Discussions By Condition: Nerve conditions

Frequent Syncope for the last 14 years

Posted In: Nerve conditions 3 Replies
  • Posted By: SyncopalGal
  • November 10, 2007
  • 02:16 AM

I have been having the same syncopal and near-syncopal episodes for 14 years. I start out by getting dizzy and lightheaded, my muscles (whichever are holding up my weight) spasm, and sometimes I lose consciousness completely and fall. These episodes range from one or two a week to 5 or 6 per day and seem to have no pattern.

At the age of 14 I had a full cardiac workup and nothing was found. I was also tested for Epilepsy and was negative. I went through highschool and college just dealing with the episodes because the doctors had no idea what was going on.

Eventually I joined the military and even in their full exam of me, they found nothing wrong.

Recently I gave birth to my son and realized the danger of possibly having an episode with him in my arms. I went back to the doctors and this time they did an MRI and found two soft tissue masses in my brain. I was referred to an ENT who confirmed it with a CT scan and sent me 5 hours away to a surgeon to discuss removal. We were certain we'd hit the nail on the head.

I arrived at the surgeon only to hear him say the masses were not causing my symptoms and I have an electrical problem in my brain.

In addition to the syncope, I have frequent headaches which may or may not be a symptom of a larger condition.

So here I am, 14 years after the first episode and still no answers! Does this ring a bell to anyone? I am frustrated and tired of being dizzy and losing consciousness!!

Please help!!

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3 Replies:

  • I'm 17 and I've been having the same kind of feelings for the past 6 years, like I feel weakness in my knees and it gets to the point where my vision fades out and I can't hear and then I faint. I've only fainted twice so far but I've been having the feeling like I'm about to faint several times a week and the doctors don't think there's anything wrong with me :(
    brandonxan 2 Replies
    • November 12, 2007
    • 11:30 PM
    • 0
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  • Does this happen to you mainly while you're changing positions, like going from sitting to standing? If so, you could check into Orthostatic Hypotension. My doc tried that on me and told me the blood pressure drop was not enough to be diagnostic. The problem is, he waited too long before taking my blood pressure after I stood up, if he had taken it right away he would have seen that that's probably what I have! Anyway, we'll figure this out, I know what you're feeling!
    SyncopalGal 10 Replies
    • November 13, 2007
    • 01:13 AM
    • 0
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  • As much as I would like to say it only happens when I stand up because that would make it so much easier to deal with, no. I feel like that randomly like when I'm standing up for a while, I just don't understand what the problem is and it really is frusterating.
    brandonxan 2 Replies
    • November 13, 2007
    • 07:25 PM
    • 0
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