Six years I've had to deal with this problem. Every time I go to the hospital the doctors can't seem to figure out what is wrong with me. One doctor suggested tourettes and for awhile they kept leaning on that condition but now they're saying its not tourettes.
All I know is that I usually experience about three months where I have no symptoms or mild symptoms followed by a week to five weeks of severe symptoms that force me to take off from work. Symptoms are very similar to epileptic seizures only I'm fully aware of the seizures. It feels like my whole body is seizing up. Simple movements I struggle to do because I have to fight with my muscles. I experience loss of coordination. I sometimes feel dizzy or light headed. I'll sometimes hiss or growl or I'll have trouble speaking because the muscles in my jaw start to seize up on me. My toes sometimes curl up on me and I'll start to limp or I'll feel like I lost all the strength in my legs or my legs can no longer support my body's weight and I fall. Sometimes I feel like my whole body is losing strength but whenever the doctors test me, they claim I haven't loss any strength. Yet every movement I make I have to strain in order to do it. The only things of note from my numerous visits to the emergency room are the fact my hemoglobin levels were a little low and my iron levels were a little low. The doctors tell me it is not enough to cause my symptoms yet it is the only thing that is consistent other than my blood pressure constantly reading 160 over 90 and on several occasions it was reading 170 over 100. PET scan has turned up negative. Although during my EEG, the flashing lights did trigger some of my symptoms, that test also turned up negative.
My symptoms seem to occur most often in the morning or over night. Just to note I've been working third shift for ten years. I rarely experience them at home and I almost always have them at work. I just wish I knew what was causing these symptoms so I can control them. So far my job is being very patient with me but I don't know how long I can remain in their good graces.