Discussions By Condition: Nerve conditions

Brain strinking. What does that mean? Help

Posted In: Nerve conditions 2 Replies
  • Posted By: Classic_amber
  • January 5, 2008
  • 02:47 AM

Please I cannot find any help! I have been to the doctors and to the specialists. They say I have a neurological disease, but they do not know which one. So for the last 8 years, I have been worrying what is wrong with me. These are my symptoms:

- I have had 6 CAT Scans - all showing my brain is shrinking more and more each time. What does it mean when your brain is shrinking? I am not an expert, but I don't think this sounds good. Am I right?

- jerking of arms and legs
-numbness in toes up to knee's and in fingers up to elbow's.
-tremors in hands, arms, and legs
-loss of balance (this has gotten much worse over the past 8 years)
-loss of hair
- loss for words. (especially when talking)
- shaking
-loss of feeling in arms and legs - dropping items
- sleeping has increased ( I sleep on average 15 or more hours a day)
- clumsy
-I am hard of hearing, but over the past year - I am hearing what someone is saying - but it is like I cannot make out the words. Like I never heard them before.
-headaches every day
-having trouble pronoucing words
- At the same time when all this happened I was diagnosed with being bipolared. (mental illness), Although the doctor that saw me believes that I am not a typical case - since I never had a history before this of mental history.

Please if you have any suggestions - I would appreciate it. Something I could check out on my own. I just want to end this rollar coaster ride.

Please help.

Amber

Reply Flag this Discussion

2 Replies:

  • Sounds like you may have some form of Ataxia.When they say your brain is shrinking, did they tell you what part or all of it?You might get your Gliadin (gluten) antibodies checked. If it's high you can help the situation with a strict gluten free diet.
    Anonymous 42789 Replies
    • January 17, 2008
    • 05:41 AM
    • 0
    Flag this Response
  • Hi Angeleyes,You might also have Cerebellar Ataxia. Did the radiologist report ever indicate your cerebellum had decreased in size between MRI's?Did they even see the earlier MRI's to compare with?With the possible autoimmune thyroid problem you should ask your doctor to also order a Gliadin (gluten) Antibody test (soon, like this week). If the result is well above zero you have gluten intolerance and may have Celiac Disease. If the Gliadin is high you should go on a rigid gluten free diet for at least a year and keep a journal. If you notice improvements, you need to stay on the diet. I would not go on the diet unless the Gliadin result is well above zero.Lots of people go on the diet 1/2 way and fail. I think you need the incentive of the Gliadin test to keep you on the diet because it may take quite some time to notice improvements. Please note that you can have several diseases at once and if they are all autoimmune some treatments will affect all of them (steroids) so it may appear like you only have one.Best of luck to you, BearP.S. I hope this doesn't show up twice. I posted it before and it didn't show up - maybe being inspected?
    Anonymous 42789 Replies
    • January 18, 2008
    • 02:33 AM
    • 0
    Flag this Response
Thanks! A moderator will review your post and it will be live within the next 24 hours.