Discussions By Condition: Nerve conditions

4 years and undiagnosed; posted on muscoskelatal too

Posted In: Nerve conditions 3 Replies
  • Posted By: funnybunny
  • July 15, 2008
  • 10:56 PM

Hi I have been having what seem to be generally neurological issues, but I do have a lot of muscle stiffness in my chest, neck, and upperback that I have had for two years now. My first set of symptoms started 4 years ago. I had a lot tingliness in my forehead and in my cheeks. I also had stabbing pains in my cheeks and a twitching pain in my lip. I also had some pain behind the eye at times and this is when i started having blind spots in my left eye. And i had flashes of light in both eyes. I also then noticed my neck was becoming stiff. It hurt, but more of a generalized ache. I also had shotting pains in my back. I also had an electric shock like sensation down my spine(only happened once, and has never returned) and an earthqake like sensation inside my entire body(only lasted about 1 min and only happened to me twice) And after about two months, the symptoms just disappeared. I was fine until the following year when I the fatigue started. It wasn't that bad at first, but now the fatigue can be so exhausting at times. This is also when I notice more stiffness of my neck and I started having chest pain that radiated down my inner arm(it started off as a tickly stabbing pain, but now it can be more intense, but they are usually brief) This happend sometimes for a couple hours on certain days, kind of came and went. And one day, left arm went partially numb, it felt like it was asleep and this happened for about day and a half and then went away. This is around the time the muscles of my back and chest became very stiff. ANd the entire thoracic region was weak at times. THis process i think took about a year. I also noticed leg weakness at times and a muscle spasm of my left foot(it would lock into a bent postition and it usually takes 1 min to get out of that position, very painful) I also started having urinary frequency, and sometimes, a little will come out(this may or may not be related) And then some weeks I had a lot of shooting pains elsewhere in the body, back in the face again, a burning pain in the foot, complete numbness of two left toes, occasional eye problems, two episisodes of vertigo, and sometimes joint pain in the knees, odd sensations of my stomach, wet sensation of the left foot, pressure sensations of the chest, pressure sensations of the head(only lasted a few minutes, it wasn't a headache, because it lasts briefly) a place on the elbow where if lightly touched i have a feeling that someone hit my funny bone. All of these symptoms occured mainly last year and most of them were off and on.
Now of all last year I was pretty bad, and I also had an episode of complete numbness of my neck that lasted for almost two months. But after the neck numbness, I felt better. I had mild fatigue and mild stiffness it seemed anyway, and no other problems! This continued until just last month.
This is what happend in june: It started after I was playing tennis(i was able to play again cause I felt fine, had been playing for 3 months prior to this situation) I had gotten a headache after playing tennis one day which was unusual for me. I figured it was the heat because it was 90 degrees out when I was playing with my boyfriend. We had played for 2 hours. ANyway, the headache got worse after about 4 hours which I thought is not good because that shouldn't happen even in people with chronic headaches. The headache was an intense sense of pressure everywhere. I also noticed I felt very drowsy and when I got up to walk, I was having some difficulty. ANd i noticed i was talking slow. So went to the ER, CT scan was normal. Went home. NExt three days, i was fine. On the fourth day, the headache returned, but not so bad. But I also had an intense deep pressure pain in the back of my neck. And intense pressure pain of my chest that sometimes radiated into my stomach and down the inner arm(I wasn't too woried about that because this happened before, but only this time it kept happening) ANyway, the symptoms would come strong at times, then ease up, and sometimes just go away. And I had pain behind my left eye, couldn't really move it cause it would hurt too much(same eye I've had problems with before) Symptoms happened into the next day as well so back to the ER. Waited for 6 hours only to be sent home(they did do EKG: normal) Also this is when the chest pain stopped. About two hours later, I got up from stitting down, took two steps, and fell down from being extremely weak and shaky in the legs. I also had complete numbness of the right arm(it felt extremely heavy, could barely lift it, i mean barely) The pressure pain turned to a burning in the head and neck. I suddenly felt very drowsy, talking slow again. Back to the ER(different hospital) and on the way there, kept jerking the left arm and right leg(involuntary of course) Upon registering, couldn't sign my name(couldn't lift the arm) While waiting for the doctor, I had intense burning pain in the eye. The jerking movements started happening again when lying down. The dr. did CT scan with contrast this time and chest x-ray, everything normal. Told me to follow up with neuro. Exactly what Im going to be doing on 8-4. Next day, very weak in the legs, trouble walking more so than ever before(very unbalanced) and this is odd but blurry vision for two hours then it went away. All the other symptoms disappeared.
Since then I have had the same types of previous problems come back, but with a few more new problems, like intense burning of my upper back at times, burning of my thigh, burning in parts of my head, eye pain again, oh and this time i have had double vision but of the right eye?(only lasted about 5 min) and color differnece of the left eye(lasted a few min. and color was dimmer in the left eye)
Tests done: Just about everything except an mri of the brain and spine.
ANA: negative(tested twice)CBC: normal TSH: normal Reumatoid factor: normal ANti-Ro: normal Lyme: negative(tested twice) ESR:normal other urine and blood tests all normal liek diabetes hep. HIV liver function urine function potassium all those
MRA of heart, ECHO, stress test, holter monitor, all normal
chest x-rays(i think like 4 to date cause of ER visits) normal
chest CT and neck CT: normal
and finally head CT: normal
I have never gone to the eye doctor though to tell him about my recent eye problems. (the eye problems in the past i blew off along with my first set of symptoms, i didn't think anything of it at the time) So as far as he knows, my eyes are fine with my contacts(have had bad vision since third grade, so i figured the blind spots and flashes of light were related at the time) I tend not to be much of a worrier and before this last incident, I blew off alot of my docotor's appt. and it could be why I still don't know yet cause some of it is my fault. But now, I am worried cause of the last even that happend. Im very confused and have really thought about the possiblitly of this being ms. I though about it once before two years ago and the first doctor i went to was a neuro. but he told me i had nothing neurological wrong with me(ooh how mad i am now!!!) ANd i believed him and thought nothing more about the idea and thought i was silly for thinking that and assumed i had either chronic fatigue syndrome or fibromyalgia(fibro was ruled out but still a possibility at the time i seen my rheumy; he did an evaluation and i had no tenderpoints cause gee im not tender now i know better; back then i thought because of shooting pains that's what it was) so i continued to think this was CFS. Now, I'm pretty sure it isn't. Im not on any meds. I was exercising but now im scared to play tennis. I sometimes take ibuprofen for pain. ANd lately, ive been taking asprin everyday just in case.
LAtely, ive really come to the realization that this is either ms or some other neurological problem. Lyme i think could still be a possibliity but the eye pain kinda throws me off on the idea. Then I thought about rare things like something to do with the arteries, but i think the heart MRA would have picked something up? Who knows. I know i have to wait until the mri is done. In the mean time, its like all other times. ANxious to wait for test results. I hate that. Which i why i try to avoid going to the doctors in the first place. Then my mom yells at me which makes it worse so i have to go, i think i get it from her. SHe's the same exact way. SO she has no right yelling at me. lol.
Anyway, I was just wondering if anyone out there has had similar experiences and found out their cause. I know every experience is highly individual and what effects one person, may not do so with another. BUt any thoughts would be apprectiated. Am I sane for beliveing this to be MS?:confused: Thank you for reading all this! I know that was alot!!
Oh and i did post this on the other forum too.(muscoskelatal problems)

Reply Flag this Discussion

3 Replies:

  • Why do you want to saddle yourself with a diagnosis of MS? Nothing in your history would suggest MS to me, but if you continue to be concerned about that as a diagnosis, then you need to go through the appropriate channels and undergo an evaluation. Repeated emergency room visits for non acute situations will not answer the questions that you want answered. You obviously have a number of vague complaints that do not localize (from a neurologic standpoint) to any specific territory. Establish yourself with a provider and begin a diagnostic process that will satisfy your expectations and provide you with answers to your questions. Especially in the case of MS, the presentations can be incredibly varied. There will no doubt be one person who could easily answer you on this board and confirm that your symptoms are worrisome. That doesn't mean that an MRI or LP is indicated. Your best course of action is always to find a provider that you trust and can discuss your concerns with openly.
    fewd4thought 126 Replies Flag this Response
  • I agree don't saddle MS just yet. You could have some blown discs and pinched nerves. A good neurologist can run tests to rule in or out plus compare your complaints to other neurological issues. Sounds like you need to explore that arena for the possible root cause. Good luck.
    Abbydoodle 138 Replies Flag this Response
  • Three things to consider:1. Get copies of your blood work. Look at your B12 levels - this is notoriously underdiagnosed and B12 deficiency can cause ALL of the symptoms you are describing. B12 def mimics MS. "Normal" B12 levels in the US are between 200-1100, which is a ridiculously wide range. Check your levels and if they are under 500 I would ask for an uMMA test to rule out B12 deficiency. 2. Get tested again for Lyme thru Bowen or Igenex labs. 3. Try acupuncture. Acupuncture can be extremely helpful for neck, shoulder, back pain. Plus neurological pain. To find a qualified practitioner near you please visit www.acufinder.com or www.nccaom.org Best wishesDOM
    acuann 3080 Replies Flag this Response
Thanks! A moderator will review your post and it will be live within the next 24 hours.