Discussions By Condition: Nerve conditions

Debilitating symptoms, no diagnosis, please help

Posted In: Nerve conditions 5 Replies
  • Posted By: Anonymous
  • April 1, 2007
  • 01:05 AM

I'm a 20 year old male and for years have been suffering from ongoing symptoms of an unknown cause. I lived with them for a while, thinking maybe I was just a woos or psycosomatic. The last few months it has been getting worse, and is right now completely debilitating, I'm too dizzy and lightheaded to even drive. My endocrinologist believed its possible I could have Autonomic Neuropathy from an unknows cause, which is why I decided to post here. If you can relate, or have heard of, or have any idea about anything, please help.

SYMPTOMS:
Constant Dizziness
Constant Light-headedness
Chronic fatigue
Drowsiness
Lack of concentration
Frequent urination/bowell movements
Forgetfulness
Excessive sleep (10 hrs a night)
Mild-moderate headaches
Low blood pressure when standing from sitting or lying position
Worsening of symptoms with physical exertion

I've had many tests done like a Complete Blood Count, Urinalysis and a few others from an endocronologist. These have ruled out the most probable disorders such as, diabetes, anemia, thyroid disorder, hormone deficiency, and others. I'm currently taking Florinef which is meant to help raise blood pressure and circulation and help with symptoms associated with Autonomic Neuropathy and Orthostatic hypotension, but it isn't working.

If you know of that could help I would really appreciate.

Thanks,

Shane

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5 Replies:

  • I know that a lot of your symptoms that you described are due to the low blood pressure, I get the dizzy spells mostly when I stand up after sitting or lying down. Mine can get bad enough that I black out for a few seconds but then I'm ok. Hvae you ever blacked out to the point of passing out, or had problems with your legs or arms? The doctor acn give you more meds for the symptoms but unless you get the diagnosis right and the right meds you won't get back to the way you wish you where.
    Anonymous 42789 Replies
    • August 30, 2007
    • 06:55 PM
    • 0
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  • Try reading some of the threads under Rare Diseases. I was just skimming through there and it seems like some folks there are posting things that sound like the symptoms you are describing. Hope that helps. Jo
    jojom0405 15 Replies
    • September 27, 2007
    • 02:24 AM
    • 0
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  • My husband has many of these symptoms and was diagnosed with autonomic neuropathy after undergoing a tilt test in hospital on the recommendaion of the endocronologist. He has florinef for his low blood pressure however, he also has uncontrolled blood presure which means in addition to the extremely low blood pressure causing dizziness and fainting, he can then get very high blood pressure hours later which requires high blood pressure meds. I hate to say it but he really struggles with the condition. Would like to hear any other issues you have to see if you share similar effets
    sashak 1 Replies Flag this Response
  • I'm a 20 year old male and for years have been suffering from ongoing symptoms of an unknown cause. I lived with them for a while, thinking maybe I was just a woos or psycosomatic. The last few months it has been getting worse, and is right now completely debilitating, I'm too dizzy and lightheaded to even drive. My endocrinologist believed its possible I could have Autonomic Neuropathy from an unknows cause, which is why I decided to post here. If you can relate, or have heard of, or have any idea about anything, please help. SYMPTOMS:Constant DizzinessConstant Light-headednessChronic fatigueDrowsinessLack of concentrationFrequent urination/bowell movementsForgetfulnessExcessive sleep (10 hrs a night)Mild-moderate headachesLow blood pressure when standing from sitting or lying positionWorsening of symptoms with physical exertion I've had many tests done like a Complete Blood Count, Urinalysis and a few others from an endocronologist. These have ruled out the most probable disorders such as, diabetes, anemia, thyroid disorder, hormone deficiency, and others. I'm currently taking Florinef which is meant to help raise blood pressure and circulation and help with symptoms associated with Autonomic Neuropathy and Orthostatic hypotension, but it isn't working. If you know of that could help I would really appreciate. Thanks, Shane My sister in law had many of the same symptoms and suffered for years. They finally diagnosed her with a hormonal imbalance (yes, men have it too) and depression) She has been taking Cymbalta, and a synthetic hormone to regulate her pituitary function. While it hasn't "cured" her, her Quality of life has vastly improved. Might be worth looking into. I hope you feel better soon
    lost hope 4 Replies
    • November 20, 2009
    • 04:49 PM
    • 0
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  • These are all symptoms of autonomic neuropathy which is an impairment of your autonomic system (that controls the things you do automatically such as blood presure, bladder and bowell movements). This is not something that can be reversed, but with the right type of meds most of the symptoms can be controlled. My husband originally just lost control of his blood pressure but the condition has noe also spread to his bladder. Your endocronologist should be able to send you for the correct tests to determine if this is the condition you have
    Anonymous 42789 Replies
    • November 21, 2009
    • 01:50 PM
    • 0
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