Discussions By Condition: Nerve conditions

Pins and Needles/Tingling All Over Body

Posted In: Nerve conditions 25 Replies
  • Posted By: Darla9905
  • September 27, 2007
  • 05:55 PM

I have been suffering from all over body pins and needles/tingling, to include the eyeballs, ears, nose, face, head/hair, private areas, feet, hands, legs, stomach, back, arms, you name it, it effects my entire body. Is this neuropathy/paresthesia? Can it effect the skin crawling sensations that I have all over the body like I have. I have read it effects the feet, hands, legs, and arms, but not the entire body. Please help with any information. Thanks

Darla

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25 Replies:

  • I think it started when I got a sore back from overdoing yed work. I had a 2 inch diameter tingling spot about T-9 just left of the spine. It progressed to my entire upper back. I complained when I reached to get something and my upper back cramped up. The neurologist I was seeing for my (post lyme disease excessive daytime sleepiness/mild sort of narcolepsy) sleepines, sent me to physical therapy for a month. That did the trick. No more sharp crawling all over my back, but I started with vibrating in my lower legs. Next my thighs got prickly where pressure was applied. Pretty soon the pressure pricklies were from knees to neck. Then the "invisible mosquitoes with steel needle beaks" started stabbing me randomly. It gets worse starting around 3-5 pm. The neuro started me on LYRICA, which elimiinates the symptoms completely, but leaves me feeling like I smoked marijuana. Stupid, happy, don't care and will eat till I pass out. Have to wait until I finish work to take it. If the symptoms come on early and I have to take it, I have to leave work. I have seen the neuro, who I dumped cause he didn't listen to me and wouldn't consider anything other than the diagnosis he proclaimed,,,refused to do further testing..."you have to learn to live with this". NO FF ing way! I won't learn to live with something that I don't know what it is.I went to my primary care doc who treated me for neuro lyme. He did extensive blood tests, came up with nothing. My dose of lyrica continues to increase. started at 50mg and I'm up to 400. I went online to the UCLA medical site and got referred to a neuro across from the school. Barry Ludwig. He better be good, or he better refer me to someone who can figure this all out. On the 30 of this month, I see him. My brother, who has a HMO insurance, can't self refer like I can, and he went to UCLA on his own for a consult. They referred him to a UCLA graduate in the Kaiser system that could do the surgery, (post head injury) he needed. So HMO PPO, you can find a doctor who is open minded enough to figure things out. I won't stop until I am satisfied.
    bugbarb 2 Replies
    • November 19, 2007
    • 00:07 AM
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  • How are you? I feel for you and your brother. I think I will die this way. No real answers. Depending on chiropractoc care at the moment, though seems that each day I feel worse. You are the first to contact me, and I wrote that some time ago, talk if you want, and let me know how you are, take care...
    Darla9905 1 Replies
    • November 19, 2007
    • 02:46 AM
    • 0
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  • I have been suffering from all over body pins and needles/tingling, to include the eyeballs, ears, nose, face, head/hair, private areas, feet, hands, legs, stomach, back, arms, you name it, it effects my entire body. Is this neuropathy/paresthesia? Can it effect the skin crawling sensations that I have all over the body like I have. I have read it effects the feet, hands, legs, and arms, but not the entire body. Please help with any information. Thanks Darla I have been suffering from the same exact symptoms you mentioned above. I dont know what this is actually. Can anyone give info? thanks
    Anonymous 42789 Replies
    • November 25, 2007
    • 08:21 AM
    • 0
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  • I have been suffering from the same exact symptoms you mentioned above. I dont know what this is actually. Can anyone give info? thanksDid any of you find out what it was? And were you healed?
    Yasminas 9 Replies
    • August 11, 2008
    • 10:21 AM
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  • You can't die . . . not until you figure out why. Why is the most important question there is. Don't die until you understand what's killing you ( killing sounds a bit melodramatic so lets go with ailing you )
    Anonymous 42789 Replies
    • February 21, 2009
    • 03:47 AM
    • 0
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  • I get this aswell, i havent herd of anyone else with tingling all over over body until i came across this post. Do u drink much alcohol? I find that it has been particulary bad when i have consumed alcohol. I havent find a way of easing the smtoms which at some times are unbearable, diazapam helps but u wouldnt want to be relyin on this daily. How are you? I feel for you and your brother. I think I will die this way. No real answers. Depending on chiropractoc care at the moment, though seems that each day I feel worse. You are the first to contact me, and I wrote that some time ago, talk if you want, and let me know how you are, take care...
    Anonymous 42789 Replies
    • January 4, 2010
    • 00:53 PM
    • 0
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  • i get it aswell but only when i suddenly get hot. my doctors said its a rush of blood from going to a cold to a hot place. so i have to try and stay calm and not get angry alot. it helps me maybe it will help you guys. just stay cool and calm for as long as you can
    Anonymous 42789 Replies
    • February 10, 2010
    • 00:10 AM
    • 0
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  • I have been suffering from all over body pins and needles/tingling, to include the eyeballs, ears, nose, face, head/hair, private areas, feet, hands, legs, stomach, back, arms, you name it, it effects my entire body. Is this neuropathy/paresthesia? Can it effect the skin crawling sensations that I have all over the body like I have. I have read it effects the feet, hands, legs, and arms, but not the entire body. Please help with any information. Thanks Darla I have the same thing w/burning sensations also. I also have hives constantly. My doctor is going to test me for Lupus. Maybe you should be tested as well. You aren't alone, don't give up, and God bless.
    jessbestrong 18 Replies Flag this Response
  • I have the same thing w/burning sensations also. I also have hives constantly. My doctor is going to test me for Lupus. Maybe you should be tested as well. You aren't alone, don't give up, and God bless. My Dr. put me on Gabapentin. It helped take the edge off of the burning and itchyness
    Anonymous 42789 Replies Flag this Response
  • My Dr. put me on Gabapentin. It helped take the edge off of the burning and itchyness My primary care doctor said she may put me on Gabapentin. She wants to wait until she gets my files from my dermatologist and allergist. Have you gotten a diagnosis?
    jessbestrong 18 Replies Flag this Response
  • Did any of you find out what it was? And were you healed?Count me in too. . I have been living with it for more than three years. Up until just recently I was convinced I was sharing a house with fleas that just wouldn't die. After researching I now believe it's a nerve thing.I don't know if this is a separate condition or whether these pins and needles are secondary but does anybody else with this condition suffer from spasms (particularly in the face).
    Anonymous 42789 Replies Flag this Response
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  • If you have tingling and/or numbness, and are getting tested for Lupus, BE SURE to get tested for Lyme too if you haven't been already. I can't stress this enough, because they share many symptoms and it's easy to misdiagnose Lyme as Lupus. Many docs will not order Lyme tests if Lyme is not considered endemic in their area - find a different doc if that's the case. Treatment for Lupus may involve steroids which shut down the immune system. For people who actually have Lyme and have been misdiagnosed, treatment with steroids can cause permanent, severe neurological damage and can even be FATAL. I was recently diagnosed with Lyme after years of not knowing what was wrong, and 20+ different doctors and specialists telling me all sorts of things, or simply saying that they didn't know what was the cause of my various symptoms.Also, for skin symptoms of itching, tingling or "crawling," you might want to look up "Morgellons". Morgellons Disease has been linked to Lyme and is currently under CDC investigation; originally it was thought to be "not real" until the CDC received too many reports of it and began a study. -AB in Michigan
    Anonymous 42789 Replies Flag this Response
  • I have been suffering from all over body pins and needles/tingling, to include the eyeballs, ears, nose, face, head/hair, private areas, feet, hands, legs, stomach, back, arms, you name it, it effects my entire body. Is this neuropathy/paresthesia? Can it effect the skin crawling sensations that I have all over the body like I have. I have read it effects the feet, hands, legs, and arms, but not the entire body. Please help with any information. Thanks DarlaDarla, stumbled across your board today along with the posts of others...I am an unregistered user but felt compelled to share this with all of you...PLEASE pass this on. You can feel free to reach me at jtroop1@cfl.rr.com.What you and probably the others are suffering from is a disease call FIBROMYALGIA. It took me years to find out and is basically diagnosed through a process of elimination of the other usual suspect diseases such as lupus. Lyme disease etc....Very surprised they hadn't checked you yet for heavy metal poisoning...ie arsenic...YEP....Seems these symptoms are those which we have when some bad people try to poison others with arsenic. My symptoms are IDENTICAL and these are usually associated with unexplained body aches and pain in the joints, tendons, ligaments and connective tissue. This parasthesia, or neuropathy usually is progressive in nature but not always. Severity also varies widely from person to person. Long term can lead to loss of muscle tone, muscle mass, also associated with fatigue, lack of concentration and "Fibro-fog". There is much to learn about this disease. The best chance of finding a doctor that will properly diagnose this would be a Rhumatologist....their field of study. Also can be the culrpet behind weakened breathing muscles and which in turn provides less oqigen the the heart, causing a host of other issues...........which are terrifying unto themselves. Anyone reading this that needs more info feel free to contact me via email. jtroop1@cfl.rr.com .....Jeffrey
    Anonymous 42789 Replies Flag this Response
  • I have had fibromyalgia, ME, erythromelagia for 7 years, I also have the full body (want to tear my skin off) pins and bloody needles, this has been getting progressively worse over last year, I have been trying to find another reason for it, because I can't except that it is going to continue getting worse, and really wanted to find a treatment for it. BUT I CAN'T - It's just the FIBRO isn't it. This is not good.I may be beaten down by FIBRO, but don't freak out if you get it, there are not that many of us who suffer as bad as I, I think I've hit the bottom, then another couple of layers appear. Most people with FIBRO can still work and function (slower than normal, but still function), unfortunately I have ME as well............
    Anonymous 42789 Replies Flag this Response
  • Hi I have same problem head to toe. Not a square in sparredBut does anyone have twitching and cramps with itI have stabbing pain and muscle tightness even in my throats and jaw.
    Anonymous 42789 Replies Flag this Response
  • Hi I have same problem head to toe. Not a square in sparredBut does anyone have twitching and cramps with itI have stabbing pain and muscle tightness even in my throats and jaw. I recently diagnosed myself with Fibromyalgia, because nothing else really fits my symptoms. I have the muscle aches, stabbing pain, and muscle tightness and spasms liek you do along with peristhesia, and a lot of other symptoms. I think you should consider FMS as a possibility to the cause of your pain. Living Well With Fibromyalgia and Chronic Fatigue Syndrome, is a great book, and it has helped me a lot. I wish you the best!
    jessbestrong 18 Replies
    • August 24, 2010
    • 10:12 PM
    • 0
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  • Well… These replies do not look encouraging. I use to get these pins and needle feelings infrequently—but now ever day all day. Will speak to my primary care doctor at the VA but it seems that most of you have done the same. I have worked with chemicals for over thirty years… perhaps a detox…or should we all get a prescription for medical marijuana and forget about it. The discomfort is lousy, when it goes with you right up to the minute one goes to sleep. Golden years... yea right.
    DaveOwen 2 Replies
    • November 24, 2010
    • 00:43 PM
    • 0
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  • There is hope Yesterday I had no answer-however; I was tingling so bad, I tried something... Since I have been working with chemicals for over thirty years I tried simple Milk Thistle. Natural DeTox It's been around since GOD. Then I tried an anti-histamine tablet. It was a prescription that I receive from the VA, but I think just over the counter would work as well. Now I believe that it was the anti-histamine that worked, but I do not know. My condition stopped cold about two hours after I took the products. I only took the anti-histamine today and so far A-OKAY. I would consult a good pharmacist as they are schooled in the chemical compositions and affects of pharmaceuticals and nutritionals. I have met some very interesting pharmacists. Hope this helps, as I know these conditions are so irritating.
    DaveOwen 2 Replies
    • November 25, 2010
    • 02:55 PM
    • 0
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  • I am having the same problems described by many folks on this thread. I have been to my primary care doctor and a neurologist. I am now scheduled for additional testing - but recently had a realization. We switched from a laundry detergent that was HE Free to HE Free Cold Water. I never even gave it a thought until I compared the ingredients and found the one new ingredient - Benzisothiazolinone. I then searched on the internet to find many people describe allergic reactions to this chemical in a very similar fashion to what is being described in this thread. We are switching back to our old laundry detergent to see if this makes a difference - but, if you think about it...I have a chemical on my clothing that I may be allergic to...when you start to sweat, get upset, do any activity that brings blood or other fluids to the surface to interact with the problem chemical...this actually makes a lot of sense to me. I wonder how many other folks have a similar problem. Check out the products you use - you never know what you may find...
    Anonymous 42789 Replies
    • January 6, 2011
    • 03:17 PM
    • 0
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  • I have been suffering from the same exact symptoms you mentioned above. I dont know what this is actually. Can anyone give info? thanksyou should se a neurologist for tests and mri
    Anonymous 42789 Replies
    • January 7, 2011
    • 03:07 AM
    • 0
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