Discussions By Condition: Nerve conditions

please help - seizure?, cataplexy? or just throw my brain in the dumpster

Posted In: Nerve conditions 0 Replies
  • Posted By: Anonymous
  • June 25, 2008
  • 11:46 PM

Have had a doctor (not a neurologist) once suggest that I might be having a seizure followed by cataplexy but find no info on the net. I have an aura (can't describe it) lasting about 5 seconds followed by jerking of both arms (bent at elbow, raised) & shoulders (back). Then I lose voluntary muscle control & fall, maintain consciousness, can't see & don't even have voluntary control over my breathing. Paralysis lasts 5 to 20 seconds. Observer once said that I was twitching when unable to move but I was not aware of it.

One time simply came to a stop while walking (immediately following aura), raised both arms bent at elbow & fell fracturing ribs.

Another time had no jerking but neurologically felt 'off'. Head dropped forward, lifted head upwards only to immediately have complete collapse forward onto table (was sitting).

Have these episodes only about once a year. Have minor symptoms resembling partial seizures every week to few weeks.

EEGs & MRIs have been normal - but also never had symptoms during one. Had overnight sleep study done which shows sleep apnea but also showed I took a long time to enter REM so it doesn't seem like Narcolepsy could be a possibility.

Anybody have any ideas?

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