I was diagnosed in 1991 with having seizures in the temporal lobe. As I have gotten older my seizures have spread. I was put on neurontin when my husband was active duty. When we got back from germany and tricare ran out and I did not have my neurontin I had a very bizarre symtom, my nerves were on fire and in excruciating pain. I chocked it up to the neurontin but every pharmacist, neurologist, and other patients I have talked to I have never ran across anyone who ever experienced that. Then last year I began to experience numbness in my extremities, loss of memory, two weeks ago I had 5 grand mal seizures. I had a CT scan done and an MRI and MRA.
The CT and MRI showed a leision in the basil ganglia area, and I have 7 small white matter hyperintense T2 Foci. The Impression said Nonspecific white matter hyperintense T2 Foci. Differential includes migraine disorders, hypertension or demyelinating disease. I do not have migraines, and my blood pressure runs 96/66.
At First I thought the nerves burning and the pain was a side effect and now the other symtoms adding together it doesn't look like it.
I am not scared, I love living, I am worried about losing my licenses and my job, because I don't want to lose the ability to be able to ride my motorcycle but, I know that as soon as my neurologist is pointed in the right direction it will help me to stay healthy and enjoy doing what I like to do for now!
Thanks for any help you can give!