My father was just diagnosed through MRI, EEG and cerebral Spinal fluid (positive for 14-3-3- prion proteint).
I'm wondering if anyone has personal experience?
I have read all the literature. We know the eventual outcome. We are just wondering what the ups and downs are like until the end. He has barely spoken in 2 weeks and all of the sudden today was up, talking, and got out of bed on his own. He was doing "okay" yesterday, but today was just unbelievable. Perhaps a Christmas gift for us for our last Christmas with him :(