Discussions By Condition: Nerve conditions

MS and other symptoms and Dr.s keep retesting

Posted In: Nerve conditions 3 Replies
  • Posted By: lizzi9983
  • November 23, 2007
  • 08:40 PM

I have firbomaygia but have symtoms that were never covered in that condition. I have extreme muscle spasms, seizers to the point that I had gone to a neurologist to be tested for MS. He did a MRI of my brian and he said it was fine. Monday I went to Rehab. Doctor and he was testing my reflexs and he said that they were very brisk, and then he looked at my fingers and he said they are seizering. He asked me to get MRI to look for MS again. He then added that I have a nervous system problem he just doesn't know what.
I also have problems with my joints and I have been tested for RA but was negative, he said I have the symptoms of that. I also am not able to lose weight at all when I have always been able to before.I work out 4-5 days a week for 1 and 1/2 hours and eat only 1500 cal. They tested my thyroids twice. The first time it was low and the second time it was high.But with in an alright range, but both ways only by 2pts. The tests were only 1 week apart.
What in the world is going on? My Primary is not understanding why I am upset all he wants to do is through a pill at it. Should I try an internest instead? Maybe an Endocradiligst, for the weight and thyroid issue? and a 2nd nerologist? But what are the chances that something would show up in the second MRI after only 6mo.?

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3 Replies:

  • Hi Lizzi,You might want to get a Gliadin (gluten) Antibody test. If the results are much above zero it might explain a lot of your symptoms. Even it it doesn't you can have it at the same time as other problems. The fibromyalgia makes it more likely you have a problem with gluten. Your doc may want to do other tests for Celiac Disease but the Gliadin value really determines whether you should go on a strict gluten free diet for at least a year. You would anyway with Celiac but your doc would want to do some other things. Bear
    Anonymous 42789 Replies
    • January 18, 2008
    • 02:48 AM
    • 0
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  • In addition to getting checked for celiac disease, you may also want to look into getting your thyroid antibodies checked, to see if you might have hashimoto's encephalopathy. I was worked up for MS multiple times over the span of 8 years and eventually found to have HE. The whole time, my thyroid hormone levels were normal!
    Anonymous 42789 Replies
    • January 21, 2008
    • 11:34 PM
    • 0
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  • you may also want to check out the website www.wilsonsthyroidsyndrome.com because it has the same symptoms you are describing along with many more possible symptoms. It talks about the whole thyroid system and not just the T4 which is what the thyroid tests that the docs order tell you about. The problem could be in a part of the thyroid system that has no test.
    Anonymous 42789 Replies
    • January 26, 2008
    • 04:31 AM
    • 0
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