How sure must a hospital/doctor be to verbally give preliminary diagnosis? Told my child has been categorized as "progressive neurodegenerative process" and the day before they said category of "progressive degenerative developmental disorder". Child has had CT and MRI, EEG monitor for over 48 hours and we are awaiting extensive blood testing. Referred to support based group for families living with disabilities but nobody identified what child has yet just said to wait 6 weeks for blood results to know more. They said they don't know what it is but know what it is not. What are the chances of the doctors returning with "The parents overreacted and the child is normal". Child has been a week at a highly respected childrens hospital but did not display symptoms she was admitted for but some small new ones and MRI and monitoring were done.
Will hospital give these suspected categories to the parents if it can be nothing? I just need to know if there is hope or if respected hospitals don't say "maybe" if it may be nothing. I just need to know if I need to start support group/family therapy to prepare us. Six weeks is so very long.
Thank you for any advice, no matter how harsh either way.
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