Discussions By Condition: Nerve conditions

essential tremor

Posted In: Nerve conditions 28 Replies
  • Posted By: Anonymous
  • September 12, 2006
  • 10:24 AM

Is it normal to experience pain with essential tremor. My husband had been told he had this. Several years ago he damaged his back and has what the doctor said was minor damage to a lower disc, which is causing sciatica. He has been on maximum daily dose of solpadol for this for around 8 years. Over the last couple of years he has experienced shaky hands, dancing fingers and muscle twitching in various parts of his body. Last week his shoulder started twitching badly and now his arm is in a lot of pain.
I am worried there may be something else wrong. He also suffers from asthma, irritable bowel syndrome and is often very tired, clumsy and forgetful.(we keep finding things in unusual places) He has also had a fairly traumatic life and he is not yet 40. Are these things all down to stress, coincidence that he has all these or could there be more to it. Any advice would be appreciated.

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  • You've just described alot of the symptoms that my child has. I am not a doctor and my advice is to study some of the things I 'm gonna throw your way as they are all things that I am studying as well. First, I noticed the body twitching... video taped my son and was told he had dystonia in his hand... DYSTONIA can be painful and dystonia can cause tremors... next while on meds I noticed his fingers dancing and moving on their own... I was told Tic - I disagree... took him off meds and haven't noticed the dancing on their own... in regards to your husbands meds for sciatica I'd study TARDIVE DYSKINESIA or TARDIVE DYSTONIA look up the meds. I have my own theory about the tired, not remembering, altered level of awareness... study ANOXIA/HYPOXIA on a cellular level I'm thinking- Make sure hes getting enough oxygen! Also PANDAS(Pediatric Autoimmune Neurophyciatric Disorders Associated with Streptococcal Infections) Grownups can get it too, get him Strep tested ASAP. And definately see a Neurologist. Good luck let us know how it goes!:)
    vigilantmom3 5 Replies
    • September 25, 2006
    • 11:00 PM
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  • I have the tremors and sciatica along with a long list of other things. Does he have other medical condistions that you think are not related? I am being tested for cushings and acromegaly
    tam4givin 19 Replies
    • December 7, 2006
    • 08:41 AM
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  • I have tardive dyskinesia from Zoloft. I has been going on for a year and a half and now involves severe hand shaking and dystonia. I know a lot about this disorder. In order for the movements to be labeled tardive dyskinesia they must be caused by a psychogenic drug, specifically neuroleptics and and antidepressants and the symptoms must start six months or later after starting the medication otherwise it is simply dystonia. I cannot find solpadol in my drug guide so I assume it is either a misspelling, a rare drug or is a brand name of a drug that is not in my book (generic names are best to go by). The movements sound like a basal ganglia disorder and early-onset Parkinson's may need to be investigated. For these types of movement disorders, especially the ones where the muscles tighten and hold painfully, I have found Benadryl (generic name is diphenhydramine) to be the most effective medication, but it can make you quite drowsy. The "tired, clumsy and forgetful" along with the tremor, twitching and pain speaks thyroid disorder to me. If hyperthroidic he would likely have heat intolerance, anxiety, hyperness, muscle and joint pain, hair falling out, fatigue, a high blood pressure and pulse, and weight loss. If hypothyroidic then fatigue, weight gain, shortness of breath, muscle and joint pain, cold intolerance and low blood pressure and pulse. The best test is a full thyroid panel with free values. Many doctors will only give the TSH, but this does not give the full picture and you may need to seek a naturopath to get the full panel. The hypoxia later mentioned would be due to anemia and could also be tested as anemia can cause fatigue. It can also cause cold intolerance and malaise. More information would help. Hope this helps.
    Anonymous 42789 Replies
    • January 1, 2007
    • 08:11 PM
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  • I was diagnosed with hypothyroidism many years ago. My doctor had me take my temperature every morning before getting out of bed. It is important to take it while still lying down and before you sit up. Do this every morning and if you have have consistant low body temperature you may have hypothyroidism. When I was at the emergency room recently for congestion and difficulty breathing my temperature was 96.4 which is not unusual for me. If you have hypothyroidism taking medicine for the rest of your life should eliminate your symptoms. Regards, Lil
    Diamond Lil 12 Replies
    • January 2, 2007
    • 07:52 PM
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  • My first thought on reading your post was "I wonder if his medications is causing his symptoms?" . Ive just finished reading a book on the negative affects of SSRI (selective serotonin reintake inhibitor) drugs, the antidepressent drugs of the prozac, zoloft, pazil, etc family and his symptoms there sound very much like what Ive been reading about. One doesnt have to be on them long to have side affects such as what you described happen eg tremors, mind fog etc, but the longer one is on them the more likely there will be problems. These problems once caused, the damage already done can be permanent and may persist. I dont know if he's on any of these SSRI drugs or not as you didnt say but if he is.. I'd be seriously considering finding a doctor to get him off of those meds.
    taniaaust1 2267 Replies
    • January 3, 2007
    • 02:07 AM
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  • Is it normal to experience pain with essential tremor. My husband had been told he had this. Several years ago he damaged his back and has what the doctor said was minor damage to a lower disc, which is causing sciatica. He has been on maximum daily dose of solpadol for this for around 8 years. Over the last couple of years he has experienced shaky hands, dancing fingers and muscle twitching in various parts of his body. Last week his shoulder started twitching badly and now his arm is in a lot of pain. I am worried there may be something else wrong. He also suffers from asthma, irritable bowel syndrome and is often very tired, clumsy and forgetful.(we keep finding things in unusual places) He has also had a fairly traumatic life and he is not yet 40. Are these things all down to stress, coincidence that he has all these or could there be more to it. Any advice would be appreciated.I, too, was diagnosed with essential tremor almost 10 years ago. I sometimes suffer from neuralgia, from which I also did as a child & sciatica. The tremors are dominant on my right side & I have the head tremors of 'no no', which can be quite violent at times. This has caused some degeneration of the cervical spine. I get muscle twitches & pain in my arms & legs, some sharp, needle-like pains in my feet & hands, plus numbness & tingling. There are some weeks where I cannot sleep, no matter how tired I am. The disorder is caused by emotion, movement & fatigue & stress of course is a factor. I was told to keep a fine balance in my life or take some alcohol :) These as your husband will know are laughable. Cold, food additives, processed foods can make it worse. I have managed to control it better eating organic food, taking homeopathic & herbal medicines, through aromatherapy massage & meditation. Frustration & depression are both common with this illness for obvious reasons. The twitches, dizziness & some other symptoms are due to something called Benign Fasciculation Syndrome, which apparently is common in people with ET, though I've never been told any of this, I just worked it all out for myself through the illness. I was in my 2nd year at uni when it kicked off & without the natural medicine would never have been able to return to uni & finish my degree. I am now 41. I don't take any hospital drugs, since they can't give me any & was told several years ago that they couldn't help me, that I'd have to live with it. I also suffer with severe neck pain. Sometimes you feel like you are being a hypochondriac with all these symptoms, but the trouble is, except for at the hospital in Essex, no one seems that familiar with this illness, so it is difficult to get any clear information on it & of course, each case is different to the next.
    Tracey 7 Replies
    • January 16, 2007
    • 10:54 PM
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  • Sorry Stevie, I'm new to this, so if it looks like I've nicked your post it wasn't intentional. The tremors don't always make for good keyboard & mouse skills! :)
    Tracey 7 Replies
    • January 16, 2007
    • 10:56 PM
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  • Drugs such as these can cause tremors & associated symptoms in many people, but Essential Tremor is not caused by taking drugs of this kind, since it is generally genetic in origin & often starts in childhood. The doctor told my Mother I was highly strung! I always had a slight tremor in my hands, had a neck that cricked & suffered from bouts of a pain in the right side of my face - neuralgia - when I was a child, despite the fact that I did not suffer from the usual childhood illnesses or any at all really. Conventional medicine does not tend to look at people's past medical history, which is an important factor in determining illnesses such as these. I was made to feel as if I was a junkie or something before I was first diagnosed with the illness & hardly if ever have been given any proper information on the disorder. Initially, I was told it would not get any worse, but have since been told it definitely will, but gradually & it wasn't done with the best bedside manner either. As people suffering from such an awful disorder, we need some kind of forum or website of our own, with people who know more about it, because information is distinctly lacking, unless you are fortunate enough to live in Romford.
    Tracey 7 Replies
    • January 16, 2007
    • 11:06 PM
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  • I was diagnosed with ET 6 weeks ago. It started with my hands shaking which soon became tremors then these tremors went into my arms and neck and head. My leg also started kicking. I am 46 and female. My MRI and eeg came back normal. The Neurologist put me on Primidone and Propanilol, glad to say my tremors are almost nonexhisting. A couple of months before the onset of my tremors I started experiencing and extreme fatigue, which I still suffer with, I am sure the meds add to it. After reading this thread I am concerned that being on Paxil for 10 years has caused damage. I talked to the Neuoro about this and he didn't think so. Where can I find more info about all this? With ET are you all experiencing the fatigue?
    Anonymous 42789 Replies
    • January 18, 2007
    • 11:04 PM
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  • I suffer fatigue a lot of the time, I also can't sleep for a week sometimes even if I am really tired. I was initially prescribed with the 2 drugs you have mentioned, but despite trying others none of them worked for me or made it worse, so I was told there was nothing more they could do for me. I've found that taking a mega stress vitamin B complex helps me a lot & have recently started taking some tablets that are a mix of Avena Sativa ( wild oats), Lemon Balm (melissa) & Passiflora, which calms me, helps alleviate depression & mood swings which appear to come with this illness & try to avoid processed food where possible. The vitamin tablets help give me extra energy as does organic fruit, veg & meat. I think this illness is similar to the symptoms of many others, such as the obvious Parkinson's, plus MS, ME, Epilepsy, etc.. Probably why it is so hard to diagnose. Good luck. If you want any further advice I can tell you more of what has worked for me in not making ET really debilitating over the last 10 years.
    Tracey 7 Replies
    • January 18, 2007
    • 11:28 PM
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  • Thank you, I appreciate your response.
    Anonymous 42789 Replies
    • January 20, 2007
    • 02:22 AM
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  • You are more than welcome. There is little known or available for us with this condition & if we can help each other out that's a bonus. It's also quite a comfort to find other sufferers willing to talk about their symptoms. I have an aunt with the same thing, though 30 years or so older than me & she has always refused to talk to me about her condition, so I've struggled through without any help from my family, except for them sending me to a private doctor when I first became ill.Do you suffer with neck problems or your eyes at all? Do you wear glasses?
    Tracey 7 Replies
    • January 20, 2007
    • 03:19 AM
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  • I personally do not know anybody with Essential Tremor. It's a strange thing to find out that you have something you've never heard of.The last few years my eyesight both near and far have gone down hill, but that I sure is due to my age (46). My vision isn't that bad now.I've always dealt with neck and shoulder aches. It's been worse with since the tremors began. Do you have problems with vision and/or your neck? I assume the constant "moving" could cause some problems in the neck.
    Anonymous 42789 Replies
    • January 22, 2007
    • 05:36 AM
    • 0
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  • Yes I have trouble with both. I didn't really know anyone except my aunt with the condition & she won't talk to me about it, so I struggled on my own for 10 years. There's a woman in the sandwich shop who has it & we talk sometimes. She finds it better working, whereas I can't.My optician told me only last week, that I have something called ocular tortocollis - I knew I had tortocollis, which is due to your neck twisting into strange positions, but the ocular thing is caused by a weakness in the muscles of my left eye. My opthamologist told me last year that I hold my head on one side, I'd never noticed, although friends told me this was true, though they didn't like to mention it :) I've had a turn in my left eye since I was about 6, but only worn glasses for reading until recently. I have prisms in my glasses, since I've binocular vision & now - apparently more to do with my age, I'm 41 - my eyes have worsened a little. I thought about trying to correct the head to one side thing, but the optician said I shouldn't since it would be harmful to do so & it's natural for me to be like that.The pain does get bad at times, have tried all their drugs, but they don't work for me, so just take the natural stuff, which works pretty well & go for aromatherapy massage too sometimes.Tremors also get worse when I have pain or feel ill elsewhere in my body, suppose it's due to stress of any description. Must confess that it was my first fear, them not knowing much about this condition.
    Tracey 7 Replies
    • January 22, 2007
    • 00:34 PM
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  • I found out several years ago from a letter the consultant sent someone, not that they told me!!! that I have some degenration of the cervical spine. Yes, I think it is down to the constant movement. It frightened me to death the first time my head started shaking violently from side to side, more so that I had no control over it & it was in a public place.I don't do anything by halves :) I think you lose a lot of energy with this illness, which explains the fatigue & perhaps how hungry I get! It's all wasted energy really. I get muscle spasms too, dizziness & other symptoms, which are down to BFS - Benign Fasciculation Syndrome. I discovered that lots of ET sufferers have it, though it's another thing they never told me to expect.
    Tracey 7 Replies
    • January 22, 2007
    • 00:41 PM
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  • Fun fun isn't it! I'm sorry you are experiencing additional problems due to the tremors. The tremors alone are enough. This tremor thing is so new to me that it hasn't caused any other such conditions for me. I only had the tremors for a few weeks before the meds got them under control which I am thankful for. My main complaint now is that I am so tired that I have no drive to do the things I need to be doing. It's making it hard to "carry on" if you know what I mean. I see the Neurologist tomorrow. I need to think of any questions I have for him. He really hasn't given me much information about "Essential Tremors." What to expect.......But I've done my own research and realize that it is something that doesn't go away. One thing I've noticed is that a lot of people seem to not do well on the meds, either they have side effects or the meds don't help the tremors. Have you noticed the same thing? I've been going on a site called "Wemove.org." Have you checked it out? It seems to have a lot more "discussions" going on then this.
    Anonymous 42789 Replies
    • January 23, 2007
    • 08:14 PM
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  • I am 24 years old and I have been seeing 2 different doctors for ET. They have tried every type of treatment with me except for the surgery. I have had the tremors for several years but I finally went to the doctor when I had started a new job and everyone was asking me why I was shaking all the time. None of the treatments have been successful. I'm getting frustrated because the extent of the tremors are progressing rapidly. I'm afraid to see how bad it will be in the next five years and so on. In my teen years I was on several antidepressants. One of them being Paxil. I am looking for advice as how to cope with this.
    Anonymous 42789 Replies Flag this Response
  • I just stumbled onto this thread, looking for info re: Essential Tremor. DD, 28 yo, observed yesterday her hands trembling. Seems to be getting worse over past several years. Not taking meds listed, but had chronic degenerative lung disease (cystic fibrosis), complicated by scoliosis, liver disease, insulin dependant diabetes (liver disease and diabetes directly related to cf). It interested me that ME was mentioned. I have chronic lyme disease. It causes damage to central nervouse system, mimics over 300 other diseases, and goes undiagnosed more often than not. Wondering if anyone has ever been tested for it? Takes some care in finding a dr. that'll do the right tests for it. It's not a disease that's much recognized. Just some thoughts...Diane in MI
    Anonymous 42789 Replies Flag this Response
  • I am a 22 year old university student and have only discovered this website today so it is my first time on the forum. Reading all your posts had made wonder if I have Essential Tremor. I have always had tremor in my hands since I was a child, but I did not notice it at first - other people did. I put it to me being cold as sometimes I do hade cold hands and feet even when in warm places. A few years ago before I started university, i went to my GP to ask about the tremor in my hands as it was bothering me - as a lot of people seemed to notice it, and I didn’t have an answer for their questions. But he put it to me being a student being stressed about my work and nervous about my exams. I can't even pick up a newspaper or a cup without my hands shaking slightly, and sometimes I do have spasms in my leg. After I put down a heavy bag of shopping, my hands and arms would tremor a lot. Do you think this might be essential tremor? I don't have any pain with this tremor. One thing I have noticed is that I’ve got the habit of sleeping on my side- on my arm - so by morning, my arm feels dead, heavy and floppy and I have to wait a while for it to become normal again. Could this have contributed to the tremor? What kind of specialist would I have to see to get a diagnosis?
    Debbie123 1 Replies Flag this Response
  • Essential tremor actually means Essential cause of Tremor unknown. So, yes, at this time I would say your's, Debbie123, is essential tremors.I'm NOT a doctor but have had experience with almost all kinds for over half my life, and I am now, 48-years-old. I had a couple of bad neck injuries with herniated disks in my neck in 1994 and again in 1996. Later in Feb. of 1997 I started having extreme head tremors. My doctor sent me to a Neurologist who Specialized in Multiple Sclerosis to find out the cause of the head tremors. The Neurologist was very good and did all blood tests etc. to eliminate possible lead poison, wilsons disease and so on. He also did the painful EMG to see nerve damage, which I did have a lot of dendryte damage in my upper back and neck, etc. Then, he did a Brain MRI in Jan. 1998, which I never saw film or a written report on. (This is something that You pay for and You should get to see, Yourself.) The last time I saw that Neurologist, he told me nothing showed up on the MRI. When I asked what would cause the dendryte nerve damage, he said he didn't know.I had moved and now have different doctors. My doctor here sent me to another Neurologist, who ordered another Brain MRI in 2006. When I went to see him again, I took my old 1998 MRI with me (I had gotten all my old med film and records before move). This neurologist pointed out everything to me on both MRI's. I was shocked to see that there was a spot/lesion on the old MRI that I could see as plane as day when pointed out to me. There showed many more lesions in the 2006 MRI and one ovoid on the right side of my brain, also known as Dawson Fingers, a sign of Only Multiple Sclerosis. Then this Neurologist wanted to do a Spinal MRI, I agreed. It showed no lesions, so he wrote No MS on my Medical Record and told me he doesn't Specialize in MS and so he couldn't say what caused the spots in my brain. I know this doctor knows better. My own research tells me that MS goes in brain first, then later into spinal chord but always progressive. I'm OK with doctor's NOT putting a Label on me. I actually think they're doing me a favor as far as Insurance goes. From what I've found is that even Medicare won't cover MS for it being a pre-existing condition. I also don't want to take all the high-dollar shots in the stomach for it either. There's NO Proof that the meds. really slow down the progression and they do prove to have bad side effects.This ended up being way too long but there really is much to consider.I think what your GP was really telling you was "Don't Worry, Be Happy" especially if you're in NO Pain. I would still ask your GP to see a Neurologist to eliminate possible lead poison(or research it on-line first), there's nothing they can really do for anything else without causing you further harm. I would also ask my mom or who-ever, if I had had any neck injuries as a child. Injury is #5 on the list of causes for MS.P.S. I don't believe in Essential Tremors persay, it IS Neurological but Neurological Damage is caused by Something Else. Doctors really may not know unless they want to and will never know without testing the patient.
    Anonymous 42789 Replies Flag this Response
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