i have a few symptoms and was told it could be pnkd.ive just come out of a neurology unit,but no tests was done apart from injections to stop the seizure like movements i hae daily.my hands and feet twist in like dystonia i sometimes hae severe tremors and my wrists shake my hands severerly.my neuro said my carbon dioxide levels are low but im sure this is only when an attack happens.i have now been left and am currently taking 20 to 40mg of valium a day to stop the attacks.i also take lithium for depression,which ive had for 6 years but has been good for the past 3 years.ive lost some use in my left arm i get pins and needles and a burning sensation all over my body.i cant bend because my back hurts near the bottom and i have a chest ache which goes through to my shoulders and back,i also have blurred vision.Am i entitled to go back to my gp for my tests or will they think its all in my head.I know this is a real thing thats happening to me,i cant even walk without been in agony at the bottom of my legs.i am thinking of saving and going for a private consultation because i dont know how much more i can take of this.it started 5 years ago but 16months ago got gradually worse.its spread up from the bottom to now all over een in my face..pls what do u suggest..thanks alison aged 36....Reply Follow This Thread Stop Following This Thread Flag this Discussion
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