Discussions By Condition: Nerve conditions

Please help - Herpes or nerve damage / TMS / Scaticia

Posted In: Nerve conditions 11 Replies
  • Posted By: Anonymous
  • June 1, 2009
  • 08:23 AM

I have been losing my sanity over what I think / thought was Genital Herpes.

It all started over a very stressful period in my life (6 months of non stop anxiety) where I also had 1 sexual encounter with a guy who had 'mild Genital Herpes'

A few weeks later i started to experience genital discomfort

Gyno visit and smear later releaved nothing fungul so I was given antibiotics. Olive Oil also helped alleviate the discomfort

No visible lesions so doctor ruled out Herpes.

Then I started to develop a dull pain in my left buttock.

Back to another gyno & asked for HSV 2 blood test

Results came back ''borderline'' i.e 1 on a scale of 0.8 - 1.1. No visible signs so she also ruled out Herpes.

Vaginal irritation went away but butt pain worsened, turned into tingling all the way to lower back & thights with no visible lesions. Lumph node pain behind my ears also kicked in

At this point I was in a suicidal state and had to skip work as I coudnt pull myself together enough to leave the house. Endless crying & thoughts of ending my life.

Back to another doctor to get another HSV2 blood test (3 days incubation time). This time negative - all clear. I was instead put on sedatives to get me out of the state i was in (never took them)

I had my first Anxiety attack that same day

The pain in my butt then turned into pressure in my groin and finally pressure on my Vulva before totally disappearing a few weeka ago
In the meantime, after negative test result, i had calmed down, taken up yoga, acupuncture etc to bring myself back to a relatively normal state.

I have suffered from lower back pain for most of my life. The pain s not ALWAYs there but I have a weak lower back, poor posture, bad sleeping posture & sit at my desk alot.

I have also recently taken up Yoga which outs quite a bit of pressure on my lower back.

This in mind, after almost 4 weeks of all good in the butt groin area (post a full 4 weeks of symptoms), after a day of wearing tights & sweating profusely in 50 degree heat (I live in the middle east and we are in the midst of a very hot summer), the follwing day, i got vaginal irritation - having just come off my periods I didnt think much of it - but this was soon followed by pain in the same left buttock that night. This continued for 2 days (In the meantime I had a total emotional breakdown) and is now pain, tingling, burning in my groin which goes away over night, starts by the time I hit the office & gets worse throughout the day (total of 5 days now) with no lesions, no bumps, no rashes. I inspect almost 2 - 3 times a day with a mirror.

If it is Herpes is it possible that a) I test negative while at the peak of my sypmtoms? and b) that i have another ''outbreak'' as early as a month later with still no lesions bumps or rashes??

If this is nerve damage what can i do to be sure? and why is is to focused in my butt / groin region? My upper thinghs and lower back also feel like they are beig stung suddently (like I've just been bitten by a big ant) and sometime go through a 'crawling skin / itch' moment too. The dominant feeling at the moment though is pain / burning / tingling in the Vulva

What is going on? Could this be genital herpes? Is it nerve damage, TMS, Vaginitis, Pudendal something.

I'm going crazy with the list of things it could be.

Dont even know if I should see a gyno, a neurologist, or a shrink.

Please please help.
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11 Replies:

  • I have it and I have pelvic floor dysfunction. I get burning and heat in my genitals, thighs sometimes to my feet and can even go up to my navel. I believe it's nerve damage due to the herpes. I get flare ups and it feels like I have a golf ball under my sit bone. Doctors don't correlate the 2 but I didn't have this before I got the HSV
    Anonymous 42789 Replies
    • September 2, 2009
    • 02:38 AM
    • 0
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  • But have you been diagnosed with Genital Herpes & if so do you have typical outbreaks? When did the nerve damage symptoms kick in? before or after your diagnosis / breakouts?
    Anonymous 42789 Replies
    • September 3, 2009
    • 09:31 AM
    • 0
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  • i had similar symptoms in my pelvic floor, particularly near my urinary tract. i went though all same things, first i had intesnse burning for about a month, and i felt so anxious and suicidal it was horrible, i also had urinary tract symptoms like urgency. i also had tingling all around skin in the pubic area, like pins and needles. i got tested for everything, all negative for herpes and stds, but a urethral swab test came up positive for Herpes Zoster!! Shingles! the dormant after form of chicken pox that lays dormant in the spinal cord and reactivated during times of stress, whichever nerve it affects it travels down the spinal cord and affects the nerve all the way down. which is why i have tingling at the nerve endings. its been 6 months, and i no longer have intense burning, but i have irritation in pelvic floor around my urinary tract and it is incredibly annoying and chronic and is driving me nuts. i also still have tingling pins and needles feeling. i dont know whether it is the post herpic neualgia from the shingles that is causing the hypersensitive feeling, or if the damaged nerves are causing the muscles to spasm which is causing the irriation. ive spent so much money on the problem and now seeing a pelvic floor physio and praying that i will get some relief soon.
    Anonymous 42789 Replies Flag this Response
  • I have been experiencing very similar symptoms as you have for several years now. I have a combination of issues that go unexplained to this day. I have good days and bad days and I have learned that no one has the answers, but one thing that did help me a bit is I was diagnosed with pelvic congestion, which is varicose veins in the abdomen; mostly the main veins that run through my ovaries. You might have that checked out. It is not easy to diagnose, but if the right radiologist does the MRI, that is what makes the difference. After I had a procedure done by a radiologist to plug up some of the veins with coils, I had significant pain relief. I still have the nerve pain in one area of my lower back, but it is not nearly as painful as it used to be. Pelvic congestion did add to my nerve pain. Years before, I did have an outbreak of shingles which started my nerve pain in my lower back area, called post herpetic neuralgia. It never went away sadly and recently that patch on my back was aggravated by my first herpes outbreak ever, which showed up in my belly button of all places and the nerve pain was everywhere on my left side. I too thought I was going insane from the pain. I am so confused by my wacko body. It's just one thing after another. I'm thinking, what's next? I've been faithfully married for 26 years and I know my hubby has been faithful to, so I say...what the heck! How in the world did I get herpes, or is it shingle again. No one knows, and I have great doctors. Anyway, I hope all of this made sense. I just wanted you to know that you aren't alone and sometimes our bodies just don't make sense. I hope you can find a patient doctor that will listen to you. By the way, Pelvic Congestion is very painful and treatable. Look it up online.
    Anonymous 42789 Replies Flag this Response
  • It doesn't sound like herpes to me. My wife and I both have herpes, and the only symptom for us is occasional breakouts, and there is no pain or discomfort associated, just temporary itching.
    Anonymous 42789 Replies Flag this Response
  • I have had GH for two years. The constant tingling, crawling, sensations in the labia, the sensations of feeling like every nerve in my body was on fire was driving me crazy! MY gyno took swabs to be tested of an area of irritation that was constantly a source of pain. The test came back negative for everything. I faithfully took 1 gram of Valtrex every day! I spoke to a friend who is an Internal Specialist Doctor and he told me he wanted to try a treatment on me. He did not think it was herpes outbreaking so much as some nerve damage. He told me that he used the treatment on some of his diabetic patients and they were totally relieved of the symptoms of pain of the nerve damage . It is simple and cheap and it changed everything for me. I finally felt like a normal person for the first time in two years. He told me to go to the health food store and get Vitamin BComplex 100 and Lipotic Acid 200 and take it twice a day. I felt relief in a matter of weeks. It helped me tremendously and after reading the posts...I just wanted to share. Also...I have found a huge correlation between diet and GH Outbreaks. I cannot drink coffee without feeling the symptoms.
    Anonymous 42789 Replies
    • January 21, 2011
    • 05:24 AM
    • 0
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  • I was diagnosed with HSV a few years ago, but (thank god) don't get frequent outbreaks any more (I don't use any medication). However, in the last few years I've occasionally experienced a strange feeling on the backs of my thighs and buttocks, and have only recently realised that it comes about when I get an outbreak of HSV, which is often when I get my period. My skin gets very sensitive to the cold (so sitting on a cold toilet seat is very uncomfortable) and it generally feels kind of tingley, but in a painful way. I occasionally get a sharp pain in the skin in my groin (even if I can't see an actual lesion). It's as if the whole area is experiencing the pain of herpes. I decided to do some internet research, and from what I can see so far, "internet doctors" seem to be sceptical about the link between HSV and nerve damage, although they do allow a link to shingles. They are two different types of herpes, so I can't see why it's so implausible to suppose that HSV could also cause nerve problems.Your situation must be very upsetting. In a cruel twist, your anxiety could be making your herpes worse, as it can be brought on by stress. I would try everything you can to reduce your anxiety. Best of luck.
    Anonymous 42789 Replies
    • February 26, 2011
    • 08:40 PM
    • 0
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  • I have the same thing and have been dealing with this pain since 2002. The best thing to take to stop the pain and discomfort as well as out breaks which is what is happening due to stress over the pain is Acycloviar , to get it under control you need at least 400 to 600 mg a day for 7 days...warm salt baths to sooth the pain as many times a day as you can. Now you have to take this medication everyday for the rest of your life. If you miss 4 or 5 days in a row your symptoms will be back.
    Anonymous 1 Replies
    • September 10, 2014
    • 02:02 PM
    • 0
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  • Did you ever get a diagnosis? I'm having similar symptoms.
    Anonymous 1 Replies
    • November 20, 2014
    • 01:25 AM
    • 0
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  • Did you ever get a diagnosis? I'm having similar symptoms! I did have a fall and have been seeing a chiropractor who is treating me for SI joint dysfunction from trauma of my fall.
    Anonymous 1 Replies
    • December 8, 2014
    • 08:11 PM
    • 0
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  • Hey, I'm experiencing similar symptoms , did you ever get proper diagnosis ?
    Anonymous 1 Replies
    • January 4, 2015
    • 05:15 AM
    • 0
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