Discussions By Condition: Nerve conditions

Myelopathy, spasticity, burning feet

Posted In: Nerve conditions 1 Replies
  • Posted By: Anonymous
  • March 19, 2008
  • 08:02 PM

My husband was born with Bartter's Syndrome -- it is a potassium
wasting disease affecting the kidney. He takes potassium and other meds (midamor, spironolactone, klor-con, and several vitamin and minerals) including lisinopril for high B/P.

About 5 years he started with burning feet which progressed to
tight muscles in his calfs and then progressed to his thighs and trunk.
This tightness (spasticity) includes brisk reflexes, clonus and balance
issues, babinski signs, myelopathy. Recently he has lost his grip with his hands and now has the spasticity in his arms. We've been to many neurologists (Boston Providence you name it) including 5 MRI's 4 spinal taps and much bloodwork. His kidney doctor said his electrolytes are
fine and does not feel it is bartter’s related. Any ideas or suggestions are greatly appreciated.

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1 Replies:

  • my boyfriend walked with a minor limp 2yrs-ago since then his legs have progressively gotten worse. He suffers from clonus or myelopathy spaticity. He has had EEG's, MRI's, X-Rays & bloodwork for vitamin deficiencies and HIV. He has been to an ortheopaedic surgeon, and a neurologist. No one has answers. His bladder is mainly retentive, but now heHas begun to go a little more frequently. His lower arms are numb and ache. He now walks with a cane and will have a wheelchair shortly. Please any ideas will be extremly helpful. feels some frequency. His lower arms ache and go nu,b.
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