Discussions By Condition: Nerve conditions

frustrated and scared

Posted In: Nerve conditions 3 Replies
  • Posted By: Anonymous
  • August 10, 2006
  • 02:07 AM

been diagnosed with arteriovenous malformation and poss vasculitis or ms.Have an mri monday.In extreme pain all the time.also i have erythema nodosum and possible ms .Does anyone know anything about these diseases.Also they say i may have churg-strauss.I m scared confused and suffering.requested my medical records,this is the only way i would have found out any of this.I also have a high esr level(inflamation) always shows high on blood tests.any help anyone could offer would be greatly appreciated.Starting to feel depressed scared and alone!!!!!!have enough prescriptions to fill a basket and get new ones every time i get another abnormal test result.ya,i m wining a bit but i m so tired.I m starting to get on my own nerves!!!!!!!.any advice olease message me at katherine_rose27@hotmail.com

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  • Hi, don't know if I can be of much help because I know little about your conditions - mine are auto immune/thyroid but it sounds to me like you really need to find out what's going on, could you make a double booking with your doctor so you've got plenty of time to ask questions about all your concerns and take a pen/pad so if it's complex stuff you can write it down, and if you're not sure about stuff - ask I learnt that the hard way. Also a support group could help or set up your own support group on line/notices in doctors/shops etc - big on that here in the U.K. The internet is great for finding out stuff as is the library or Amazon.com for specialist books. Arming yourself with knowledge about your condition is your first step knowledge is power, the second is getting support and I guess the third is having to deal with it like millions of us with lousy health - oh and think positive your mental health affects your physical. Hope this is of some help I wish you lots of luck, chin up, Joy.:)
    Anonymous 42789 Replies
    • September 13, 2006
    • 10:06 PM
    • 0
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  • Don't worry... ****s loves you!
    Anonymous 42789 Replies
    • October 5, 2006
    • 11:58 PM
    • 0
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  • Hi there,Im a 26 year old from Scotland. When I was twenty I was hospitalised with Erythema Nodosum. I had a severe throat infection and because I never took my antibiotics the infection spread all through my body. I was in hospital for 2 weeks. I 'll never forget my experiance as I has had an althragic reaction with it i.e i couldn't bend any joint in my bodywithout suffering unbearable pain. I can only imagine what pain you are suffering. It took me over 3 months to get over it. The doctor says I was over doing it and I think he was right!! Hope your feeling much better and that everything else goes alright for youLove The Wee Lass fae Scotlandbeen diagnosed with arteriovenous malformation and poss vasculitis or ms.Have an mri monday.In extreme pain all the time.also i have erythema nodosum and possible ms .Does anyone know anything about these diseases.Also they say i may have churg-strauss.I m scared confused and suffering.requested my medical records,this is the only way i would have found out any of this.I also have a high esr level(inflamation) always shows high on blood tests.any help anyone could offer would be greatly appreciated.Starting to feel depressed scared and alone!!!!!!have enough prescriptions to fill a basket and get new ones every time i get another abnormal test result.ya,i m wining a bit but i m so tired.I m starting to get on my own nerves!!!!!!!.any advice olease message me at katherine_rose27@hotmail.com
    Anonymous 42789 Replies Flag this Response
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