Discussions By Condition: Nerve conditions

Anyone with these problems.......

Posted In: Nerve conditions 6 Replies
  • Posted By: Anonymous
  • July 9, 2006
  • 07:32 PM

Hi,
I am at the end of my rope with my neuropathy. So many things are happening and I just can't cope anymore. First it started with just the gait imbalance (like walking on a mattress), now it has progressed to "Silent Seizures", vertigo, memory problems, etc. I was dx'd with Sjogren's Syndrome about 14 yrs. ago, but I'm pretty sure I had had it for many years. Spent years and a lot money only to be told "It's all in your head". Luckily, because of extreme neck and spinal pain, my family doctor sent me to a rheumatologist who took one look and listened for about 10 minutes and knew exactly what it was before even performing any tests. I have been ever so grateful to him. However, the disease has started to attack my nervous system, so along with the joint & muscle pain I am now trying to cope with the vertigo. Tomorrow I start cognitive therapy and who knows what next month will bring. Sjogren's is the disease that keeps on giving, and giving, and giving. :(

Are any of you coping with the vertigo and how do you manage?

Thanks, Pooh

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6 Replies:

  • I hate to say that I am in the same boat as you are..:( If I come to ANY light of hope on this,..I am going to keep you in mind!...it is not a simple dizziness feeling.... My heart goes out to you. Lightweaver
    Anonymous 42789 Replies
    • September 8, 2006
    • 11:10 PM
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  • I had many horrific neurological symptoms. I experimented with many things and found a few that worked as well as the vitamins below.I took 250mgs Vitamin B1 - OR 1000mgs Vitamin C - 3 or 4 times a day. I can choose a different one each dose.After much experimentation, research etc, and after 18 months, my symptoms started to reverse - it took another year to become reasonably well most of the time - now with only a few slight symptoms.Hope this helps someone else to have better health..ainee
    Anonymous 42789 Replies
    • September 15, 2006
    • 06:59 AM
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  • Please click one of the Quick Reply icons in the posts above to activate Quick Reply.
    Anonymous 42789 Replies
    • September 15, 2006
    • 07:36 AM
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  • I have had vertigo problems that really gave me a scare. It especially happened when laying down and getting back up. Even just laying down I felt like I was spinning at times. My doctor said it was a viral infection that couldn't be treated and had to go away on its on. It has no other symptoms except tiredness and white patchiness on the toung which he quickly diagnosed because I had all those sypmptoms going on. It also takes awhile for it to go away and can relapse. I had it for about 2 months, it went away and came back for a shorter period and now its gone.;)
    Esti94590 6 Replies
    • September 26, 2006
    • 05:25 AM
    • 0
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  • I have had symptoms for seven months now. They include mild weakness in the legs, blurry visions sometimes, tremors in my hands, but it also feels like they go through my whole body. I feel like sometimes someone is splashing cold water on my legs. This happends more when i go from inside to outside if it happends to be hot outside. I feel like I am going crazy. I have had 3 mri's of the brain, which one was after a car wreck 7 years ago. I had tiny non-specific white matter changes at the time they attributed to head injury. The spots are still there and unchanged from 7 years ago. My cervical spine mri was normal too. The doctor says 90% sure not ms. I just want to know what it is and what is wrong with me. At this point I just want to know no matter what it is. I am 25 have a great job and a great husband and thought I was going to take the next step in my life. We want to have children and love life and be great parents. I feel so stunted right now. I am afraid to get pregnant because I don't know what is wrong. Please help.
    Anonymous 42789 Replies
    • October 4, 2006
    • 03:16 AM
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  • I haven't had much nerve, vertigo problems. I, too, have sjogren's. Do you know about the Sjogren's Syndrome Foundation? If not, I highly recommend joining. They have alot of info that is very helpful and address many of your problems. There web site is sjorgrens.org. Dry.ord is another resourse for SS paitents. Hope this helps. Any questions about SS, I'll be glad to try to answer.:)
    rock666 4 Replies
    • October 14, 2006
    • 08:28 AM
    • 0
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