I'm a 23 year old female suffering from random episodes of muscular attacks going on for two years now. I've been to a regular doctor in a clinic, who referred me to a neurologist. My neurologist had me take two EEG scans, an MRI, and I also wore a heart monitor for several days. Everything came back negative. His answer was that they were non epileptic, and that he could help me no further. So I then decided to see a psychiatrist, thinking my episodes are psychological.
Regular symptoms during episodes:
-An overwhelming, or intense feeling of something about to happen
-Twitching begins in either hands, feet, sometimes internally
-Right shoulder muscles contract and stiffen suddenly
-Head jerks uncontrollably from side to side
-Hands tighten into a fist and relax involuntarily almost claw-like
-May temporarily look a little like someone with cerebral palsy
-Sometimes tongue thrusts outward
-Facial muscles contort
-Sometimes slight numbness in body parts
-Eyelids flutter rapidly
-Eyes roll back into skull
-Conscious, but unable to communicate
-Entire body begins seizure--generally my core/abdominal muscles will throw my body into convulsion
-Lasts anywhere from 2-3 minutes to the longest at 5 hours (yes, 5 hours)
Does anyone have any ideas for me? I've been asked about sexual abuse as a child, which is a common cause. As I am very aware of False Memory Syndrome, I cannot recall anything sexually abusive other than normal curiosity that comes with childhood. Is it possible to repress a traumatic event--or is that controversial? I almost feel like something is there--a dark feeling, or a dream I cannot remember.
I pushed that possibility aside, not wanting to accept it. The thought will eventually come back and I suddenly get very emotional and either cry or have an episode. What is this? I have also researched anxiety/panic attacks. I usually do not feel anxious or nervous at all! Sometimes completely relaxed before a seizure.
These episodes generally have no constant variables other than they typically happen at night before bed. Fully rested vs. no sleep has the same effect. I suffer from depression but any medications I have taken do not fit the time frame for my episodes. I have been prescribed Xanax, which initially helped. It has lost its affect and I am now left helpless.
Does anyone have any helpful information or experiences? It's affecting my life so horribly.