Discussions By Condition: Nerve conditions

anyone have or know anything thing about dravets syndrome?

Posted In: Nerve conditions 1 Replies
  • Posted By: raymae
  • March 18, 2008
  • 08:35 PM

hi everyone, my 15 year old son has just been diagnosed with a rare epilepsy syndrome called dravets. iwould love to hear from anyone with advice, info , or anyone that has or knows someone with it.:(

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  • hi everyone, my 15 year old son has just been diagnosed with a rare epilepsy syndrome called dravets. iwould love to hear from anyone with advice, info , or anyone that has or knows someone with it.:(hello to you from a mum of a four year old who has suffered since 6 weeks old with siezuresaround two he was tested and was diagnosed with dravets syndrome.he has had a multi range of differant siezures but the scary ones are the epilepticus which means a fit that goes into another fit and with no breaks turning the fit into a a huge one.my son is a happy little soul he has problems with speech and has the mental age of a two year old but we battle through the best we know how.He is one of five children and is cherished.my son medications has been a bumpy road but we have found that topamax capsules with soduim valporate twice a day seems to help.I hope this small amount of facts are a help in someway.i hope you and your family the best. from a parent of a sufferer of Dravets syndrome .
    Anonymous 42789 Replies
    • December 22, 2009
    • 04:03 AM
    • 0
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