Hi - my hubby has mosaic NF2 - he is 41yrs - diagnosed a few years back by the genetics mob through blood screening etc. He had a VS (golf ball size) removed in 1997 and is totally deaf in his right ear. He has routine MRIs - last one just over 18 months ago and showed all clear except for a tumour on T5 which we have been monitoring for years.He has had a schwanoma removed from his arm and one from his gum over the past 5 years. He Is waiting for the next routine MRI - due feb.
My concern is that in the last 2 weeks he said he is experiencing a whooshing sound (like helicopter blades), he said voices are sound a bit robotic/ tinny. I think his hearing may be down a tad - but hard to tell as he is deaf on the right side anyways and he said the whooshing sound interferres with it anyways. He has always had tinnitus (ringing) since the first VS and this hasnt changed at all..and he didnt have a whooshing sound with the first one (just tinnitus).
The GP said there is no obvious sign of infection, but he has been put on a course of Keflex (just in case). We have booked him in for a hearing test with the audiologist next tuesday as well.
I guess my question is this - VS or AN's are usually very slow growing. If his last brain MRI (approx 20months) ago was clear - is it likely that he could have developed another VS (on the left side) so quickly and that would cause these type of symptoms so soon? How big do they have to be to cause symptons?Is it possible that it could be something else? If he hadnt had an MRI for a long time - I would be automatically thinking Vest Schwanoma - but he was clear on the last one.What are your thoughts??? cheers J