Discussions By Condition: Nerve conditions

Miller Fisher

Posted In: Nerve conditions 2 Replies
  • Posted By: Anonymous
  • August 3, 2006
  • 03:52 PM

During the last week or so in March 2003, I developed a dry cough. Since it was Spring, I thought it to be pollen. A few days later I noticed that my tongue was very cold sensitive. Then, I developed problems with swallowing and my feet began to "tingle". On the morning of April 2, my face was partially paralyzed. I could not smile so I knew I was in trouble and to the ER I went. I was given a battery of tests and admitted to ICU. Slowly and surely, I lost control of the muscles in my body from the shoulders up. Three despairing days later I was placed on a ventilator. It was the worst three days in my life. A few days later a trach was placed and I was taken off ventilation. I was in ICU for three weeks or so and then discharged to a physical rehabilitation unit of the hospital for 30 days. The diagnosis was Guillain-Barre, Miller-Fisher variant.

It has been a little past three years and for the most part, I have recovered. I still lack complete control of my tongue and my speech is somewhat impaired but I can eat, swallow and breathe and for that I am grateful.

If anyone has questions you can post here or email me at saulsc@gru.net.

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2 Replies:

  • I was diagnosed with Miller Fisher while serving in the Middle East about a month ago. It all started on the flight from Australiawith difficulty swallowing and speech difficulty. I then developed tingling in my hands and feet. THis tingle progressed until it covered both arms and legs. I then experienced double vision loss of co ordination and was left with a feeling best described as being "Drunk". This progressed over the next few daysuntil I was flown to Germany and placed in ICU. Luckily for me this is as far as my condition went and with in 5 days of my return to Australia I had made a full and complete recovery.
    Anonymous 42789 Replies
    • October 15, 2006
    • 05:30 AM
    • 0
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  • I know it's been awhile since you've had this, but my husband has had for the second time in 11 months. Did you ever get it again?
    Anonymous 1 Replies Flag this Response
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