Discussions By Condition: Nerve conditions

dreaded horrible interior feelings

Posted In: Nerve conditions 1 Replies
  • Posted By: callmegrace
  • December 4, 2006
  • 03:33 AM

I'm hoping to find someone out there that has experienced what is happening to me. In the late 80s, I started having these episodes that would last about 30-45 seconds. When they 1st started, I was having them off and on one day a month, and now I just have them very rarely. This horrible, dreaded feeling comes across me and I just shudder. I can feel it coming and I just wait until it passes. I'm fully aware of my surroundings and never lose consciousness. Since it happened only 1 day a month, I thought it was due to going through the change. Then, in 1992, I had a grand mal seizure and have been on Dilatin ever since. My doctor also put me on Phenobarb for the episodes I has having and treating them as small seizures and it helped tremendously. I really don't know if this is a seizure or not. One of my doctors told me if I was not losing consciousness, I was not having a seizure, which is fine with me! I had my thyroid removed in 1970 and my parathyroid gland was damaged, so I have no calcium coming into my system and take supplements. I thought perhaps these "feelings" might have to do with low calcium, but doctor said not that long apart (1970-1992). I know low calcium can cause a seizure, but again, don't know if that is what caused it. I know I'm rambling, trying to get everything in. So, please, if anyone has experienced anything like this, pls let me know. I really would appreciate it. Going to another Neuro in a few days. Thanks, Grace

Reply Flag this Discussion

1 Replies:

  • You NEED a new doctor if your old doctor thinks that "real" seizures make you unconscious. "Awake" seizures are called *simple partial seizures*. Go to the Epilepsy Foundation web site or Mayo Clinic or just google epilepsy and you will see so many people who have what you have. You are not abnormal. The para-thyroid question is good. I would research it and prepare some questions. You may have to see an Endocrinologist for those questions.Glad you are seeing a new Neurologist. Good luck!!!
    Anonymous 42789 Replies
    • December 20, 2006
    • 00:13 AM
    • 0
    Flag this Response
Thanks! A moderator will review your post and it will be live within the next 24 hours.