I have been suffering from facial paresthesia for almost 20 years. It feels as though a heavy, intensely cold, liquid is hitting the crown of my head and pouring down my face. These sensations are present 24/7.
Although they are not physically painful in the accepted sense of the word, since they are omnipresent and simply never stop even for a moment, the stress is intolerable.
My coping strategies are acceptance and distraction. These work to a greater or lesser degree - unless I am otherwise unwell. Then even the common cold can turn me into a quivering wreck.
One of the many Neurologists I have seen prescribed 2 Amitrityline tablets to be taken 2 hours before bedtime. It is no exaggeration to say that he saved my life. The sedative side effect of Amitriptyline makes it possible for me to get to sleep. Without it I was virtually climbing the walls all through the night.
Over the years I have tried just about every medicine, treatment, therapy, regime, diet, lifestyle, spiritual pathway, 'ology and 'ism from the conventional, through complimentary and alternate, to the down right ridiculous. Nothing has ever made even the slightest difference.
So it looks like the sensations are with me for life. Unless, of course, someone else knows differently.
If you are that someone, I am just waiting for your post. Carol x
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