Discussions By Condition: Nerve conditions

Need help with muscle twitching/jerking issue!

Posted In: Nerve conditions 4 Replies
  • Posted By: seventhcandle
  • August 18, 2012
  • 08:51 PM

Hello. Prior to this summer, I was a healthy, active 31 year old male with a fairly normal sleeping schedule. Outside of migraine with aura, I didn't really have any other health problems. I am married, have one child, and working full-time in an educational career.

Over the summer, I had a brief bout of sleepless nights and dediced to give Unisom (doxylamine succinate) a try on June 26. I've never tried sleeping pills before, but I figured it couldn't hurt if I tried one. I popped one half of a pill (12.5 mg) and fell asleep that night, but woke up feeling drugged and I had some tinnitus. When I tried to fall asleep the next night, I couldn't - I noticed my foot would **** briefly to the right as I was falling asleep.

Somehow I managed to sleep ok after that night for three nights in a row, until the insomnia returned again. I took one more 12.5 mg Unisom pill on July 3 and fell asleep ok for about 6 hrs. except for waking up twice in a startled state twice during the night. The next night, however I had muscle twitching in my legs and calves and my feet would **** to the right, as they did a few nights before.

I had another run of sleepless nights and on July 6, decided to take what would be my last unisom tablet (12.5 mg again). I was twitching pretty badly and woke up with tightness in my chest/difficulty breathing for about 10-15 seconds. I threw the Unisom out and went to my PCP because I was twitching really badly, now not only in my legs and feet, but also my arms and shoulders. She told me to stop taking the Unisom and prescribed me some Ambien and told me to take it on an "as needed" basis and re-assured me I would not react the same way to this different kind of medicine as I had to the Unisom.

I had seven sleepless nights in a row after that last dose of Unisom, but I tried my darndest to not touch the Ambien because I was afraid of what it might do to me. I was twitching all the time and having brief jerks in my legs/feet when I was about to fall asleep. I took a magnesium/calcium supplement and the jerks did subside, but the twitching didn't. I somehow managed to get 2-8 hrs. of sleep each night over a two week period after this, but then the insomnia returned again during the last week of July/first week of August and on July 30, I decided to try the Ambien.

Mind you I only took it once and only took the recommended 5mg dosage. Immediately I noticed the twitching spreading to all over my body, including my neck, throat, face, tongue, cheeks, forehead, back, buttocks, eyes...anywhere and everywhere and it was stronger and more frequent than before. I told my doctor about this and she was clueless and referred me to a neurologist.

In the meantime, I started to develop a more frightening symptom, which I still have almost three weeks out after my one and only dose of ambien. Every time I try to rest or fall asleep, I am awakened by brief jerks of random body parts, including feet, legs, hands, fingers, abdomen, face, tongue, eyelids, and neck, to name a few. Some of these jerks are fairly strong and occasionally I'll get a tremor with them. In the first week off ambien, I couldn't sleep more than 2-3 hours at night and some nights not at all. I completely lost my ability to nap because of them. These jerking movements only happen when I'm drifting off to sleep and not at any other time and sometimes they can be quite strong, although usually, it just feels like a jolt.

I saw the neurologist and he said the drugs couldn't have done this to me since I only had four isolated small doses of me and blamed it on "anxiety." He said the jerking movements when I was trying to nod off to sleep at night were "periodic limb movement disorder" and he prescribed me with mirapex which he said should take care of these movements. From my understanding, PLMD only happens when you are asleep and not during the wake-sleep transition. This has been torture as it takes me HOURS to fall asleep at night and when I do, I wake up frequently and have to deal with the jerks again and again. To the best of my knowledge, these jerks do not happen when I am fast asleep. Could this really be PLMD or something else? I've searched and searched and searched online for hours and can't quite find anything that matches these symptoms, but it is making my life miserable and making me have suicidal thoughts as I can barely get through the day most days and I am afraid to go to sleep at night because of these jerks.

I saw a sleep specialist and he was also baffled by these symptoms and didn't think the meds could have caused them either. But prior to taking these meds, I never had any of these problems.

Please - any help, ideas, or experiences would be most helpful. I don't want to take the Mirapex if I don't have PLMD. Who knows? It could cause even more problems and I can't afford that now. I am the sole supporter of my family and if I lose my job because of this, we will lose everything we have.

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4 Replies:

  • Have you researched Myoclonic Jerks/Twitches? Mine began in my thirties and started with only one leg. Take heart, I have more good days than bad days. I will tell you that most doctors will see this as a somatoform disorder because it is idiopathic for so many of us. I try not to even discuss it with my doctors now, they bring it up, I smile and say I'm doing ok. Otherwise they give you one of those looks and take many notes. . .
    Anonymous 42789 Replies
    • January 9, 2013
    • 01:43 AM
    • 0
    Flag this Response
  • Hello. Prior to this summer, I was a healthy, active 31 year old male with a fairly normal sleeping schedule. Outside of migraine with aura, I didn't really have any other health problems. I am married, have one child, and working full-time in an educational career. Over the summer, I had a brief bout of sleepless nights and dediced to give Unisom (doxylamine succinate) a try on June 26. I've never tried sleeping pills before, but I figured it couldn't hurt if I tried one. I popped one half of a pill (12.5 mg) and fell asleep that night, but woke up feeling drugged and I had some tinnitus. When I tried to fall asleep the next night, I couldn't - I noticed my foot would **** briefly to the right as I was falling asleep. Somehow I managed to sleep ok after that night for three nights in a row, until the insomnia returned again. I took one more 12.5 mg Unisom pill on July 3 and fell asleep ok for about 6 hrs. except for waking up twice in a startled state twice during the night. The next night, however I had muscle twitching in my legs and calves and my feet would **** to the right, as they did a few nights before.I had another run of sleepless nights and on July 6, decided to take what would be my last unisom tablet (12.5 mg again). I was twitching pretty badly and woke up with tightness in my chest/difficulty breathing for about 10-15 seconds. I threw the Unisom out and went to my PCP because I was twitching really badly, now not only in my legs and feet, but also my arms and shoulders. She told me to stop taking the Unisom and prescribed me some Ambien and told me to take it on an "as needed" basis and re-assured me I would not react the same way to this different kind of medicine as I had to the Unisom. I had seven sleepless nights in a row after that last dose of Unisom, but I tried my darndest to not touch the Ambien because I was afraid of what it might do to me. I was twitching all the time and having brief jerks in my legs/feet when I was about to fall asleep. I took a magnesium/calcium supplement and the jerks did subside, but the twitching didn't. I somehow managed to get 2-8 hrs. of sleep each night over a two week period after this, but then the insomnia returned again during the last week of July/first week of August and on July 30, I decided to try the Ambien.Mind you I only took it once and only took the recommended 5mg dosage. Immediately I noticed the twitching spreading to all over my body, including my neck, throat, face, tongue, cheeks, forehead, back, buttocks, eyes...anywhere and everywhere and it was stronger and more frequent than before. I told my doctor about this and she was clueless and referred me to a neurologist.In the meantime, I started to develop a more frightening symptom, which I still have almost three weeks out after my one and only dose of ambien. Every time I try to rest or fall asleep, I am awakened by brief jerks of random body parts, including feet, legs, hands, fingers, abdomen, face, tongue, eyelids, and neck, to name a few. Some of these jerks are fairly strong and occasionally I'll get a tremor with them. In the first week off ambien, I couldn't sleep more than 2-3 hours at night and some nights not at all. I completely lost my ability to nap because of them. These jerking movements only happen when I'm drifting off to sleep and not at any other time and sometimes they can be quite strong, although usually, it just feels like a jolt. I saw the neurologist and he said the drugs couldn't have done this to me since I only had four isolated small doses of me and blamed it on "anxiety." He said the jerking movements when I was trying to nod off to sleep at night were "periodic limb movement disorder" and he prescribed me with mirapex which he said should take care of these movements. From my understanding, PLMD only happens when you are asleep and not during the wake-sleep transition. This has been torture as it takes me HOURS to fall asleep at night and when I do, I wake up frequently and have to deal with the jerks again and again. To the best of my knowledge, these jerks do not happen when I am fast asleep. Could this really be PLMD or something else? I've searched and searched and searched online for hours and can't quite find anything that matches these symptoms, but it is making my life miserable and making me have suicidal thoughts as I can barely get through the day most days and I am afraid to go to sleep at night because of these jerks. I saw a sleep specialist and he was also baffled by these symptoms and didn't think the meds could have caused them either. But prior to taking these meds, I never had any of these problems. Please - any help, ideas, or experiences would be most helpful. I don't want to take the Mirapex if I don't have PLMD. Who knows? It could cause even more problems and I can't afford that now. I am the sole supporter of my family and if I lose my job because of this, we will lose everything we have.Have you had your B-12 level checked. B-12 deficiency cause a number of weird neurologic and psychological problems. You might just try taking some 5000 mcg methylcobalamine and a good B complex vitamin and see if it doesn't help.
    Anonymous 42789 Replies
    • February 18, 2013
    • 10:26 PM
    • 0
    Flag this Response
  • Hello. Prior to this summer, I was a healthy, active 31 year old male with a fairly normal sleeping schedule. Outside of migraine with aura, I didn't really have any other health problems. I am married, have one child, and working full-time in an educational career. Over the summer, I had a brief bout of sleepless nights and dediced to give Unisom (doxylamine succinate) a try on June 26. I've never tried sleeping pills before, but I figured it couldn't hurt if I tried one. I popped one half of a pill (12.5 mg) and fell asleep that night, but woke up feeling drugged and I had some tinnitus. When I tried to fall asleep the next night, I couldn't - I noticed my foot would **** briefly to the right as I was falling asleep. Somehow I managed to sleep ok after that night for three nights in a row, until the insomnia returned again. I took one more 12.5 mg Unisom pill on July 3 and fell asleep ok for about 6 hrs. except for waking up twice in a startled state twice during the night. The next night, however I had muscle twitching in my legs and calves and my feet would **** to the right, as they did a few nights before.I had another run of sleepless nights and on July 6, decided to take what would be my last unisom tablet (12.5 mg again). I was twitching pretty badly and woke up with tightness in my chest/difficulty breathing for about 10-15 seconds. I threw the Unisom out and went to my PCP because I was twitching really badly, now not only in my legs and feet, but also my arms and shoulders. She told me to stop taking the Unisom and prescribed me some Ambien and told me to take it on an "as needed" basis and re-assured me I would not react the same way to this different kind of medicine as I had to the Unisom. I had seven sleepless nights in a row after that last dose of Unisom, but I tried my darndest to not touch the Ambien because I was afraid of what it might do to me. I was twitching all the time and having brief jerks in my legs/feet when I was about to fall asleep. I took a magnesium/calcium supplement and the jerks did subside, but the twitching didn't. I somehow managed to get 2-8 hrs. of sleep each night over a two week period after this, but then the insomnia returned again during the last week of July/first week of August and on July 30, I decided to try the Ambien.Mind you I only took it once and only took the recommended 5mg dosage. Immediately I noticed the twitching spreading to all over my body, including my neck, throat, face, tongue, cheeks, forehead, back, buttocks, eyes...anywhere and everywhere and it was stronger and more frequent than before. I told my doctor about this and she was clueless and referred me to a neurologist.In the meantime, I started to develop a more frightening symptom, which I still have almost three weeks out after my one and only dose of ambien. Every time I try to rest or fall asleep, I am awakened by brief jerks of random body parts, including feet, legs, hands, fingers, abdomen, face, tongue, eyelids, and neck, to name a few. Some of these jerks are fairly strong and occasionally I'll get a tremor with them. In the first week off ambien, I couldn't sleep more than 2-3 hours at night and some nights not at all. I completely lost my ability to nap because of them. These jerking movements only happen when I'm drifting off to sleep and not at any other time and sometimes they can be quite strong, although usually, it just feels like a jolt. I saw the neurologist and he said the drugs couldn't have done this to me since I only had four isolated small doses of me and blamed it on "anxiety." He said the jerking movements when I was trying to nod off to sleep at night were "periodic limb movement disorder" and he prescribed me with mirapex which he said should take care of these movements. From my understanding, PLMD only happens when you are asleep and not during the wake-sleep transition. This has been torture as it takes me HOURS to fall asleep at night and when I do, I wake up frequently and have to deal with the jerks again and again. To the best of my knowledge, these jerks do not happen when I am fast asleep. Could this really be PLMD or something else? I've searched and searched and searched online for hours and can't quite find anything that matches these symptoms, but it is making my life miserable and making me have suicidal thoughts as I can barely get through the day most days and I am afraid to go to sleep at night because of these jerks. I saw a sleep specialist and he was also baffled by these symptoms and didn't think the meds could have caused them either. But prior to taking these meds, I never had any of these problems. Please - any help, ideas, or experiences would be most helpful. I don't want to take the Mirapex if I don't have PLMD. Who knows? It could cause even more problems and I can't afford that now. I am the sole supporter of my family and if I lose my job because of this, we will lose everything we have. PLMD!! Seventhcandle, I have the same issues as you, but they are constant whenever I am sitting. Which unfortunately is a lot. I too take Ambien, but every nig or else I don't sleep.. I have been disabled since 1995. Not wheelchair bound. I also have a slew of other symptoms. My PCP just today told me I may have Dysautonomia, & ordered a Tilt Table Test ... It's kind of strange/funny for years every time I would have a new symptom he would say my wife has that too.. I found out today that she has the same condition, as well as his daughter. I have a ? for you. Do you drink? My husband thinks it could be a reaction between alcohol & Ambien.. I do take approx. 12 diff. meds!! I have Chronic Pain & Arachnoiditis! I have had pain for over 25 years. I am 53..
    Tigergirl 1 Replies
    • December 2, 2013
    • 10:04 PM
    • 0
    Flag this Response
  • I have been suffering from muscle twitches, jerks, and spasms during the day and I also am having hypnic jerks since about six weeks after stopping 5-HTP. Biotin helped get rid of the my hypnic jerks at the beginning of the night. I took 5 mgs and I experienced insomnia and headaches. You can take 5 mgs in the morning and 5 mgs at night to help with the jerks. I took gotu kola twice, and one time it eliminated the jerks completely, and another tI'm it got rid of the hypnic jerks at the beginning of the night when falling to sleep. Gotu kola also gave me insomnia and headaches, but they were more mild than they were with biotin. So, these aren't really options for me, unfortunately, but hopefully, they will work for you. I am taking 12.5-25 mgs of trazodone and 0.5-1 mg of ativan, and they reduce the number and the intensity of the jerks for me. I think that our brains are going through serotonin withdrawal, and that supplementing with serotonin would help your jerks like it does mine.
    Anonymous 1 Replies
    • December 28, 2015
    • 05:04 AM
    • 0
    Flag this Response
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