Discussions By Condition: Nerve conditions

Chiara Malformation

Posted In: Nerve conditions 2 Replies
  • Posted By: Anonymous
  • March 26, 2010
  • 04:52 PM

I was dianosed with Chiari Malformation approximately 6 years ago. I was sent for an MRI when I had symptoms replicating MS, which included numbness in my limbs, hands, and face; as well as loss of balance. The symptoms went away for a few years.

The symptoms returned in the Summer of 2009, which include again the numbness to limbs, hands, and face; loss of balance, difficulty with fine motor skills such as hold utensils, or flipping through pages, etc. I was sent for another MRI and it was founded that the condition has progressed and that I now have a cyst in my spine.

In January of 2010 I started getting very bad headaches, pain in my neck, and the top of my back and through my shoulders; I also have slurred speech and lack of concentration. Due to this I have been unable to work. I find that the other symptoms such as numbness and balance get worse with the headaches. They sent me for an additional MRI at the beginning of Febuary and found that there is more swelling and fluid, but they will not do surgery at this time. I seen the Neurologist yesterday to see if there as something he could give me to manage the symptoms and he told me that I have Horton's Syndrome. He did not explain what it was or what it has to do with my other symptoms. What I have researched about this syndrome does not sound like what I have. My headaches are at the back of my skull and are worse when standing up, walking, sneezing, and coughing. I do have a history of smoking. I started smoking when I was 16 quit when I was 19. I started smoking again when I was 24 but quit a few months after. I started smoking again in the Spring of 2009 and still continue to do so. I guess my question is can it be Horton's Syndrome and would it cause my Chiari Symptoms to be worse? I would also like to let you know that the headaches do not start during smoking or after having a cigarette. Often they happen after activities such as vacuuming, or driving for long periods of time; menial small daily activities that are required for me to live!! I have a three year old daughter to raise and I fear for her future as well as my own. I am confused and I am looking for answers. Any information at this time would help.

Thank You.

Reply Flag this Discussion

2 Replies:

  • Are you sure that he did not call it Horner's syndrome? Horner's is a condition caused by a lesion of the 3rd cranial nerve and it causes a lack of sweating on part of the forehead and a constricted pupil on one side and a drooping of the eyelid on that side.
    Anonymous 42789 Replies Flag this Response
  • Who was it, that would not recommend surgery - neurologist or neurosurgeon? If neurologist, then you need the opinion of a neurosurgeon. If it was a neurosurgeon, I would get a second opinion from another neurosurgeon.
    Sapphire2 3 Replies Flag this Response
Thanks! A moderator will review your post and it will be live within the next 24 hours.