Discussions By Condition: Nerve conditions

Can anyone help diagnose me? Weird brain episodes.

Posted In: Nerve conditions 79 Replies
  • Posted By: Hamilton92
  • October 20, 2006
  • 04:40 AM

I have been experiencing very very scary and weird episodes that have to do with my brain for many many years.
They started when I was a teenager about 15 years old and I am 32 now.
I cango episode free for years at a time but I never know when I'm going to have another one.
What I am meaning is my brain suddenly speeds up and everything around me feels like it's going 1000 miles an hour when its really not.
Like I can be walking or doing whatever it is I'm doing, typing, doing dishes etc at a normal everyday pace but to my brain it feels like its going much much faster.
These episodes last anywhere from 5-15 minutes at the most.
I have them sometimes when its very quiet at night and I'm lying in bed trying to go to sleep and then one hits me and like I say, everything speeds up.
I am scared. I don't know if its a seizure or if the next one is going to be the end of me.
I remember them starting as a teenager and I used to ask my mom does it sound like I'm talking fast to you. She would always say no and back then they weren't too severe or I didn't think anything of it and it would pass if a few minutes but as I've gotten older it seems when they come back they are a little worse that it was before. The last one I had was about 9 months ago but before that I was episode free for years and I thought then finally I had "outgrown" them and whatever it was it was gone for good.
Well these last ones I had, I had like 3 within 2 months.
They started back in the day after I had an endoscopy/colonoscopy and was put under versed anesthesia.
I wonder if the anesthesia triggered something in my brain that they came back but maybe not, I don't know.
My family doctor said something about it could possibly be a pinched nerve deep in my inner ear.
I am scared and sick of this and I don't want to die from it. I just want a doctor to see me and understand completely what it is I'm saying and say this is what you have. Any explanation or diagnosis on what this is, thats all I want.
I am scared because if the versed anesthesia that I had caused this what if I have to have a major surgery and go under general anesthesia and doctors don't know about this undiagnosed disease I have?
Does anyone understand me? Please is there anyone else out there, I feel so alone.

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79 Replies:

  • I have been experiencing very very scary and weird episodes that have to do with my brain for many many years.They started when I was a teenager about 15 years old and I am 32 now.I cango episode free for years at a time but I never know when I'm going to have another one.What I am meaning is my brain suddenly speeds up and everything around me feels like it's going 1000 miles an hour when its really not.Like I can be walking or doing whatever it is I'm doing, typing, doing dishes etc at a normal everyday pace but to my brain it feels like its going much much faster.These episodes last anywhere from 5-15 minutes at the most.I have them sometimes when its very quiet at night and I'm lying in bed trying to go to sleep and then one hits me and like I say, everything speeds up.I am scared. I don't know if its a seizure or if the next one is going to be the end of me.I remember them starting as a teenager and I used to ask my mom does it sound like I'm talking fast to you. She would always say no and back then they weren't too severe or I didn't think anything of it and it would pass if a few minutes but as I've gotten older it seems when they come back they are a little worse that it was before. The last one I had was about 9 months ago but before that I was episode free for years and I thought then finally I had "outgrown" them and whatever it was it was gone for good.Well these last ones I had, I had like 3 within 2 months.They started back in the day after I had an endoscopy/colonoscopy and was put under versed anesthesia.I wonder if the anesthesia triggered something in my brain that they came back but maybe not, I don't know.My family doctor said something about it could possibly be a pinched nerve deep in my inner ear.I am scared and sick of this and I don't want to die from it. I just want a doctor to see me and understand completely what it is I'm saying and say this is what you have. Any explanation or diagnosis on what this is, thats all I want.I am scared because if the versed anesthesia that I had caused this what if I have to have a major surgery and go under general anesthesia and doctors don't know about this undiagnosed disease I have?Does anyone understand me? Please is there anyone else out there, I feel so alone.In response to your issue, I felt compelled to write back. I too suffer from these "things". I have had them on and off for about 7 years and they only happen at night right before I am about to go to sleep. Like yours they seem to only last a few minutes yet they seem as if they are much longer. I have often felt as though I am stuck in a dream when they occur and I am screaming for help and for someone/anyone to just grab my hand and shake me to get me to snap out of it. I know this sounds insane and it probably is, but I am glad that I am not the only one who goes through them. I did see a neuroligist and was put through a series of seizure tests and out of 4 tests only one showed "possible" seizure activity. He thought they would likely be classified as night seizures and I could take a pill daily and run the risk of losing my DL because of a "possibility"? NO THANKS>
    Anonymous 42789 Replies
    • October 26, 2006
    • 10:18 PM
    • 0
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  • You might want your Neurologist to have you get an MRI. I, too, have this happening to me and I have had MS (Multiple Sclerosis) for over 20 years. These weird brain things started happening to me about 8 years ago and really scared me at first, but I am now feeling it is the MS. No other explanation as of yet. Please check with you Doc. Sure can't hurt to have the MRI.
    wildcat1338 1 Replies
    • October 27, 2006
    • 02:05 AM
    • 0
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  • You might want your Neurologist to have you get an MRI. I, too, have this happening to me and I have had MS (Multiple Sclerosis) for over 20 years. These weird brain things started happening to me about 8 years ago and really scared me at first, but I am now feeling it is the MS. No other explanation as of yet. Please check with you Doc. Sure can't hurt to have the MRI.you know, thyroid problems mimmick ms.
    limabean1061 9 Replies
    • November 2, 2006
    • 02:50 PM
    • 0
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  • I was going to suggest Thyroid also. Check out the signs for Hyperthyroid and Hypothyroid. These are very easy conditions to treat for the most part. I am Hypothyroid, and feel very muddled most of the time...
    Anonymous 42789 Replies
    • November 2, 2006
    • 06:37 PM
    • 0
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  • What about an EEG? Have they done one of those? I don't know if it would help or not, but the way my neurologist explained that test to me was that it was performed so they could monitor your brain activity. Not sure how exactly they work, but it might be worth asking your doc about. Good luck!
    Anonymous 42789 Replies
    • November 2, 2006
    • 09:08 PM
    • 0
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  • I have been experiencing very very scary and weird episodes that have to do with my brain for many many years.They started when I was a teenager about 15 years old and I am 32 now.I cango episode free for years at a time but I never know when I'm going to have another one.What I am meaning is my brain suddenly speeds up and everything around me feels like it's going 1000 miles an hour when its really not.Like I can be walking or doing whatever it is I'm doing, typing, doing dishes etc at a normal everyday pace but to my brain it feels like its going much much faster.These episodes last anywhere from 5-15 minutes at the most.I have them sometimes when its very quiet at night and I'm lying in bed trying to go to sleep and then one hits me and like I say, everything speeds up.I am scared. I don't know if its a seizure or if the next one is going to be the end of me.I remember them starting as a teenager and I used to ask my mom does it sound like I'm talking fast to you. She would always say no and back then they weren't too severe or I didn't think anything of it and it would pass if a few minutes but as I've gotten older it seems when they come back they are a little worse that it was before. The last one I had was about 9 months ago but before that I was episode free for years and I thought then finally I had "outgrown" them and whatever it was it was gone for good.Well these last ones I had, I had like 3 within 2 months.They started back in the day after I had an endoscopy/colonoscopy and was put under versed anesthesia.I wonder if the anesthesia triggered something in my brain that they came back but maybe not, I don't know.My family doctor said something about it could possibly be a pinched nerve deep in my inner ear.I am scared and sick of this and I don't want to die from it. I just want a doctor to see me and understand completely what it is I'm saying and say this is what you have. Any explanation or diagnosis on what this is, thats all I want.I am scared because if the versed anesthesia that I had caused this what if I have to have a major surgery and go under general anesthesia and doctors don't know about this undiagnosed disease I have?Does anyone understand me? Please is there anyone else out there, I feel so alone.You may be suffering from panic syndrome. Out of the blue your heart races and your brain speeds up you think your crazy or going to die. If you use alcohol or drugs, except marajuana, these could be causing your symptoms. Especially coming down from same. find the book, Hope and help for your nerves. If you find yourself, your cure awaits if you follow the exercises to the T. good luck, I've been there.
    Anonymous 42789 Replies
    • November 3, 2006
    • 09:58 PM
    • 0
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  • my brother has complained of the same thing. EEG was normal. Normal MRI.Thyroid disease runs in our family, but ???? I don't know if that could be it.I have wondered if it was an episode of mania?OrIs it a seizure?He quit going to the doctor for it b/c of no insurance and the doctors don't seem to know which end is up. (ha!)Good luck. please let us know if you find something out.
    Anonymous 42789 Replies
    • December 20, 2006
    • 07:33 PM
    • 0
    Flag this Response
  • I have been experiencing very very scary and weird episodes that have to do with my brain for many many years.They started when I was a teenager about 15 years old and I am 32 now.I cango episode free for years at a time but I never know when I'm going to have another one.What I am meaning is my brain suddenly speeds up and everything around me feels like it's going 1000 miles an hour when its really not.Like I can be walking or doing whatever it is I'm doing, typing, doing dishes etc at a normal everyday pace but to my brain it feels like its going much much faster.These episodes last anywhere from 5-15 minutes at the most.I have them sometimes when its very quiet at night and I'm lying in bed trying to go to sleep and then one hits me and like I say, everything speeds up.I am scared. I don't know if its a seizure or if the next one is going to be the end of me.I remember them starting as a teenager and I used to ask my mom does it sound like I'm talking fast to you. She would always say no and back then they weren't too severe or I didn't think anything of it and it would pass if a few minutes but as I've gotten older it seems when they come back they are a little worse that it was before. The last one I had was about 9 months ago but before that I was episode free for years and I thought then finally I had "outgrown" them and whatever it was it was gone for good.Well these last ones I had, I had like 3 within 2 months.They started back in the day after I had an endoscopy/colonoscopy and was put under versed anesthesia.I wonder if the anesthesia triggered something in my brain that they came back but maybe not, I don't know.My family doctor said something about it could possibly be a pinched nerve deep in my inner ear.I am scared and sick of this and I don't want to die from it. I just want a doctor to see me and understand completely what it is I'm saying and say this is what you have. Any explanation or diagnosis on what this is, thats all I want.I am scared because if the versed anesthesia that I had caused this what if I have to have a major surgery and go under general anesthesia and doctors don't know about this undiagnosed disease I have?Does anyone understand me? Please is there anyone else out there, I feel so alone.Hey my name is Martin, I live in jersey and I also go threw these episodes , but my best way to explain it is I feel like I was drugged or high or something almost like I'm in a dream. I get real paranoid cause I feel like I'm gonna pass out or die. When I go threw this I dont really feel alive anymore. I thought I was going crazy untill I saw that someone else feels the sameway. I even get sick to my stomach. My episodes last alot longer more like a half hour to an hour. It use to happen once a year or so when I was 17 to 21 , but now it happens almost every night I'm 24 now and was just diagnosed with the mega cisterna magna ,but originally it was thought to be an arachnoid cyst when I was 17. The doctor told me in my mri report that it could be one or the other, but more likely to be the mega cisterna magna. How is it that they can diagnose it, but they dont know what it is or what it does. 1/31/07
    Anonymous 42789 Replies
    • January 31, 2007
    • 10:16 PM
    • 0
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  • I recently started getting something similar. It started at night before i went to sleep about a month ago and I felt a numb tingling in the back right of my head and it traveled up to the very top. This is very strange and I have had periods in which i constantly re-realized where I am and just had an altered perception in general. It is tough to sleep because this seems to hit at night the strongest. The thing I can relate to as the first story mentioned here is the feeling of going at a much faster pace, the brain goes crazy. At one point it felt as though I was falling or sinking back every once in a while.
    Anonymous 42789 Replies
    • February 4, 2007
    • 09:43 PM
    • 0
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  • I sort of have the same thing. Twice I've been about to go to sleep, and suddenly felt tingling, and it seemed like I couldn't move. So maybe I was asleep and had it?? I don't know.But every once in a while I get this weir tingling in my brain, I enjoy it. It seems to come at times when I learn something interesting, so I thought it might be because I'm smart??? Haha it sounds stupid. But I always forget to ask the Doctor, since I rarely have them.
    g0lfer41ife 1 Replies
    • February 7, 2007
    • 01:07 AM
    • 0
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  • after a lot of my own research i have diagnosed myself with panic attacks, if you read up on panic attacks and panic disorder it seems as though the symptoms fit some of the things discussed in this thread.
    Anonymous 42789 Replies Flag this Response
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  • I also have these "fits" Haven't had them in a while but now it is happening. Mine last for a period of time where I tell myself to snap out of it, but they go for weeks. Driving is hard because I am spaced out, like a "drug high". I recently quit smoking (about a month ago), I don't drink, perhaps one at X-mas is all, and I certainly don't do drugs because I don't like feeling like this!!.I feel like I can't do anything. My kids are suffering as I am always tired despite sleeping 9.5 hours at night and having an hours nap during the day. What is wrong with me???Sick and tired of feeling sick and tired!
    Anonymous 42789 Replies
    • August 23, 2007
    • 02:07 AM
    • 0
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  • Have any of you researched symtpoms of depersonalization and derealization? Sounds like that might be what's happening and both of these symptoms are tied to anxiety and panic disorders or they can come about on their own. The main symptoms with depersonalization and derealization is a feeling of being far away and detached from your own body, as if you are in a dream or watching yourself in a movie. Not pleasant. I've been going through this for about 10 years now. Not much research out there on this either. Klonopin is supposed to help reduce these symptoms, according to other sufferers. Anyway, just a thought. Good luck and God bless.
    Anonymous 42789 Replies
    • August 24, 2007
    • 03:21 AM
    • 0
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  • I think you should see a nueroligest, It could be a sleep disorder.and maybe have asleep study done . I suffer from narcolepsy,and this one of the most misdiagnosed illnesses. Do some reading up on Narcolepsy, cataplexy and the different sleep disorders, there is symptoms as you have described with narcolepsy,I had a head injury that caused it and it is alot more than just falling asleep.Hope this helps.
    Anonymous 42789 Replies
    • August 24, 2007
    • 08:18 PM
    • 0
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  • Hey there Hamilton92,You are the first person I have found that has described symptoms in exactly the same way I would have. It was like reading my own words. Mine started when I was about 15 or so, and am 35 now. It feels as though every move I make is speeded up. I know in my head that I am moving at a normal pace (hand movements, walking, turning my head) by it's like my brain is registering it as impossibly fast. I cannot predict when they are going to happen, and that is what I have found so frightening. Sometimes I will get them every couple of months, sometimes it will be a year between "episodes". When I was younger, they often happened when I was going to bed... and would last just a few minutes. I had one this morning, and it was the longest I have experienced - about 15 minutes. I went outside for a walk, and I felt like I was on fast forward. I was wondering if strangers would think I was walking strangely, or abnormally quickly, but when I looked at other pedestrians, their movements looked normal in my eyes, whereas my own movements seemed too fast. Measuring my steps against their, I was actually walking slower.It happened to me once about 10 years ago, and I was actually in the presence of some nursing staff. I told them what I felt was happening. They hooked me up to a ekg, measured my heart rate and blood pressure, and all was normal. At the time, I probably couldn't express very well what was happening. Back then, they made me scared... now I just kind of 'go with it', and it is probably my ignorance of what it could be, and because it has happened most of my memorable life, I have lost much of the fear I had when I was younger. Though I do find they last longer now than when I was younger.I am searching for life insurance this week... as I want to ensure I can get a policy before the possibility of a diagnosis that may exclude me from getting any.If you are still on this forum... have you had any definitive diagnosis or professional (reliable) advice?If this sounds familiar to anyone else, I would like to know what your diagnosis was. - Doug
    Anonymous 42789 Replies
    • September 29, 2007
    • 11:14 AM
    • 0
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  • I did have these experiences when I had lyme disease. Even after antibiotic treatment, it was a long time before they diminished and now, when I get sick with a simple cold, they come back. It truly is a scary experience. Just another suggestion.
    Anonymous 42789 Replies
    • October 6, 2007
    • 02:07 PM
    • 0
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  • its odd, im having an episode right now, heres an indepth description of what happened and what im feelingim 17 years old and i have the exact same symptoms as described above, im worried that this may be something serious, if i feel i can go to bed tonight without getting seriously ill i will consult my doctor about them the next day. I was watching house (ironic right?) and i fell asleep on the couch, when i woke up i was extremely disoriented as in i couldnt remember things that i should have, and my heart is racing at the moment. I am unsure whether or not i should seek medical attention immediately, but the one thing that is pushing me is that i havnt had one of these in a LONG TIME and they have NEVER been this long. so instead of doing the proactive thing, for the past 50 minutes i have been searching google about my symptoms. please i need help as im dont wanna raise any alarm bells with my parents if they are unneeded. Note again, i am suffering from a cold, but as of right now i dont feel the symptoms as i did before i fell asleep... curious? anyway thanks for your help.
    Anonymous 42789 Replies
    • October 17, 2007
    • 02:48 AM
    • 0
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  • Ive had this exact same condition since I was about 9 or 10 years old. Im now 29. I havent told anyone about it just incase they send me off for tests and find something serious. Ive searched the net countless times and found nothing....until now. Its exactly as described though- all of my movements speed up and the world is moving at a terrifying pace. My head feels like its literally going to explode. Very scary stuff. Its always when Im in bed at night, its never happened anywhere else for me. I have to sit as quiet as possible and as still as I can and just wait for it to end. This usually makes it end quicker than if I walk around or make any movements. Usually after about 5 or 10 minues they go away. I guess if you know it will end then its not so bad. I used to get it every few weeks when I was younger and this decreased to a few a year. When I got to about 17 or 18 they stopped and I just thought I must have grown out of them and that it must have had something to do do with my brain growing..? So I totally forgot about them until a few of years ago when they started up again. Incidentally I must point out that I started smoking cannabis quite heavily at about the same age that these attacks stopped. Not sure if this is all coincidence but when I got to about 26 I made big changes in my life and stopped smoking weed completely. No more than 2 or 3 weeks later they started again. I dont think its coincidence either because I started smoking again and they stopped....About a year ago I stopped smoking cannabis once again and sure enough a few weeks later they raised their ugly face.What really scares me is that my auntie died of MS when I was only a small child. Earlier in this post someone says they suffer the same condition and that they have had MS for 20 years. This really scares the living ***l out of me and I guess its time for me to get an MRI scan. I know that smoking cannabis is known to help MS sufferers and all of what Ive mentioned seems to fit.If anyone from any earlier posts still reads this can they let me know if they have had an MRI and if anything has been found, PLEASE?If anyone wants to email me Im slyfingaz at gmail dot com.
    Anonymous 42789 Replies
    • October 18, 2007
    • 07:08 PM
    • 0
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  • I too have had these on and off. I am going for an MRI for other problems and have been thinking...maybe my episodes of dizziness and lightheadedness correlate with the episodes. I have never had them at night- only during the day, especially when I am busy doing something. One time I was cleaning my room, one time I was cooking, on time I was DRIVING! I don't feel stressed during these times, so I don't know how it could be a panic attack.I don't take any medications except periodically for allergies and I don't drink or do drugs.One time my mom called and I was talking to her on the phone. I felt like I was talking so fast, I couldn't even understand myself...she didn't hear a difference.I am glad to hear that other people have had the same experience...although some people's experiences, such as sinking into a hole before sleeping, seem completely different. SO, if I find out anything on Tuesday, I will let you all know. Please post to this thread if you hear anything as well.
    Anonymous 42789 Replies
    • November 10, 2007
    • 04:16 PM
    • 0
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  • Cataplexy is a disorder that often gets misdiagnosed. My son was diagnosed with panic attacks, body migraines, or epilepsy for many years until finally he was diagnosed with Cataplexy 7 years ago. What 'threw' the neurologist was that he didn't have the daytime sleepiness with it (Narcolepsy) and there fore many doctors thing you can't have Cataplexy which is supposed to happen only if you have narcolepsy. However, although it is fairly rare, it does happen. It can be a very debilitating problem if a person has it chronically. My son has a chronic case and has numbing, tingling, pain, daytime and night time paralysis, hypnagogic and hypnopompic hallucinations, night terrors, sleep paralysis, sudden daytime paralysis etc to mention a few things. As a result he can't work, drive a car, even ride a bike (too many accidents). For 4 years we have been campaigning for Medical Cannabis (vapourised or in a tea) as this is the only medication that works for him without side effects. Some countries are quite liberal in their laws for medical use, but other countries will not even listen. There are some doctors and Members of Parliament who are listening, but they haven't been able to 'get through' to the present Government on this subject either at the moment. Funnily enough, the US is suggesting GHB (Xyrem) for Cataplexy, (under a Doctor's supervision, of course), but in Australia (and other countries) they won't even consider a Doctor/Patient relationship concerning Cannabis use.
    Anonymous 42789 Replies
    • November 14, 2007
    • 02:55 AM
    • 0
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