Discussions By Condition: Nerve conditions

Periodical Paralysis, Forgetfulness, Confusion?

Posted In: Nerve conditions 14 Replies
  • Posted By: MedicallyUnfit
  • February 8, 2007
  • 02:11 PM

I am 26 turning 27 average height and slight build, I have had problems in the past with Irritible Bowel, frequent urination and fatigue but since October 2006 I have started having seizures resulting in short term paralyisis but I remain fully conscious during the seizure and I can speak but my speach becomes extremely they are approx monthly they leave me week and fatigued. Since the seizures started I am having problems with night sweats, insomnia, I cannot keep track of time or days, confusion, inability to think, poor concentration, I have difficulting thinking of words or use the wrong words and I am completely unaware I may have said left instead of right, I have reduced experience occasional reduced sensation to touch and pins and needles. Does anyone have any ideas? It has been suggested it could be MS by a family friend could this be right?

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  • I am 26 turning 27 average height and slight build, I have had problems in the past with Irritible Bowel, frequent urination and fatigue but since October 2006 I have started having seizures resulting in short term paralyisis but I remain fully conscious during the seizure and I can speak but my speach becomes extremely they are approx monthly they leave me week and fatigued. Since the seizures started I am having problems with night sweats, insomnia, I cannot keep track of time or days, confusion, inability to think, poor concentration, I have difficulting thinking of words or use the wrong words and I am completely unaware I may have said left instead of right, I have reduced experience occasional reduced sensation to touch and pins and needles. Does anyone have any ideas? It has been suggested it could be MS by a family friend could this be right? MS is something that can't be diagnosed by a test. I have memory problems, severe numbness and pain in my arms and legs. I have frequent muscle spasms and also difficulty speaking. I havea very hard time remembering the month, day, year and the time of day. I experience confusion, inability to think and poor concentration. I also have problems with thinking of words I want to say but don't remember and too saying right and wrong at the wrong times. I feel like my brain is smart but has a very delayed responsive time. Yesterday my doctor prescribed Neurotin. He is hoping this will take away some of the pain and numbness in my arms and legs. I am taking Provigel 100mg to help keep me awake and alert during the day. There are times I just drift off to sleep, at times when I am driving. I have tried those drinks to keep you wired. They didn't do anything for me. I am using a Fentanyl Patch 25mg. to help with pain. I should be on a 50mg dose but on Thanksgiving Day I was rushed to the hopsital because I was prescribed a 100mg patch. I was on a heart monitor and in the hospital for 6 days. It scared me so bad that I won't go any higher than 25mg. Hang in there and go to your doctor and tell him what you are experiencing and see what he says. The pain, numbness, and memory problems. Tell him. I am actually going to beg you. You are to young to not be treated right. I have children just a few years younger than you and it would hurt me a lot if they didn't take the time to get themselves. So from the mouth of a mother, get to the doctor. You didn't say but do you know why you are having seizures? Are you on medication to treat them? I take Neurotin. It is used to treat seizures and also numbness in your hands and feet. My Dr. is treating me for MS. Depending how I respond tells him how aggressively he could treat me.
    Lorrie 5 Replies
    • February 14, 2007
    • 00:23 AM
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  • :) Thank you so much, you reply helps me feel not so alone, tonight I am really down and sick of not having any answers! This is probably a clearly explanation of what is happening; Mid October 2006 I awoke feeling very fatigued, heavy, experiencing vertigo, felt unwell and walking to the kitchen caused me to breath heavy as if I had just completed streanous exercise and then internal muscle twitches began with the heavy breath, racing heart and once those last 3 symptoms subsided I was left paralysed, with distorted sensation of touch and I could move my eyes and my speach which was laboured and extremely slurred. After an hour or so my feeling and movement returned but for the next week this happended many times a day. I now have these episodes on average monthly but my biggest problem is the everyday symptoms, tremors, heavy legs (like they are full of lead), itchy skin (No rash or other cause), forgetfulness (put trash in the fridge and the item meant for the bin in the fridge), confusion (problems thinking things through, reading, listening to others talking and understanding what their saying), vertigo, difficulting finding the works I am looking for, inability to manage time and loose track of time, saying something other than what I meant to say but I am unaware I said anything other than what I was thinking, constipation, frequent need for urination, difficulting making judgements (for example the speed a car is travelling at when I attempt to cross the road; therefore I currently am unable to drive) and vagueness. My Neurologist has been less than helpful, she completed a EEG confirming I do not have epilepsy and my GP ordered a CT scan which returned clear therefore based on those things and checking my reflexes, co-ordination and on the two occasions she has seen me she watched me walk (both visits of course falling on what I would now call a good day) she has decided she doesnt think it's neurologic (My GP does not agree nor do my friends who work in the medical field) and reluctantly at my request she has ordered a MRI which I have scheduled for this Friday but the MRI is for the head only so I am concerned it may miss something relevant and she refused to include anything else. My Neurologist has made statements such as "you dont have MS" but my research has shown she cannot make that statement without a MRI or Spinal Tap so I am little baffled. So I am on no medication, receiving no assistance, have absolutely no answers or suggestions to the cause and under Australian law due to my health and with no diagnosis I cant drive, due to fear of being rendered helpless as I dont have a diagnosis or medic alert bracelet I cant even catch public transport or walk somewhere alone, so I no longer work and I have to rely on others to go anywhere, so now I am getting depressed! I just want a diagnosis so I can get the help I need and to plan my future. Wishing you happiness and good health.
    MedicallyUnfit 14 Replies
    • February 14, 2007
    • 03:07 PM
    • 0
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  • Wow, we should talk. You symptoms are almost identical to mine. With the exception of less memorie problems. You can find me on myspace.com/tammynstan. I am a 34 year old mother of four. I have had consistent problems for a year. My most frequent problems are extream fatigue, musle pain, blurred vision, trembling muscles, balance. I have been to 2 neurologist, both of them have problems listening. I have had and MRI and EEG that both showed nothing. I am now looking for a doc that will aprove a spinal tap w/o lesions on the MRI. I need answers. One friend of mine was diagnosed with MS five years ago by spinal tap, but just had her first lesion show up on MRI. Five years later, isn't that amazing? Anyhow, just know, I know exactly how you feel. Its a scary thing, and so hard to explain to people. It changes daily if not hourly. Also I am always worse on my period. I guess the hormones do something to make symptoms worse. Another friend of mine with ms also noticed hers is worse durring her period. You are in my thoughts and prayers. Hugs!:o
    It won't stop me 2 Replies
    • February 17, 2007
    • 04:25 AM
    • 0
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  • This all sounds too familar to me. At first it was thought I had ms, but no lesions on mri. Was then dx'd with fibro, treated on that for 7 yrs, still got worse. Ends up I have had undx'd Lyme disease for 20 yrs. Lyme & its coifections, don't always show up in blood work, cause the bacteria isn't always in the blood, its all over the body.. MAny people with MS , Fibro and more, are positve for Lyme. Undx'd Lyme also messes with the glands so get them checked as well...Do a google search, and check out this link www.lymenet.org best wishes to you both.
    Anonymous 42789 Replies
    • February 20, 2007
    • 00:41 PM
    • 0
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  • :) Thank you so much, you reply helps me feel not so alone, tonight I am really down and sick of not having any answers! This is probably a clearly explanation of what is happening; Mid October 2006 I awoke feeling very fatigued, heavy, experiencing vertigo, felt unwell and walking to the kitchen caused me to breath heavy as if I had just completed streanous exercise and then internal muscle twitches began with the heavy breath, racing heart and once those last 3 symptoms subsided I was left paralysed, with distorted sensation of touch and I could move my eyes and my speach which was laboured and extremely slurred. After an hour or so my feeling and movement returned but for the next week this happended many times a day. I now have these episodes on average monthly but my biggest problem is the everyday symptoms, tremors, heavy legs (like they are full of lead), itchy skin (No rash or other cause), forgetfulness (put trash in the fridge and the item meant for the bin in the fridge), confusion (problems thinking things through, reading, listening to others talking and understanding what their saying), vertigo, difficulting finding the works I am looking for, inability to manage time and loose track of time, saying something other than what I meant to say but I am unaware I said anything other than what I was thinking, constipation, frequent need for urination, difficulting making judgements (for example the speed a car is travelling at when I attempt to cross the road; therefore I currently am unable to drive) and vagueness. My Neurologist has been less than helpful, she completed a EEG confirming I do not have epilepsy and my GP ordered a CT scan which returned clear therefore based on those things and checking my reflexes, co-ordination and on the two occasions she has seen me she watched me walk (both visits of course falling on what I would now call a good day) she has decided she doesnt think it's neurologic (My GP does not agree nor do my friends who work in the medical field) and reluctantly at my request she has ordered a MRI which I have scheduled for this Friday but the MRI is for the head only so I am concerned it may miss something relevant and she refused to include anything else. My Neurologist has made statements such as "you dont have MS" but my research has shown she cannot make that statement without a MRI or Spinal Tap so I am little baffled. So I am on no medication, receiving no assistance, have absolutely no answers or suggestions to the cause and under Australian law due to my health and with no diagnosis I cant drive, due to fear of being rendered helpless as I dont have a diagnosis or medic alert bracelet I cant even catch public transport or walk somewhere alone, so I no longer work and I have to rely on others to go anywhere, so now I am getting depressed! I just want a diagnosis so I can get the help I need and to plan my future. Wishing you happiness and good health. Hello,it seems we have a lot in common I also have similar symptoms it started with pain in the balls and heels of my feet then numbness and pain in legs then my face started to go numb then my arms and hands went numb my memory changes from day to day my vision is also very blurry.I am also having trouble with erectal and urination.I am 41 years old, docs say all blood work ok mri on brain ok,have seen numerous docs ,neurologist,neuro surgeon,arthritus doc none have given me any type of answers my latest doc said I have depression and that is what is causing all of my symptoms.
    Anonymous 42789 Replies
    • February 27, 2007
    • 10:44 PM
    • 0
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  • I really wonder sometimes if some doctors are idiots or afraid of bureaucracy or being sued! I have had the same suggestion made to me as everything appears normal it must be psychological and whilst I have no doubt in some instances this could be correct it is not in my case and my women's health doctor and GP who both know me do not believe it to be psychological either and both agree it appears neurological, so I have requested a referral from my GP to see a psychiatrist to obtain a clear bill of mental health to present to my next neurologist to avoid that line of thinking. I let you know how that works out!:rolleyes:
    MedicallyUnfit 14 Replies
    • February 28, 2007
    • 08:07 AM
    • 0
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  • Hi,I too have a condition that came up normal on an MRI, EEG, ECG, muscle test, and blood tests. At first I was scared it was MS, but although I am a bit dappy at times and confuse stuff, my symptoms are more in line with HYPP, a periodic paralysis caused by potassium sensitvity. I am still pushing for the relevant test - but because the neuro exams are ok they are trying to refer me to a psychologist and psychiatrist !? HYPP is actually muscular so the tests wouldn't pick it up. The muscle test would only work if they had done it during an attack. I am progressively getting weaker between attacks, but am still slightly concerned that even though MRI ok that MS is also still a possibility. I also have psoriatic arthritis so I get a fair bit of pain when going through a flare up. I have had the paralysis symtpoms since last Jan - I am 28 now and the potassium test takes 2 hrs to do - basically they give you controlled amounts and monitor your reaction. pretty conclusive I'd say! So why do the NHS insist on making a simple solution so long, drawn out and painful ? I also get muscle seziures/mytonia and weakness. The paralysis last from 5 mins to 4 hrs from daily to weekly from 1 - several times a day. No pain with it but reduced sensations. Reflexes are still fine, I guess because nerves are ok. Fully aware, but full body paralysis can leave me tired/exhausted and hungry after. Sometimes I just get my legs, or hand, or voice. Worst case my chest muscles are affected and can barely breathe. However it comes on suddenly it can go just as suddenly and having some one move me can break me out of it. I do have periods of confusion, memory loss but I attribute this more to the fact I could eat better, I don't drink enough water and need to use my brain more - I don't really do any brain excercises so it probably contributes to my fluffiness! I also get the shakes but this was diagnosed 2003 as benign essential tremor as it doesn't always affect me badly. I have it now as I am going through a bad patch with both arthritis flare up and muscle weakness/spasms & paralysis. I am very tired most of the time and have had some difficulty past few nights getting to sleep so will get up until 2pm and then go back to bed. Last night was better as I fought to stay awake all day. When I am ok the paralysis is incovenient but doesn't leave me so drained, on my good weeks I am walking for hours shopping, going gym, going to see friends etc. Today I can walk slowly a while before I need to sit. If I over do it, I collapse. Oh and I also get fuzzy pins and needles too. And cold hands and feet when tired/unwell. I get disorientated at times but I forget I do and I don't think I mentioned this to my Drs. Prob because during the attacks I am fully aware and can blink to respond. Its all a bit too much really - but I am thankful for the health I do have. There are always people much worse off . .
    Squidgeblip 9 Replies Flag this Response
  • My mother suffers from hypokalemic periodic paralysis. Maybe that's a possibility. It took years and the Mayo Clinic to get her a diagnosis. She started having problems at 33 years old. You may want to research it. You'll be in my prayers!
    BNC052083 3 Replies Flag this Response
  • Hi, Yeah I guessed it will take them ages to diagnose because they never look at the obvious! I looked at the different types of PP and my symptoms are more Hyper not hypo as potassium rich foods trigger me off - I tested it myself with baked beans and potatoes! Why don't they just listen and save us all time, money and effort!? Apparently HypoKalemic PP is more common, which I think is why they are less inclined to test me because in this part of the world HyperKalemic is virtually unheard of. Quote my first Neurologist -"You can't have HyperKalemic Periodic Paralysis because it's rare." ????!!!! What an arse biscuit. Needless to say I changed neurologists.
    Squidgeblip 9 Replies Flag this Response
  • :) I have been so slack! I would like to thank everyone for their information, support and personal cander. The information I have gained from here, other sites and my friends who work in the medical field has been invaluble and the information the doctors have provided is, well, to be kind pitiful! I have found through my research unlike what the doctors would have you believe, not all illnesses can be diagnosised on a MRI, MS for example can be in some people and not in others, and a MRI is less than 95% accurate which is then reduced by the type of imaging used and the operators skills, so a clear MRI is not a guarantee. My symptoms have evolved, which is ok except for the itching! I have now decided to follow in the footsteps of a girl who posted with similar symptoms and she was getting no where with doctors running the good old "stress" or "it is in your head" lines, when it got too hard for them, so she made an appointment with a psychatriast to rule that out as the cause and then took the clean bill of health she got from the psychatrist to the appointment she made with a new neurologist and then received throurogh treatment and a diagnosis! I spoke with my GP (General Practitioner; I am in Australia unsure if that termonology is used in other countries) who is supportive and does not believe it is in my head and he supported the idea, so now I have a psychatrist appointment in mid May and a neurologist appointment July 2. I also found the two previous neurologist I was referred to specialised in epilepsy and as I do not have epilepsy they were limited in their experience to assist me, therefore this time I researched Neurologists in my state as to the qualifications, experience and their speciality and as I am a private patient I requested a doctor I found who's speciality which will suit my needs, which I think will be a great help! Hopefully I have good news soon! I am sure greatful for the health I have. You can contact me direct if you wish @ http://www.myspace.com/158696777 (I would love to hear from you all especially Squidgeblip). Wishing you all good health and happiness!
    MedicallyUnfit 14 Replies Flag this Response
  • Hi people...I've just found your thread - and wonder what you were diagnosed with since you last wrote on here?I have soooo many of these symptoms you've mentioned. it's enlightening to read that other people have it - so I have hope. I got ill in Adelaide and first lot of treatment, then in England, then it flared up when i lived in New Zealand and then the final episode of A&E entry was back in the UK (where i am now residing)I've had many diagnosis's and have some brain damage on right side of brain (although neuro did say that many people may have brain damage however we only do MRI's on people that need them). I was diagnosed with ME ages ago. Then after the second hospitalisation of the above, I had a spinal tap - negative for MS which i had been previously diagnosed with. I was left 'high and dry' and thought things had calmed down until recently...in the last 2.5 years. I have had 'lightning process' treatment for the ME which was fantastic and I believe cured me of this (2 years ago).Stress certainly does aggravate my symptoms as I think it restricts the blood circulation in my neck, where i get tension and pain. 2.5 years ago I had strange stomach problems - again unsolved...with some twitch/pseudo seizures mixed in! Their looked down my throat/stomach to find it normal. My white blood cell count was concerningly low...and in the end the doc wanted to do a bone marrow thing. after long times on the internet we sussed out i had trapped air on the corners of the digestive system.Anyways...I am really really hoping to hear that someone has been diagnosed. I had read the stuff on HyperK PP with interest. MY brain is now rather tired. Oh one other thing...do you also get this: ultra sensitive to sound, touch, and taste - I had this happen before at the beginning and it appears in this order...I'm now on the taste sensitivity along with the others...cold dull food seems to be 'attractive' lol.Thanks for reading this and a happy new year to everyone.Cheers, Tanjarine (I hope this has made sense to read?)
    Anonymous 42789 Replies
    • January 1, 2009
    • 05:33 PM
    • 0
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  • Hi people...I've just found your thread - and wonder what you were diagnosed with since you last wrote on here?I have soooo many of these symptoms you've mentioned (paralysis, pseudo seizures, hyper sensitivities, floppy limbs esp. legs, muscle tension during seizures, speech loss and then stutter, frustration, confusion, disorientation...etc). it's enlightening to read that other people have it - so I have hope. I got ill in Adelaide and first lot of treatment, then in England, then it flared up when i lived in New Zealand and then the final episode of A&E entry was back in the UK (where i am now residing)I've had many diagnosis's and have some brain damage on right side of brain (although neuro did say that many people may have brain damage however we only do MRI's on people that need them). I was diagnosed with ME ages ago. Then after the second hospitalisation of the above, I had a spinal tap - negative for MS which i had been previously diagnosed with. I was left 'high and dry' and thought things had calmed down until recently...in the last 2.5 years. I have had 'lightning process' treatment for the ME which was fantastic and I believe cured me of this (2 years ago).Stress certainly does aggravate my symptoms as I think it restricts the blood circulation in my neck, where i get tension and pain. 2.5 years ago I had strange stomach problems - again unsolved...with some twitch/pseudo seizures mixed in! Their looked down my throat/stomach to find it normal. My white blood cell count was concerningly low...and in the end the doc wanted to do a bone marrow thing. after long times on the internet we sussed out i had trapped air on the corners of the digestive system and took licorice tablets which eased this. the doc's attitude (slackness and investigations) really got to me.Oh one other thing...do you also get this: ultra sensitive to sound, touch, and taste - I had this happen before at the beginning and it appears in this order...I'm now on the taste sensitivity along with the others...cold dull food seems to be 'attractive' lol.Anyways...I am really really hoping to hear that someone has been diagnosed. I had read the stuff on HyperK PP which i am wondering about.Thanks for reading this and a happy new year to everyone.Cheers, Tanjarine (I hope this has made sense to read?)
    Tanjarine 2 Replies
    • January 1, 2009
    • 05:38 PM
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  • I really believe you ought to do some research on hypo hyperkalemia partial paralysis and or other ion channelopathies,, your answer might lie there,, for me andersen tawil syndrome.. kattsqueen
    kattsqueen 29 Replies
    • August 18, 2009
    • 10:59 PM
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  • Thanks for your reply Kattsqueen - and I'm sorry to hear that you have ats...i hope that you are managing to have some normality alongside the symptoms.I appreciate your response greatly and have spent time researching on hyper/hypo KPP. Recently I discovered most of my symptoms matching Lyme disease of which I'm seeing a private consultant specialist to diagnose me...if it is lyme, then there is normally a reason/underlying issue with health. perhaps it's hypokpp...it's certainly challenging to suss it all out and i so look forward to the bewildering day when i get to find out the underlying reason for all my weird symptoms.Any further feedback from people is very much appreciated.RegardsTanjarineI really believe you ought to do some research on hypo hyperkalemia partial paralysis and or other ion channelopathies,, your answer might lie there,, for me andersen tawil syndrome.. kattsqueen
    Tanjarine 2 Replies
    • August 19, 2009
    • 11:43 AM
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