Discussions By Condition: Nerve conditions

A Nasty New Neurological Virus ?

Posted In: Nerve conditions 14 Replies
  • Posted By: Anonymous
  • December 29, 2006
  • 03:10 AM

A few years ago I contracted a virus that started, innocently enough, with a sore throat - an infection on the roof of the mouth just left of that dangling bit (the uvula).

Being in excellent health, I thought nothing of it. Several weeks later, however, my throat had not cleared up, and the infection was spreading down my wind pipe.

A month later, it spread further. My nose and sinuses started to get infected, producing heavy, thick mucus. My lungs became a little infected, with a mild cough, and my stomach started aching a little, making bubbling sounds now and then, and producing a bit a gas.

Then my gums began to get attacked by the virus, my gum line receded, exposing previously covered areas of my teeth. Lots of plaque started getting deposited on my teeth as well.

Soon after, "pins and needles" sensations started to appear all over body, especially in my legs, but also in my arms, hands and torso. These prickly twinges seemed to come from my muscles, but I am not sure exactly where. It seemed that the virus was spreading widely.

Then some strange mental symptoms began. This started out with a weird feeling, which I can only describe as a 'social phobia', which left me feeling shy, tense and uncomfortable with friends, and on any social occasions. Emotionally, I felt frail and weak, and I found myself avoiding social contact more and more because of this.

Also, a very profound apathy and mental laziness developed. The apathy was towards all sorts of tasks and activities. My normal "can do" attitude was replaced by a "I can't be bothered" feeling, which is totally out of character, as I am normally a pro-active and highly organised person. How can a virus produce such powerful psychological changes?

Significant physical and mental fatigue were also taking hold, making me need more and more rest and sleep. I began to find myself dropping off to sleep at odd times.

The infection began spreading to other places: a mild eye infection (reddened eyes) appeared. And it even spread to my urethra (where it chronically persists in a mild state of infection).

The worst thing was that, about a year after getting the sore throat, I experienced an acute attack of what seemed like a brain infection (encephalitis) which caused a noticeable personality change, and afterwards left me in a horrible state, with severe panic attacks, fear, confusion, and mental decline. Thankfully, I have recovered a little bit from this trauma, but find myself with much lower intelligence now.

My doctor seems to think that this infection will eventually go away, but I see no evidence of that myself. I assume it is a virus infection, because my doctor did a bacterial swab on my throat, and this showed nothing. I don't think it is a standard infectious or tropical disease, because I was also tested for these by a specialist.

I have noticed that this mystery virus is quite contagious. It spread to all the people in the apartment where I live within 12 months, and to various social acquaintances as well. So it obviously spreads reasonably easily.

I notice the range of symptoms varies slightly in different people. Sometimes the virus infection starts with stomach sickness and diarrhoea initially, rather than with a sore throat. There is not always this chronic, mucus-producing nasal infection in everyone, and I was the only who got the acute brain infection, so this symptom is rare. The social phobia and apathy are very common, it seems, as is the lingering sore throat and profound tiredness. The worse thing is that whatever symptoms are present remain constant and chronic even after years. They do not seem to get better.

My questions are:

WHAT THE ***l IS THIS VIRUS?

WHY IS IT STILL ACTIVE IN MY BODY, EVEN AFTER SEVERAL YEARS?

AND WHAT IS THE BEST COURSE OF ACTION I CAN TAKE NOW?

john-ph@lycos.com

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14 Replies:

  • As I was reading throu that.. I was thinking that is a lot like the condition I have, you could have a version of the same kind of thing (thou a little different than the norm). I have CFIDS (chronic fatigue Immunity disfunction syndrome). I'll put the similarities here anyway. If you research CFIDS or CFS, you will find that it has often appeared in large or small outbreaks in communities, hospitals etc. So like the virus you speak of.. can affect many in one area. It still isnt known what exactly causes CFIDS thou many think it may be caused by a virus of some kind. This may interest you, for your virus question ... (non-paralytic polio? a mutation of the polio virus???) could the virus you have be something like this http://www.cssa-inc.org/Articles/Childhood_Polio.htm .. could a virus be causing CFIDS??? CFS also called M.E. (myalgic encephalitis .. .like as if one had brain inflammation) . M.E. affects central nervous system. The most common way CFIDs starts out is with a sore throat, most CFS people are told they have a virus of some type at first. bleeding gums, gas, apathy, panic attacks (I get panic attacks with it) and other mental symptoms eg personality changes, weird skin sensations eg pins and needles (for me it was like getting bitten by spiders or like being covered in 100's of ants), muscle spasms, mental confusion (I know all about that one too). To date I have 67 different symptoms with the M.E or CFIDS . On the following site is a list of CFIDS symptoms and the percentage of CFIDS people who have them.. you'll find all yours on this list http://wwcoco.com/cfids/bernesx.html . CFIDS often presents differently some in each individual with it.. thou has common patterns to the illness, thou yours isnt the normal pattern, it is EXTREMELY similar (maybe even enough for a CFIDS diagnoses)... so hence ive posted all this. If its CFIDS its unlikely to just go away... in most it stays thou in some it does improve. If its CFIDS.. there isnt much one can do about it, except treat the symptoms.
    taniaaust1 2267 Replies
    • December 30, 2006
    • 03:00 AM
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  • Have you researched Sick Building Syndrome? Is there any chance that mold is present in your building?
    jeff88 15 Replies
    • January 4, 2007
    • 03:38 AM
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  • was really interested to read condition experienced by Jeff and the response given as I am going through a uncannily similar scenario right now. one month down line...loads of blood tests later..all negative except cytomegatovirus? Its been a complete nightmare as Ive gone from a very lively mum and teacher to a old fall off to sleep type with no energy ..permanenet sore throat ulcers and joint pains..tingling of hands,face and feet...the list goes on.I made a decision today..yes today..after another visit to GP..that I was gonna find out as much as I could myself..and challenge misconceptions-have you experienced the treatment for depression approach and offer of couselling and antidepressents?Sure this pulls you down big time but i know its not the primary cause...Its seems from wide reading that M.E is a real possible consideration that can cause a plethera of symptoms that can be so severe.I know that still the medical jury is not united on this but there are pockets of acceptance that I intend to explore.I am seeing a medical homeopath tomorrow..and there is even a consultant in sussex who specialises in chronic fatigue( which can also be due to chemical poisoning/allergies..) I am very very angry that I feel so ill and after an initial real despondency have decided to fight back...I refuse to believe this is my life now (or indeed my familys life) On monday 22.1.07 the times did an amazing piece on chronic fatigue syndrone..might be worth looking at...timesonline.co.uk/health...Look at ME association www.meassociation.org.uk.
    Anonymous 42789 Replies
    • January 24, 2007
    • 02:06 PM
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  • For the past 2 1/2 years I have been experiencing a burning sensation through out my body, especially around my torso area and through my legs and feet. It often feels like pins and needles as well. This happens on a daily basis and has been this way for 2 1/2 years. It's very bothersome and makes me very irritable. When this happens I don't have a fever, my blood pressure is normal, I don't get headaches, I don't have nausea or anything; pretty much the only symptom I am having is the burning sensation, but it wears me out when it happens. About the only way I have found to make it tolerable is by making the room, car, etc I'm in really warm, by adjusting the thermostat or turning the heater on. If anyone else is experiencing this or has experienced this, or if you have knowledge of what could be happening please let me know. you can contact me through yahoo instant messanger or yahoo email: xxsignalmexx or xxsignalmexx@yahoo.com
    signalme 2 Replies
    • February 8, 2007
    • 11:14 PM
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  • Thanks for the above replies. people. Yes, the chronic fatigue side of my infection is not nice, but what's worse is the change in mental disposition. I have become mentally very apathetic and lazy. I lost all my fire and enthusiasm, and became someone that has no desires to do anything. I mean, I can force myself to do things, by an act of will, but I find lots of things I used to love to do are now an effort, and offer little satifaction. It's really weird. Then there is my other problem: my muscles are getting soft and flaccid, especialy my legs, like as if my musculature is gradually melting away. I have an idea that this is something that is happening in my brain - a loss of nerve connections, or motor neurones, or something.john-ph
    john-ph 2 Replies
    • February 9, 2007
    • 01:28 AM
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  • UPDATE on my original post: I still have this problem; no definite answers yet.see http://chronicsorethroat.wordpress.com/ for more details on this condition.
    Anonymous 42789 Replies
    • December 14, 2007
    • 02:01 PM
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  • hip, Do you have a mold problem in your apartment?
    mumzie 32 Replies
    • December 15, 2007
    • 06:43 AM
    • 0
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  • The virus families I suspect in FMS, CFIDS and all sorts of these things are the viruses that used to cause "nonparalytic polio", the coxsackie and echo viruses, entero viruses that that can attack and follow nerves, just like the parlytic polio viruses. Now that nobody gets "nonparalytic polio" anymore since there are vaccines against the 4 paralytic polio viruses (I don't understand the logic either, but the diagnosis has completely disappeared) we all just have mysterious viral illnesses that leaves us with what would be diagnosed as post polio syndrome if we had been diagnosed with polio first but otherwise it's just FMS and CFIDS. The only relief I got was with methylcobalamin plus cofactors after more than 16 years.
    Freddd 3576 Replies
    • December 17, 2007
    • 06:49 AM
    • 0
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  • Sometimes when allopathic medicine has no answers, it is time to look at your illness in a different way. Try NAET, acupuncture, naturopathy, homeopathy, chiropractor...no one treatment is going to fit everyone. But consider these more holistic approaches to your illnesses. To the OP: often a virus can become "lodged" in the meridians, or energy pathways of the body. Combine this with mucus/phlegm retention, and you will have the psychological issues you are describing. This condition is affecting your Spleen, causing your muscle atrophy and flaccidity. A qualified acupuncturist and Chinese herbalist should really be able to make a difference. But prepare for a series of 8-10 treatments. Also consider NAET - Nambudripad Allergy Elimination Techniques, or Bioset, which is an offshoot of NAET. Blaze makes an interesting point. A Bioset or NAET practitioner, if they are really good, can determine if your condition is caused by EMF's or other environmental problems, such as toxic mold. Please look into this. Best wishesDOM
    acuann 3080 Replies
    • December 19, 2007
    • 04:36 AM
    • 0
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  • I do want to say that the complete nutritional solution has given me 99% relief of the symtoms after being a basketcase for more than 16 years. I had morte than 70 symtoms affecting every system of the body. Basically the list of symtoms presented above are all found on the methylcobalamin (natural vitamin b12) list of symtoms or cocorrelates, more than 170 such. In my own case I started out with a severe flulike illness, with severe muscle pain, sever fatigue, dizzyness, nausea, blurry vision. I didn't get better and the symtoms settled in. They started reversing 5 minutes after placing a sublingual Enzymtic Therapy under my tongue, after more than 16 years. I was already taking a full set of vitamins but with cyanocoblalamin instead of methylcobalamin. I was dying of b12 deficiencies while taking the artificial cyanocobalamin "vitamin b12". If any of it is b12 deficiency you will 95% know within a one month trial of vitamins including either Jarrow or Enzymatic Therapy methylb12 sublingual. These two brands, in a test by 5 hypersensitive testers both rated 5 stars in a comparative test of 10 brands. One other was Zero stars, completely ineffective allowing symtoms to return within one week. Seven others rated 1,2 or 3 stars. A lot of perople will have fiurther improvement, especially with muscle pain, exercise and arobic conditioning, with adenosylcobalamin (dibencozide) which works in the mitochondria producing oxidation energy. The symtoms far outlasted the hypothetical virus that may originally have triggered them.
    Freddd 3576 Replies
    • December 20, 2007
    • 02:10 AM
    • 0
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  • I do want to say that the complete nutritional solution has given me 99% relief of the symtoms after being a basketcase for more than 16 years. I had morte than 70 symtoms affecting every system of the body. Basically the list of symtoms presented above are all found on the methylcobalamin (natural vitamin b12) list of symtoms or cocorrelates, more than 170 such. In my own case I started out with a severe flulike illness, with severe muscle pain, sever fatigue, dizzyness, nausea, blurry vision. I didn't get better and the symtoms settled in. They started reversing 5 minutes after placing a sublingual Enzymtic Therapy under my tongue, after more than 16 years. I was already taking a full set of vitamins but with cyanocoblalamin instead of methylcobalamin. I was dying of b12 deficiencies while taking the artificial cyanocobalamin "vitamin b12". If any of it is b12 deficiency you will 95% know within a one month trial of vitamins including either Jarrow or Enzymatic Therapy methylb12 sublingual. These two brands, in a test by 5 hypersensitive testers both rated 5 stars in a comparative test of 10 brands. One other was Zero stars, completely ineffective allowing symtoms to return within one week. Seven others rated 1,2 or 3 stars. A lot of perople will have fiurther improvement, especially with muscle pain, exercise and arobic conditioning, with adenosylcobalamin (dibencozide) which works in the mitochondria producing oxidation energy. The symtoms far outlasted the hypothetical virus that may originally have triggered them. So glad you have such good results with the Methyl B12. It is the only B supplement I recommend to my patients. By the way, I thought I would mention that Methyl B12 is a fantastic mood stabilizer, and very helpful for depression when there is an underlying B12 deficiency. I take 2000mcg Methyl B12 every other day and have noticed my moods have been much more stable. Also great if you are nervous and have anxiety. Best wishesDOM
    acuann 3080 Replies
    • December 20, 2007
    • 06:36 PM
    • 0
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  • As DOM points out, the psychological effects of methylb12 can be huge. Depression is just one of many. Psychosis, including "the most florrid psychosis known to man" (megablastic madness) can occur. Post partum depression had remission within 3 days for 50% of women in a 1950s test of b12 prior to the entry of antipsychotics on the market at about the same time. All kinds of mood disturbances can occur with b12 deficiency. My life long depression lifted in a matter of days after starting methylb12 as the lights literally came on (everything got much brighter looking, suddenly).
    Freddd 3576 Replies
    • December 20, 2007
    • 09:50 PM
    • 0
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  • about 4 months ago my problems started and they are all so similar to yours...the first initial symptom was a case of bronchitis, then when that cleared up after about a month, i started getting terrible diarrhea and stomach bloating. i felt like my stomach was going to explode. i lost weight rapidly (15 pounds in a week) without trying. i was weighing 297 but now i weigh 262. yes, i know 297 is overweight. i started having muscle twitches all over my body. during this period i started asking my family doctor to test me for hepatits c and hiv. those tests came back negative. the diarrhea persisted and the night sweats began, only they aren't only "night" sweats. the twitching continued to get worse and i started having weird headaches, mostly at night before going to bed. i started having trouble falling asleep because there would be this weird "impulse" that would make me wake up every time i would get to that point where i started getting drowsy. blood tests and hospital visits have revealed nothing and i am now desperate for an answer... i finally got in to see a nuerologist and she did a EMG which showed that i have carpal tunnel syndrome in my right arm, which to me make no sense in light of all the other stuff thats going on. this thing has gotter worse, it is definitley progressing. i actually just got back from seeing the neurologist again and this time she ordered a MRI of my brain and a EEG, but it's not until next week. my hands are shaky and i can barely stand up without feeling like i am falling or passing out. i have genital herpes which used to remain dormant most of the time but is now coming back repeatedly, as soon as it clears up, it comes right back. also i am having eye floaters which are getting worsei had a sore throat off and on during this stuff at first, then my mouth began developing severe thrush... (made me think hiv again) my bones and joints ache all over my body... this combined with the other things have prompted me to be tested for hiv FIVE times over the past 5 months. ALL TESTS HAVE COME BACK NEGATIVE.i had a period of about a week where this stuff seemed to go away, but then BAM out of nowhere it came back, worse than ever... and is taking it's toll on me even as i type this. i literally feel like i could go at any point and i am scared...i am a 34 young man and have a family. i asked my neurologist if it could be M.E. and she said she had never even heard of that before. i have been researching and to me it sounds like i have some sort of viral encephilitis which is affecting my central nervous system, but my neurologist said theres no way. i even mentioned that i might have more than one kind of herpes and maybe it caused my brain to swell, and thats when she ordered the MRI and EEG. i am also having chest pains but have had bloodwork and CT scans, along with ECG of my heart which showed nothing wrong. (lots of e.r. visits)my blood pressure shot up during the onset of this, and i also was diagnosed with diabetes type 2 hyperglycemia.... even though my suger only went up to 288 and then leveled out on its own within an hour of the glucose test.i live in the ashland, Ky area and the doctor i see works for the largest hospital in the area, but i am poor and have no insurance other than a medical card. my symptoms are getting worse... she doesn't know what to do and every time i get the runaround it makes me want to break down and cry because i am so weakened by this.if anyone knows what could be causing this, or might be suffering the same thing and live in my area, please feel free to email me at deadline27@yahoo.comeven if you don't live in my area, and have any good ideas, write me.deadline27@yahoo.com
    Anonymous 42789 Replies Flag this Response
  • Several viruses can cause these symptoms.See: http://chronicsorethroat.wordpress.comOr google "Chronic Sore Throat / Mood Virus"
    Anonymous 42789 Replies Flag this Response
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