Discussions By Condition: Nerve conditions

"Neurological" problems for me and my girlfriend

Posted In: Nerve conditions 8 Replies
  • Posted By: Anonymous
  • December 19, 2006
  • 08:29 PM

Hey people. I'm not sure if this is the right section to write in, but I'll give it a shot. For some time now, I've been experiencing problems that kind of scare me.

It all started about 2 months ago with tingling in the ring finger of the left hand. That soon spread to the other fingers, and was accompanied by a slight ache in the elbow and forearm muscle. The tingling was more or less constant and the ache came and went. By then, I got in contact with a physical therapist, because I belived my symtoms could have something to do with me playing the guitar and bass. I got a bunch of exercises and stuff from her, but nothing seemed to help. Then, about 3 weeks ago, the tingling spread to my left foot, and soon after that, my left ear, and finally the left part of my tounge. This got me really worried so I went to my local health centre to run a few test. A doctor examined me and didnt find anything unusual about my reflexes etc. I did a few blood tests including looking for vitamin b12 deficiency and lyme.

Both of them came back negative, so I was sent to a neurologist for further examination. He didnt notice anything unsual when examining me, but put me in queue for an MRI just in case. That same day, my tingling spread from the left side of the body to the right side of the body, although still in the same bodyparts (Hand, foot, ear, face). I've also noticing various other symtoms, but I cant say exactly when they started. They are the following: Dizziness, feeling like I'm more clumsy than before. Ocasional twitching in various muscles.

Slight concentration problems when reading, feels like the words are "floating together" and I have to slow down. My vision is changed, I have more of those dark spots floating around now. My speech is also just a bit slurred, and I have to think more about my speaking, and which words I choose, but I dont think people notice , so I guess these symtoms are barely noticable. I've also been feeling kind of weird, it's hard to explain, but sometimes I feel "moody", like my emotional reactions to things are greater than they used to be. My stomach is upset, and I have to go to the bathroom more often. I feel generally tired, even after sleeping a good nights sleep.


So I am now waiting for the results of the MRI, but another thing came up that got me worried. My girlfriend has been having similar symtoms to what I've been having, and they are to much alike for it to be a coincidence. She's also been feling clumsy, and tingling in her foot and hand, but it started after my symtoms, so maybe a month ago. Also, worth mentioning is that we've both recently got a tiny red spotty rash thingy at our left wrists. Im not sure if that has anything to do with this aswell


Now I'm wondering, the MRI looks for damage to the brain right? What are the odds that I have something neurlogical when my GF has almost the same symtoms as me? I didnt think these kinds of diseases were contagious. Is it possible that a bacterial or viral infection that started out pretty mild led to theese symtoms? I need your help, as I fear the doctors wont be able to find out what's wrong with us. I'll be very gratefull for every answer I get. If you need to know anything else about my symtoms, just ask, and I'll try to answer.. Regards / Martin (By the way, English isn't my main language, so ignore any spelling errors or grammatical errors ^^)

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8 Replies:

  • Im not sure if this is against the rules but.. bumping this post.. Please, we need advice on what to do!
    Anonymous 42789 Replies
    • December 24, 2006
    • 11:14 PM
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  • Did they do a Western Blot for Lyme or just an Elisa? Elisa is fairly inaccurate and misses many cases, especially those in early lyme. Western Blot is better. I would get copies of the test. Were you and GF recently exposed to any insects or did you travel to any exotic places? Sounds like a virus or bacterial infection of the nervous system, especially with the rash. Also check for syphillis if you and GF both have it.
    Anonymous 42789 Replies
    • December 25, 2006
    • 11:33 AM
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  • I've no idea what kind of test it was, but I can probably find out. We haven't been to any exotic countries, but we have been at her summer house this summer, where the amount of ticks is higher than where we normally live. But what are the odds that we both got Lyme? We were only there for a week, and I didn't notice any bite marks or any other sign of a tick bite.Syphilis seems very unlikely, because it's and STD(right?), and we've only had sex with each other.I'll get the resulst from my MRI tomorrow, but I dont think it'll show anything. So how do we move on from this? I mean what test should they run on me(us). Doctors in this country sometimes have a habit of just running the "usual tests", and if we have something that's more rare,maybe it's good to come with a suggestion to the doctor?Thanks for the answer!
    Anonymous 42789 Replies
    • December 26, 2006
    • 09:51 PM
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  • I have an idea .. check out the site at www.chronicneurotoxins.com . Its kind of new field stuff so doctors dont know much about this kind of stuff, my own specialist has been in contact with Dr Richard Shoemaker who's site it is. My thought was maybe you and your girlfriend have something like that going on.
    taniaaust1 2267 Replies
    • December 30, 2006
    • 03:16 AM
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  • I'll check that out. In addition to all my symtoms, I'm now expereiencing a more severe dizziness, with "attacks" of very very severe dizziness that come and go, and last for a few seconds. They seem to come when I, for example, lie down in bed and then get up or vice versa. I still have the rash on my wrist, and it appeared about 3 weeks ago. I havent got any better at all, it's more or less worse. I get occasional ache in some of my muscles, and sometimes, my wrists, among others, itch. I've been in contact with the local hospital departement of infections, and one of their doctors don't think that what me and my GF is having is something contagious. My MRI came back clean, and my neurologist said that it's probably just stress.What are the odds that we both freak out like this because of stress, at the same time, and at a young age (we're both 18). I tried to get a message to my neurologist that my girlfriend has the same symtoms as me, but Im not sure if he got that message or not, considering the diagnosis he gave me.My GF is going to the healthcentre to run more tests, and I'm going with her, but I'm not sure what to say. They'll think we're imagining everything if we come there and demand to have every possible test run on us, so what should I ask them to test for? All the doctors that have had a look on me have so cleverly ruled out everything, so I'm out of ideas. Please help.
    Anonymous 42789 Replies
    • January 2, 2007
    • 06:02 PM
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  • Ive got quite a few thoughts over your post as a sufferer myself of a certain condition.. (I just did you a very long post with various links for you but on posting it.. the web ate it .. so I'll put less into this one). "In addition to all my symtoms, I'm now expereiencing a more severe dizziness, with "attacks" of very very severe dizziness that come and go, and last for a few seconds. They seem to come when I, for example, lie down in bed and then get up or vice versa." Orthostatic Intolerance of some kind.. maybe something like Postural Tachycardia Syndrome "Symptoms: POTS symptoms are manifold; they include: dizziness, lightheadedness, shortness of breath upon standing, fatigue, exercise intolerance, frequent urination, headache, flu-like symptoms, tingling and/or numbness in the extremities, poor sleep, abdominal discomfort, irritable bowel syndrome, poor balance and coordination, visual disturbances (floaters), allergies and chemical sensitivities, chest pain, neurocognitive disorders, anxiety, palpitations (sound familiar?). In contrast to those people who simply experience fainting upon standing people with POTS are often disabled, and unable to attend school or hold a job. POTS effects up to a million Americans. " that was from the following CFS site (most with CFS have some kind of orthostatic intolerance problem)http://phoenix-cfs.org/Orthostatic%20Intolerance%20in%20CFS%20-%20Types.htm "I feel generally tired, even after sleeping a good nights sleep." possibly CFS/ME ..check out http://wwcoco.com/cfids/bernesx.html for all the symptoms of this and you'll see yours are all on this list. Note thou if everything else is ruled out and no cause of all the problems can be found that most doctors will not diagnose something like CFS/ME until one has had the problem for at least 6 mths. As far as is it possible that both you and your girlfriend could be affected by something like CFS/ME .. the answer to that is yes.. there have been many different outbreaks of this (if you do a search CFS outbreaks you will find that out).. so obviously similar source can trigger it for some. I once read a book written by one with CFS who both her and her husband was affected within a 3 week period. Many years later they both still have it.
    taniaaust1 2267 Replies
    • January 3, 2007
    • 00:23 AM
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  • Hey again. My girlfriend's test results are back. She has "elevated levels of 'something' in her thyroid. It's hard to quote medical language and translate it, but I hope you understand. Can it have something to do with what's troubling us? She's going back for more test.I'm waiting for a referral to the departement of infections at my hospital, in hope that they can help me with what's going on. None of the symtoms I experience have gone away, except the severe dizziness.
    Anonymous 42789 Replies
    • January 18, 2007
    • 08:28 PM
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  • Im not sure if this is appreciated.. bump
    Anonymous 42789 Replies
    • January 29, 2007
    • 09:01 PM
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