Discussions By Condition: Nerve conditions

ADEM Diagnosis--Anyone seen this??

Posted In: Nerve conditions 0 Replies
  • Posted By: Anonymous
  • May 30, 2009
  • 05:07 PM

I was diagnosed with acute disseminating encaphalomyelitis in February of this year. My symptoms started in late January. ( I am only 23 years old.) I wonder if anyone else has or knows some one who has battled this disease, and would like to share their story?? I was treated with high dose steroids. It started with me just feeling off balance, my handwriting changed, and my motor skills were bad. I became very lethergic, sleeping about 20 hours a day. It got worse to the point that I couldn't walk unassisted (i used a walker with help), some one helped me bathe, dress, and other daily tasks. I still cannot drive. My speech was very slurred and barely anyone could understand me. I either laughed hysterically most the time or cried just as hard. I could not control my emotions. The disease comes on suddenly. Mine was started by the Epstein-Barr virus. I am now walking, with some balance problems. I still do PT. I still have coordination problems and headaches. Fatigue is still an issue. As is occassional involuntary or jerky muscle movements, but I have gotten much better from where I came from. I am interested in any stories that anyone may have or if Dr. Cottle has seen this disease process and what prognosis he has seen. Thanks all!!

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