So going about life as a rather healthy 23 year old I was struck one day by a tonic clonic seizure at work. It lasted around 5 minutes and included a great scene in which my co-workers apparently assumed that I was on drugs (you know because I was 23 that had to be what it was, it so was not).
My first doc assumed that it was a freak incident but ordered tests to determine if there was some identifiable cause of my seizure. When I was out of town I had another similar seizure (2 actually in a period of a few hours) which blew her whole random theory out of the water. The hospital put me on Dilantin and told me to contact her when I got home. After finding out that if I stopped the drugs I could die I freaked out and called her office and was asked by her secretary "so what do you want the doctor to do for you?" very rudely. When I replied that I needed meds and was never called back I went into a clinic and was helped by an intern. After this fiasco I found a better doc but he was still unable to determine the cause of my seizures and after many varied tests the cause is still undetermined.
I know it is actually quite common for a patient to have no known cause of their epilepsy, but my question is if my previous symptoms were connected and if they should have alerted the doctors I visted to a problem long before they manifested themselves in seizures?
At the age of around 13 I began to have strange stomach problems that morphed througout the years. First it was just pain but at around 18 it turned into vomiting bile in the mornings like morning sickness with no pregnancy. This lasted for years and the only thing doctors told me was that I might have IBS (even though I have NO bowel problems) and another doc told me to eat breakfast and my problems would be solved. The stomach problems and vomiting plagued me for years until the onset of the epilepsy. Now that I take meds I no longer vomit for no reason. The only exception is when I sleep less than 5 hours (which is also a catalyst to seizures). This makes me think the two are connected and that the vomiting and stomach issues, accompanied by sensitivity to heat (which produced vomiting) and lack of sleep were prior indicators of my epilepsy.
Has anyone else had a similar experience? Does anyone know if this might be a common thing? I almost feel like there was some sort of build up that finally exploded in epilepsy but I don't know how this connected could be? Please reply if you have anything to share.
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