Discussions By Condition: Nerve conditions

Seizure like symptoms and impaired motor function

Posted In: Nerve conditions 8 Replies
  • Posted By: Anonymous
  • November 16, 2010
  • 01:29 PM

Six years I've had to deal with this problem. Every time I go to the hospital the doctors can't seem to figure out what is wrong with me. One doctor suggested tourettes and for awhile they kept leaning on that condition but now they're saying its not tourettes.
All I know is that I usually experience about three months where I have no symptoms or mild symptoms followed by a week to five weeks of severe symptoms that force me to take off from work. Symptoms are very similar to epileptic seizures only I'm fully aware of the seizures. It feels like my whole body is seizing up. Simple movements I struggle to do because I have to fight with my muscles. I experience loss of coordination. I sometimes feel dizzy or light headed. I'll sometimes hiss or growl or I'll have trouble speaking because the muscles in my jaw start to seize up on me. My toes sometimes curl up on me and I'll start to limp or I'll feel like I lost all the strength in my legs or my legs can no longer support my body's weight and I fall. Sometimes I feel like my whole body is losing strength but whenever the doctors test me, they claim I haven't loss any strength. Yet every movement I make I have to strain in order to do it. The only things of note from my numerous visits to the emergency room are the fact my hemoglobin levels were a little low and my iron levels were a little low. The doctors tell me it is not enough to cause my symptoms yet it is the only thing that is consistent other than my blood pressure constantly reading 160 over 90 and on several occasions it was reading 170 over 100. PET scan has turned up negative. Although during my EEG, the flashing lights did trigger some of my symptoms, that test also turned up negative.
My symptoms seem to occur most often in the morning or over night. Just to note I've been working third shift for ten years. I rarely experience them at home and I almost always have them at work. I just wish I knew what was causing these symptoms so I can control them. So far my job is being very patient with me but I don't know how long I can remain in their good graces.

Reply Flag this Discussion

8 Replies:

  • Six years I've had to deal with this problem. Every time I go to the hospital the doctors can't seem to figure out what is wrong with me. One doctor suggested tourettes and for awhile they kept leaning on that condition but now they're saying its not tourettes.All I know is that I usually experience about three months where I have no symptoms or mild symptoms followed by a week to five weeks of severe symptoms that force me to take off from work. Symptoms are very similar to epileptic seizures only I'm fully aware of the seizures. It feels like my whole body is seizing up. Simple movements I struggle to do because I have to fight with my muscles. I experience loss of coordination. I sometimes feel dizzy or light headed. I'll sometimes hiss or growl or I'll have trouble speaking because the muscles in my jaw start to seize up on me. My toes sometimes curl up on me and I'll start to limp or I'll feel like I lost all the strength in my legs or my legs can no longer support my body's weight and I fall. Sometimes I feel like my whole body is losing strength but whenever the doctors test me, they claim I haven't loss any strength. Yet every movement I make I have to strain in order to do it. The only things of note from my numerous visits to the emergency room are the fact my hemoglobin levels were a little low and my iron levels were a little low. The doctors tell me it is not enough to cause my symptoms yet it is the only thing that is consistent other than my blood pressure constantly reading 160 over 90 and on several occasions it was reading 170 over 100. PET scan has turned up negative. Although during my EEG, the flashing lights did trigger some of my symptoms, that test also turned up negative.My symptoms seem to occur most often in the morning or over night. Just to note I've been working third shift for ten years. I rarely experience them at home and I almost always have them at work. I just wish I knew what was causing these symptoms so I can control them. So far my job is being very patient with me but I don't know how long I can remain in their good graces.I have almost the same issues. I would love to talk to you more about yours and compare ours. Sincerely Matthew
    Anonymous 42789 Replies
    • January 8, 2011
    • 10:55 PM
    • 0
    Flag this Response
  • Hi, I feel like I have been experiencing something similar to you. It happens for me when I go to walk after standing still for a while. Its like a spasm or cramp and I lose control in my left leg, arm and sometimes I cant speak. It usually lasts less than 30 seconds if I just stand still. Hopefully you have found some help. I have been trying to do some research on the internet and found a couple other people with similar symptoms, but not much about what it is or if there is any treatment. Just know that you are not crazy and not alone even though doctors may not be so helpful.Mike
    dirkbikemike 3 Replies
    • January 9, 2011
    • 06:21 AM
    • 0
    Flag this Response
  • Six years I've had to deal with this problem. Every time I go to the hospital the doctors can't seem to figure out what is wrong with me. One doctor suggested tourettes and for awhile they kept leaning on that condition but now they're saying its not tourettes.All I know is that I usually experience about three months where I have no symptoms or mild symptoms followed by a week to five weeks of severe symptoms that force me to take off from work. Symptoms are very similar to epileptic seizures only I'm fully aware of the seizures. It feels like my whole body is seizing up. Simple movements I struggle to do because I have to fight with my muscles. I experience loss of coordination. I sometimes feel dizzy or light headed. I'll sometimes hiss or growl or I'll have trouble speaking because the muscles in my jaw start to seize up on me. My toes sometimes curl up on me and I'll start to limp or I'll feel like I lost all the strength in my legs or my legs can no longer support my body's weight and I fall. Sometimes I feel like my whole body is losing strength but whenever the doctors test me, they claim I haven't loss any strength. Yet every movement I make I have to strain in order to do it. The only things of note from my numerous visits to the emergency room are the fact my hemoglobin levels were a little low and my iron levels were a little low. The doctors tell me it is not enough to cause my symptoms yet it is the only thing that is consistent other than my blood pressure constantly reading 160 over 90 and on several occasions it was reading 170 over 100. PET scan has turned up negative. Although during my EEG, the flashing lights did trigger some of my symptoms, that test also turned up negative.My symptoms seem to occur most often in the morning or over night. Just to note I've been working third shift for ten years. I rarely experience them at home and I almost always have them at work. I just wish I knew what was causing these symptoms so I can control them. So far my job is being very patient with me but I don't know how long I can remain in their good graces. Hello, I am just wondering if you have found out anything to this issue you are having? My mother is kinda having the same issue right now. She is getting random tremors/seizures? Right now my mother is having this issues and I seen on an older forum on the website a few others are as well. The post where from 2008 so I am just trying to find some updated informatin on this issue. Right now she has been having issues with tremors/seizures coming at random, and do not last any longer then 10 minutes maybe. She does kinda black out during these times and has some memory loss of what happened, she knows she had a spell "we are calling it for now" but never knows what went on during these time. Her speach sometimes is also slurred or stuttered as well. She has also talked about eye sight issues after but I am unsure if its more of a glaze for her or not. Her seizures/tremor are getting worse/stronger so any information would help me at this time, since her doctors and neuro doc is still lost as well. Also we have done about 5 MRI and 2 CT Scans in the last 4 months and it always comes back normal they say. So please any info would help!! Thank you!!
    dakine2285 2 Replies
    • January 25, 2011
    • 05:14 PM
    • 0
    Flag this Response
  • As a nurse I advise you all to go see a neurologist. You at least need to rule out tumors or anything else life threatening. I usually recomend that people use this list of neurologists. If you can't find one from this list let me know.
    sarahhill033 10 Replies
    • February 8, 2011
    • 05:38 PM
    • 0
    Flag this Response
  • You need to get yourself diagnosed at a stroke center because the symptoms could be associated with a stroke. I would recommend that you consult the doctors at the Ocean Medical Center. They run a renowned stroke center in NJ and offer most advanced and specialized treatments.
    tammsmith53 5 Replies
    • February 22, 2011
    • 10:42 AM
    • 0
    Flag this Response
  • Hi, I feel like I have been experiencing something similar to you. It happens for me when I go to walk after standing still for a while. Its like a spasm or cramp and I lose control in my left leg, arm and sometimes I cant speak. It usually lasts less than 30 seconds if I just stand still. Hopefully you have found some help. I have been trying to do some research on the internet and found a couple other people with similar symptoms, but not much about what it is or if there is any treatment. Just know that you are not crazy and not alone even though doctors may not be so helpful.Mikehave you found anything...I feel like I'm crazy everytime it happens it starts out as anxioty but turns into what you describe. My anxioty seems to be a trigger it doesn't feel like a cause.
    Anonymous 42789 Replies Flag this Response
  • I know this thread is a little old but it was all i could find on the subject. This happened to me earlier today in the emergency room floor. I honestly thought i was going to die. None of my muscles would work at all, especially my hands and arms, but it affected my entire body, my speech was slurred and everything.ig read in an above post that anxiety disorder can cause this, i ased my doctj kMor nd she said it did, they my lorazapam and it went away, well I'm still shaky and we'll. She told the name for it is carpal maul muscle spasms
    pyyracy 2 Replies Flag this Response
  • I know this thread is a little old but it was all i could find on the subject. This happened to me earlier today in the emergency room floor. I honestly thought i was going to die. None of my muscles would work at all, especially my hands and arms, but it affected my entire body, my speech was slurred and everything.ig read in an above post that anxiety disorder can cause this, i ased my doctj kMor nd she said it did, they my lorazapam and it went away, well I'm still shaky and we'll. She told the name for it is carpal maul muscle spasms
    pyyracy 2 Replies Flag this Response
Thanks! A moderator will review your post and it will be live within the next 24 hours.