Many people describe hands & feet as where the symptoms are worst.
My symptoms started upper back, then front of thighs, then from
knees to neck and then my whole body..
pins 'n needles Superficial head to toe, all over
Prickly, Knees to neck, if contact/pressure.
vibrating sensation top of thighs to bottom of feet, mild
itchy in random areas
3-5pm symptoms increase.
I'm symptom free in the morning. !Other, possibly unrelated issues:
"front of brain/eyball feeling icky in the afternoon/evening sometimes;
lyme disease 1997-2003 (extensive sensory and motor nerve damage, cns involvement); since lyme, excessive daytime sleepiness/narcolepsy, vivid nightmares, waking screaming repeatedly as soon as I fall asleep, difficulty at times speaking what I mean to say, word recall problems, -all treated successfully with alertness medication-ProVigil.;
dizziness for half hour only with head movement after laying face down for physical therapy, with head in little hole in table;:mad: I was seeing a neurologist for the sleep problem, to get my alertness medication approved for the insurance and he diagnosed me with another sleep disorder, restless limb syndrome. Problem is, the characteristics of RLS are DEEP sensations, urges to move, pulling or creeping...and I have NONE of those. I dumped him when I figured out he wasn't listening to a word I said.
:confused:I went back to my primary care doctor who saw me for lyme, and he did extensive bloodwork with no results.
:D I am on LYRICA, which works , it eradicates all symptoms, but leaves me feeling like I just smoked some really good marijuana. Stupid, happy, don't care, almost drunk coordination, and eat untill I pass out (gained over 30 pounds from sleep eating)
:) I have a consult with a neurologist through the UCLA physician referral service on Novermber 30, two weeks. I can't wait. I am getting a detailed history together written up so I can make most efficient use of his time, not forget anything and so I know everything I say is going to be in my permanent record.
It's not diabetic neuropathy, not post herpetic/shingles neuropathy. 10 years ago they ruled out MS. Thought I'd share my problems with you and maybe you have a similar problem or know someone with one, or just want to comment.