I have been having the same syncopal and near-syncopal episodes for 14 years. I start out by getting dizzy and lightheaded, my muscles (whichever are holding up my weight) spasm, and sometimes I lose consciousness completely and fall. These episodes range from one or two a week to 5 or 6 per day and seem to have no pattern.
At the age of 14 I had a full cardiac workup and nothing was found. I was also tested for Epilepsy and was negative. I went through highschool and college just dealing with the episodes because the doctors had no idea what was going on.
Eventually I joined the military and even in their full exam of me, they found nothing wrong.
Recently I gave birth to my son and realized the danger of possibly having an episode with him in my arms. I went back to the doctors and this time they did an MRI and found two soft tissue masses in my brain. I was referred to an ENT who confirmed it with a CT scan and sent me 5 hours away to a surgeon to discuss removal. We were certain we'd hit the nail on the head.
I arrived at the surgeon only to hear him say the masses were not causing my symptoms and I have an electrical problem in my brain.
In addition to the syncope, I have frequent headaches which may or may not be a symptom of a larger condition.
So here I am, 14 years after the first episode and still no answers! Does this ring a bell to anyone? I am frustrated and tired of being dizzy and losing consciousness!!