 15, 2006
    • 07:04 PM
    • 0
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