Discussions By Condition: Nerve conditions

Burning and what feels like brusing beneath skin

Posted In: Nerve conditions 9 Replies
  • Posted By: Anonymous
  • September 5, 2006
  • 03:41 PM

I am 38 yr. old, moderately active, female. I'm generally healthy and have never had any real health issues, except for the occasional problems with Pap Smears, but nothing major. My family history includes breast cancer on fathers side and Parkinson's.
Now my issue...About 2 years ago I started experiencing an ache/sore pain in my hips and down through my legs. No tingling or numbness, just an aching pain. The pain has gradually gotten worse and for the past 1 1/2 yrs. I've had weakness in my arms and a strange burning sensation through my arms. Both arms are the same degree of pain. Both legs experience the same degree of pain as well. No sharp pain in legs or burning, just chronic aching. From hips, inside and outside of hips and into both outer sides of buttocks to ankles--Pain in hips is worse when I cross my legs. Both arms and legs feel to the touch as if there is bruising beneath the skin. All 4 extremities are very tender to the touch. Arm pain runs the length of the arm from shoulder to wrist. One dr. did tell my I had tennis elbow, but this I have a problem with too, as BOTH arms are equally effected. I have seen 4 different doctors, had MRI's, bloodwork and X-rays of my lower back and hips and everything has been fine. I have seen a orthopedic surgeon, rheumatologist, chiropractor and 2 general physicians. None of which can explain the causes of these issues. Then about 2 months ago, I woke up to a paralyzing pain in my right shoulder area. I was forced to go to the emergency room after seeing my family doctor. The pain was so intense that I had to be dressed and could not do anything that caused any of my head weight to shift. I could no even chew. I was told that I had an "acute muscle spasm". I was given valium and perkiset (however, that is spelled) and by the next day, I was close to normal. I do still experience pain in that same area regularly. Not sure if its related, but thought I would throw it in there.
After all the test, the only term used is Fibromyalgia...I don't buy it. I am not chronically fatigued and the diagnoses just doesn't add up. If anyone has any ideas or has experienced the same issues, I would appreciate any feedback.

Thanks,
Connie

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9 Replies:

  • Dear Connie;See another rheumatologist, if you have the same as you say, I also don't believe its Fibromyalgia, have a whole body scan and then ask for some backshots, also some Lyrica might help. Keep at it, only you know your body.I finally found a doctor that believes me and believes its an autoimmune disorder most likely in the "family" of Lupus. At least she believes my pain.So keep looking for your cure. Or try what I'm doing right now(see above)Good luck. God bless.
    Anonymous 42789 Replies
    • October 17, 2006
    • 10:43 PM
    • 0
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  • I agree with the last poster that you should keep at it with your doctors. If they aren't taking enough action, go to a different doctor and/or keep working on them. Ask for referals to other doctors. I was suffering from dizziness, blurred vision, and unexplained crying fits I couldn't control in July and my nurse practitioner told me to improve my diet (which was crazy!), and both she and my MD thought it might be depression so I was prescribed pills for depression. I decided to go to another doctor who prescribed me anti-anxiety pills. Then, I got a referral to an opthamologist who suspected neurological damage and I was diagnosed with multiple sclerosis and finally got a neurology referral, which I'd actually asked for on my first visit about all this! I always thought those first doctors were wrong. So just keep at it.I don't know whether your burning sensation is in the skin or under it. I have that burning sensation in my feet and legs, called parasthesis. At first it felt like someone was plucking the hairs from my skin with tweezers. Before it even started I was getting strange pains in my legs for a week and a half and when I touched certain places, it felt bruised but there were no bruise marks. My sister has fibrimyalgia and has similar symptoms to me. I was just diagnosed though, and my doctor says the MS has been very aggressive in me. I just spent 2.5 weeks in the hospital getting plasma exchange treatments (plasmapheresis) and high dose steroids because all of a sudden I got tingling that progressed over a week to the point where I couldn't walk without holding onto a wall or furniture. I had tons of lesions on my MRI though. Even though you didn't have anything show up on yours, maybe seeing a neurologist might help.
    Anonymous 42789 Replies
    • October 21, 2006
    • 04:08 AM
    • 0
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  • Have you discovered yet what your condition might be? Sounds exactly like what I have been going through for almost 19 years. Probably coincidentally, but it started after I had my first ever flu shot. I have treated with a neurologist for all this time thinking it was MS, however, I only have one lesion-like spot on the brain which usually does not constitue MS. I think he was expecting more to develop. Now he tells me that I probably don't have MS. I get the flashing lights (not too often) and migraines. I have the bruised like pain in many areas. I have a lot of dizziness. Almost like I don't know where I am in relation to space. Especially bad when I walk down stairs. Feels like I have had a lot of drinks when I have not. Even driving sometimes gives me the feeling of sliding on ice. My husband finds it hard to understand that sometimes when he rubs me somewhere on my body affectionately that I shreak in pain. I think he feels I am being dramatic where in reality it is extremely painful and continues to be for several minutes after. I have had that burning sensation that you mentioned, although it might not be the same. I feel like there are a million little cells moving around rapidly in my legs (especially thighs) and creating a hot friction-like feeling. I don't have all of the sore ares that fibro seems to have. I some and others not like fibro.I get a lot of ankle swelling as well. I have had thyroid, cholesterol, bp all checked and normal. I have had a ton of blood tests through an endo doctor. All negative. Once I did have an elevated SED rate which I guess indicates autoammuine (sp?) sx although I also heard that you can have this if you are sick. I was not at the time of the test.Please let me know your progress and it comes along as I am still trying to find out about my own. If I come up with anything that my interest you I will post as well.Take care and good luck.
    Anonymous 42789 Replies
    • October 26, 2006
    • 05:13 PM
    • 0
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  • Hi Connie, I have some of the same symptoms as you and of those who replied to you before me - even after my first diagnosis, I continue to experience new symptoms and continue to be newly diagnosed.I have aches and pain all over my body - I have headaches, I fall a lot (fell last month and smashed my face into the bath tub and before that I fell and tore the rotator cuff in my left shoulder), my hands and ankles swell, I drop things a lot, xrays once showed infected fluid buildup behind my ear drums and blood test showed a low white blood count of 1200, necessitating a referral to hematology where I went through a painful bone marrow test to determine if I had some type of cancer. I was told that my white blood cells were fighting the onset of some form of a rheumatological disease, maybe rheumatoid arthritis. It took years of jumping from doc to doc before I was finally diagnosed. Iwas told I had tennis elbow, a floating hiatal hernia, migraines, etc, etc!!I finally found a rheumatologist who tested me for Sjrogens Syndrome, an autoimmune disease similar to Lupus. Lucky for me, he was familiar with the disease and ordered blood test to verify his diagnosis. He stated that he took one look at my face and saw the chipmunk symptoms of swollen parotid glands. He also asked me if my eyes felt like there was sand in them - I answered yes and that my doctors could never find anything. He sent my blood to 2 different labs and both showed +SSA, and a lip biopsy showed a decrease of salivary glands. Sjogrens had already begun destroying my lacrimal and salivary glands. I use sterile eye drops, restasis and eye ointment daily and dry mouth lubricants daily). Rheumatology has also found that I have DJD (both feet, hands, knees), osteoporosis (rt hand), DDD, cervical spinal stenosis C1 thru C7 with bone spurs. In Feb.,I was diagnosed with bone spurs in my left heel. I have also been diagnosed with fibromyalgia - which causes wide spread pain, including my headaches, for which I take elavil (an antidepressant which increases the seritonin in the brain). Fibromyalgia affects everything that is attached to your bones (muscles, nerves, tendons), including the brain. Depression, chronic pain syndrome and restless leg syndrome can also be a symptom of fibromyalgia. Trauma is thought to be one cause of this disease. I was in an automobile accident (hit in the rear) and as mention earlier I lose balance and I fall a lot, which is trauma to the body. As if I don't have enough things wrong, I get these stabbing pains, burning and itching which I'm told is neropathy (nerve pain) for which I'm taking neurontin. I've had 2 surgeries to remove nerves from my right foot and I have bilateral carpal tunnel syndrome in both wrist. Go online and join the fibromyalgia support group and you will read about the different symptoms are associated with this disease. I take 30 pills daily for all my conditions.Good luck, Carolyn, van8611@aol.com
    Anonymous 42789 Replies Flag this Response
  • Connie, please do yourself a favor and go get check for MVP...mitral valve prolapse. look up MVP Center online.www.mvprolapse.comI don't have the time to go into what all I have been through, but I have MVP and it can be bad news if not treated....not fatal, you just wish it was sometimes and most of the time you are pretty sure you are going to die. I was sent home from hospital in a wheel chair with MS....guess what....not MS !If you want more info let me know. I am not registered yet, just found this site tonight. I will go by Mexicojoe.good luck and you will be added to my nightly prayer list...if that's ok ? Also, drink water water water everyday....it will help with the pain, burning and your overall condition.
    Anonymous 42789 Replies Flag this Response
  • Likely to be autoimmune urticaria, see an allergist (not that this is an allergy) and hopefully she will prescribe Dapsone. In six weeks the problem will diappear.
    Anonymous 42789 Replies
    • January 21, 2010
    • 02:54 AM
    • 0
    Flag this Response
  • I am 38 yr. old, moderately active, female. I'm generally healthy and have never had any real health issues, except for the occasional problems with Pap Smears, but nothing major. My family history includes breast cancer on fathers side and Parkinson's.Now my issue...About 2 years ago I started experiencing an ache/sore pain in my hips and down through my legs. No tingling or numbness, just an aching pain. The pain has gradually gotten worse and for the past 1 1/2 yrs. I've had weakness in my arms and a strange burning sensation through my arms. Both arms are the same degree of pain. Both legs experience the same degree of pain as well. No sharp pain in legs or burning, just chronic aching. From hips, inside and outside of hips and into both outer sides of buttocks to ankles--Pain in hips is worse when I cross my legs. Both arms and legs feel to the touch as if there is bruising beneath the skin. All 4 extremities are very tender to the touch. Arm pain runs the length of the arm from shoulder to wrist. One dr. did tell my I had tennis elbow, but this I have a problem with too, as BOTH arms are equally effected. I have seen 4 different doctors, had MRI's, bloodwork and X-rays of my lower back and hips and everything has been fine. I have seen a orthopedic surgeon, rheumatologist, chiropractor and 2 general physicians. None of which can explain the causes of these issues. Then about 2 months ago, I woke up to a paralyzing pain in my right shoulder area. I was forced to go to the emergency room after seeing my family doctor. The pain was so intense that I had to be dressed and could not do anything that caused any of my head weight to shift. I could no even chew. I was told that I had an "acute muscle spasm". I was given valium and perkiset (however, that is spelled) and by the next day, I was close to normal. I do still experience pain in that same area regularly. Not sure if its related, but thought I would throw it in there.After all the test, the only term used is Fibromyalgia...I don't buy it. I am not chronically fatigued and the diagnoses just doesn't add up. If anyone has any ideas or has experienced the same issues, I would appreciate any feedback.Thanks,ConnieConnie -- my symptoms sound almost identical to you...same period of time too; just over two years. my onset was slightly different...my onset was acute with my neck locking up and staying that way for two weeks. the initial thought was meningitis but since i was still alive a few days later that was ruled out. lyme was ruled out by blood work and i finally have the attention of the fourth rheumatologist i've seen who believes me and wants to get to the bottom of it. i was written off by about five other doctors before him. my fatigue is crushing. i can barely basic errands for a few hours without needing to sleep twice as long to feel normal again. i'm going on some medication to alleviate the fatigue and managing the aches, bruising and burning sensations as best i can with topical voltaren and 12 ibprofen a day for now. if you want to talk further about this may be we could confer on research. let me know. ~jessica
    Anonymous 42789 Replies Flag this Response
  • Hi. I read all your messages about this pain, like burning pain in the skin :(.
    I've suffered the same thing for year, so I want to ask you if you discovered something of if your symptoms are still the same. I'm working in a page with the best information **s possible. I have read hundreds of pages and forums and summarized the best I could.

    That's the link https://www.facebook.com/Mysterious-Generalized-Skin-Pain-1118319514904850/

    Cheers.
    Anonymous 1 Replies Flag this Response
  • Hi. I read all your messages about this pain, like burning pain in the skin :(.
    I've suffered the same thing for year, so I want to ask you if you discovered something of if your symptoms are still the same. I'm working in a page with the best information **s possible. I have read hundreds of pages and forums and summarized the best I could.

    That's the link https://www.facebook.com/Mysterious-Generalized-Skin-Pain-1118319514904850/

    Cheers.
    Anonymous 1 Replies Flag this Response
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