Discussions By Condition: Nerve conditions

Pseudo Seizure Episodes??

Posted In: Nerve conditions 8 Replies
  • Posted By: ebizz05
  • February 19, 2010
  • 01:08 PM

I'm a 23 year old female suffering from random episodes of muscular attacks going on for two years now. I've been to a regular doctor in a clinic, who referred me to a neurologist. My neurologist had me take two EEG scans, an MRI, and I also wore a heart monitor for several days. Everything came back negative. His answer was that they were non epileptic, and that he could help me no further. So I then decided to see a psychiatrist, thinking my episodes are psychological.

Regular symptoms during episodes:
-An overwhelming, or intense feeling of something about to happen
-Twitching begins in either hands, feet, sometimes internally
-Right shoulder muscles contract and stiffen suddenly
-Head jerks uncontrollably from side to side
-Back arches
-Hands tighten into a fist and relax involuntarily almost claw-like
-May temporarily look a little like someone with cerebral palsy
-Sometimes tongue thrusts outward
-Facial muscles contort
-Sometimes slight numbness in body parts
-Jaw clenches/relaxes
-Eyelids flutter rapidly
-Eyes roll back into skull
-Conscious, but unable to communicate
-Entire body begins seizure--generally my core/abdominal muscles will throw my body into convulsion
-Lasts anywhere from 2-3 minutes to the longest at 5 hours (yes, 5 hours)


Does anyone have any ideas for me? I've been asked about sexual abuse as a child, which is a common cause. As I am very aware of False Memory Syndrome, I cannot recall anything sexually abusive other than normal curiosity that comes with childhood. Is it possible to repress a traumatic event--or is that controversial? I almost feel like something is there--a dark feeling, or a dream I cannot remember.

I pushed that possibility aside, not wanting to accept it. The thought will eventually come back and I suddenly get very emotional and either cry or have an episode. What is this? I have also researched anxiety/panic attacks. I usually do not feel anxious or nervous at all! Sometimes completely relaxed before a seizure.

These episodes generally have no constant variables other than they typically happen at night before bed. Fully rested vs. no sleep has the same effect. I suffer from depression but any medications I have taken do not fit the time frame for my episodes. I have been prescribed Xanax, which initially helped. It has lost its affect and I am now left helpless.

Does anyone have any helpful information or experiences? It's affecting my life so horribly.

Reply Flag this Discussion

8 Replies:

  • I am still hoping someone is able to give me feedback on what is happening. I have been seeing a counselor for the past several weeks, and we both think epilepsy may be something we need to reconsider again, despite test results. I even spoke to one parent who's son had negative results for his EEG's and other tests. His family practitioner diagnosed him with Epilepsy and put him on anti-seizure medication. He's lived a normal life since then.This gives me hope! If you're struggling with something similar, I hope you find the same comfort in knowing a normal life is not impossible! :)
    ebizz05 3 Replies
    • February 28, 2010
    • 09:52 PM
    • 0
    Flag this Response
  • Hi there...Your not alone my mother has these episodes called ''Pseudo Seizure''and believe me I know what you are going through! My mother started with these in December of 2008 They also did several EEG's MRI Ct Scans you name it ......Yes all negatives my mother's episode lasts between 30 minutes to 4 hours :(She is not able to drive a car fearing she will get one of these on the roadnor she can;t be alone...Se starts with,*Right shoulder twitching*Twitching works its way down the body till fully shaking like a seizure*Hands goes in to fist*Head shakes side to side*Mouth clenching*Face muscles start to twitch*Eyes roll back*Hyperventilates*She is aware but cannot respondIt is just so weird....The doctor said its a manifistation of stress...One thing do not let anyone call you a Hypochondriac...Many nurses and E.R doctors just see the word ''Pseudo'' and jump into the conclusion that they are faking it when she has no control of it...Yes Psychiatrist and counseling are your best choice try to relax as much possible reduce stress or if your depressed get help ....From my experience I would try to take the least amount of medication possible because it anti depressant will treat your depression but will not cure it in result you will develop other health issues such as gastrointestinal problems my mother has gotten diverticulitis from her meds GERD IBS and other things ...My mother went from having these three times a week to twice a week once a week now shes having them like once every two weeks...She went trough like 3 counselors and psychiatrist she wasn't bonding with any so make sure you get one that you feel confortable with it has helped my mother but we still have a long way to go I heard that you are the only one who can try to get over these you might seem lost right now but if you try real hard you will fight these scary episodes....
    Anonymous 42789 Replies Flag this Response
  • Hi there...Your not alone my mother has these episodes called ''Pseudo Seizure''and believe me I know what you are going through! My mother started with these in December of 2008 They also did several EEG's MRI Ct Scans you name it ......Yes all negatives my mother's episode lasts between 30 minutes to 4 hours :(She is not able to drive a car fearing she will get one of these on the roadnor she can;t be alone...Se starts with,*Right shoulder twitching*Twitching works its way down the body till fully shaking like a seizure*Hands goes in to fist*Head shakes side to side*Mouth clenching*Face muscles start to twitch*Eyes roll back*Hyperventilates*She is aware but cannot respondIt is just so weird....The doctor said its a manifistation of stress...One thing do not let anyone call you a Hypochondriac...Many nurses and E.R doctors just see the word ''Pseudo'' and jump into the conclusion that they are faking it when she has no control of it...Yes Psychiatrist and counseling are your best choice try to relax as much possible reduce stress or if your depressed get help ....From my experience I would try to take the least amount of medication possible because it anti depressant will treat your depression but will not cure it in result you will develop other health issues such as gastrointestinal problems my mother has gotten diverticulitis from her meds GERD IBS and other things ...My mother went from having these three times a week to twice a week once a week now shes having them like once every two weeks...She went trough like 3 counselors and psychiatrist she wasn't bonding with any so make sure you get one that you feel confortable with it has helped my mother but we still have a long way to go I heard that you are the only one who can try to get over these you might seem lost right now but if you try real hard you will fight these scary episodes....
    JannetC1987 1 Replies Flag this Response
  • Hi There...I to suffer from episodes.I've been to a number of dr's neuros you name it I've been there.I do suffer from IBS for the last going on 20 yrs in Jan.I take Keppra 500 mg's but the last neuro dr I saw told me they wasn't seizure he said I could take Keppra if I wanted to.He took me off Tegretoll 400.My syptoms include:Feeling somethings about to happenBrain foggySwallowing alot sometimes hardNauseated stomachIf they are hard ones I feel like I could runCan anybody please help me understand this stuff I don'tI have water on the brain and Open lip schzencephaly.Thank You
    Anonymous 42789 Replies
    • December 18, 2010
    • 08:22 PM
    • 0
    Flag this Response
  • Hi There...I to suffer from episodes.I've been to a number of dr's neuros you name it I've been there.I do suffer from IBS for the last going on 20 yrs in Jan.I take Keppra 500 mg's but the last neuro dr I saw told me they wasn't seizure he said I could take Keppra if I wanted to.He took me off Tegretoll 400.My syptoms include:Feeling somethings about to happenBrain foggySwallowing alot sometimes hardNauseated stomachIf they are hard ones I feel like I could runCan anybody please help me understand this stuff I don'tI have water on the brain and Open lip schzencephaly.Thank YouOh and have numbness in right arm,hand leg
    Anonymous 42789 Replies
    • December 18, 2010
    • 08:24 PM
    • 0
    Flag this Response
  • I'm a 23 year old female suffering from random episodes of muscular attacks going on for two years now. I've been to a regular doctor in a clinic, who referred me to a neurologist. My neurologist had me take two EEG scans, an MRI, and I also wore a heart monitor for several days. Everything came back negative. His answer was that they were non epileptic, and that he could help me no further. So I then decided to see a psychiatrist, thinking my episodes are psychological.Regular symptoms during episodes:-An overwhelming, or intense feeling of something about to happen-Twitching begins in either hands, feet, sometimes internally-Right shoulder muscles contract and stiffen suddenly-Head jerks uncontrollably from side to side-Back arches-Hands tighten into a fist and relax involuntarily almost claw-like-May temporarily look a little like someone with cerebral palsy-Sometimes tongue thrusts outward-Facial muscles contort-Sometimes slight numbness in body parts-Jaw clenches/relaxes-Eyelids flutter rapidly-Eyes roll back into skull-Conscious, but unable to communicate-Entire body begins seizure--generally my core/abdominal muscles will throw my body into convulsion-Lasts anywhere from 2-3 minutes to the longest at 5 hours (yes, 5 hours)Does anyone have any ideas for me? I've been asked about sexual abuse as a child, which is a common cause. As I am very aware of False Memory Syndrome, I cannot recall anything sexually abusive other than normal curiosity that comes with childhood. Is it possible to repress a traumatic event--or is that controversial? I almost feel like something is there--a dark feeling, or a dream I cannot remember. I pushed that possibility aside, not wanting to accept it. The thought will eventually come back and I suddenly get very emotional and either cry or have an episode. What is this? I have also researched anxiety/panic attacks. I usually do not feel anxious or nervous at all! Sometimes completely relaxed before a seizure.These episodes generally have no constant variables other than they typically happen at night before bed. Fully rested vs. no sleep has the same effect. I suffer from depression but any medications I have taken do not fit the time frame for my episodes. I have been prescribed Xanax, which initially helped. It has lost its affect and I am now left helpless.Does anyone have any helpful information or experiences? It's affecting my life so horribly.Try atkins to see if that helps. I had the same problems for a year after a head injury. Atkins helped but I ended up going on a ketogenic diet to control all symtoms. Research carefully before going on this as it is VERY dangerous. Get blood work done every 6 months. Don't drive during a low pressure front.
    Anonymous 42789 Replies
    • February 9, 2011
    • 02:40 PM
    • 0
    Flag this Response
  • I started having something very similar to what you people are describing on this forum. My episodes last between a few seconds to maybe 19 sec. I notice that they are more frequent when I drink coffee or have very little sleep (fatigue). If I put pressure on my right should, near the Rotator cuff, the discomfort seems to be less. My episodes are more frequent during the night. I think because I put pressure on my shoulder. Please inform me if you have found any clues or good analysis about this problem.
    fealgu 1 Replies
    • September 16, 2011
    • 06:42 PM
    • 0
    Flag this Response
  • I have seen many people with conversion disorder. One manifistation of this is psudoseizures. You have probabily already read this but it is understood to be the body's reaction to stress, which allows the person to escape from the internal stress. The fact that you suffer from depression and that Xanax has helped in the past points to the possibility that you have internal conflict/stress that you are not aware of. This is not at all unusual. Most people with conversion disorder are not aware of the stress causing the physilogical reaction. Often listening to one's thoughs, emotions, and enviroment do not get to the cause because the whole senerio is uncounscious. That is why taking a soulful approach where you get undernieth the symptoms to the root cause is so effective. You can find out more about Soul-Focused Counseling at www.lifescanvas.com A trained Soul-Focused Counselor can help you get around your own defenses and undo the root cause.
    rayjbarrett 1 Replies Flag this Response
Thanks! A moderator will review your post and it will be live within the next 24 hours.