Discussions By Condition: Nerve conditions

3 years,7 doctors, no answers

Posted In: Nerve conditions 6 Replies
  • Posted By: needsomehelp
  • November 7, 2006
  • 03:12 AM

:confused: I have been seeing doctor after doctor for 3 years now and noone is able to tell me why I am in constant pain. Started with a stiff feeling on the left side hip/pelvic bone. Within a couple of months the burning pain was so intense that I could barely walk. Was treated with muscle relaxers and steroids, only took the edge off. Pain is constant and radiates down both legs. About 2 years ago I lost feeling through my pelvic area. I have had x-rays, 10 MRI's, cat scans, EMG, spinal tap, and almost every other test you can think of. I have seen every specialist that there is. They all can tell me what it isn't, but not what it is. Recently had a diagnostic laparoscopy to check for endometriosis. Once again, I have been declared a healthy 34 female!!!! I have been told by one pain management doctor that he saw 2 herniated discs, but a nuerologist and a nuerosurgeon say my spine is fine. Am seeing another doctor on Wed., hoping to get a myelogram. It is the only test that hasn't been done and I think it is the last hope of finding a diagnosis. Can anyone relate to the utter frustration of being pigeon-holed as a perfectly healthy person when you know you are not??!!!:(

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6 Replies:

  • Hi - I feel for you...wonder if you have been to a Chiropractor or has anyone suggested Physiotherapy? I would be listening to the Dr who saw the herniated discs as your symptoms sound like that is what it could be. It only takes one disc pressing on nerves with inflammation to cause a great deal of pain. I've had sciatic pain before with disc inflammation and it has cause me not to walk with pain going down my leg and a constant ache all through.Hope you get some relief soon. I understand what you are going through. Louise :)
    kimberleydust 15 Replies
    • November 8, 2006
    • 10:52 AM
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  • I don't have the same problem, but know exactly how you feel. I have struggled for about 7 years now and have been told that I am a healthy 35 year old. I know there is something wrong and I will not quit until I find out what it is that causes my symptoms. My 15 year old daughter started with severe hip pain that progressed to back pain that has lasted about a year and a half. I have finally gotten her to an awesome chiropractor that did the proper tests and listens to her. She has a herniated disc, her pelvis was tilted resulting in bursitis, and she has a mild scoliosis (that we've discovered has been the root of her migraine headaches). She has had a lot of relief since going to this doctor, and I am so thankful. Hang in there and pray for the right doctor!
    Anonymous 42789 Replies
    • November 8, 2006
    • 08:54 PM
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  • I just re-read your post and noticed something familiar, "Started with a stiff feeling on the left side hip/pelvic bone. Within a couple of months the burning pain was so intense that I could barely walk." My daughter had a chronic burning and popping in her hip initially. It became so bad that she could barely walk as well. After we discovered that she had a herniated disc, I still kept questioning why her hip hurt so much. Initially she was diagnosed with snapping hip syndrome, but that didn't really line up. Finally, the chiropractor discovered that one side of her pelvis was tilted, which caused the tendons that stretch across the bone that sticks out in the front of the pelvic area to become extremely tight across that area. When she would move a certain way, the tendon would "pop" or move from one side to the other. This resulted in bursitis (inflammation). It is hard to explain without a visual, but if this even remotely sounds like you, please seek a chiropractor. They should know exactly what to look for it they are reputable. Go by word of mouth because those doctors are the ones that people go back to because they actually help them. On another note, my daughter and I were about to concede to her having back surgery (discectomy) out of desperation just prior to finding this chiropractor. I thank God I didn't allow her to do something so permanent to her body because we were desperate. Don't give up!
    Anonymous 42789 Replies
    • November 8, 2006
    • 09:05 PM
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  • Hi, I just want to let you know that you are not alone. My mother went through the exact same thing and they diagnosed her with several different things, but the one that seems to make the most sense and may be the most relevant to you was a diagnosis of Fibromyalgia. I hope this can be of some help to you and that you find some relief and answers soon.~T
    babysqurl 1 Replies
    • November 9, 2006
    • 03:10 AM
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  • Hi I had a similiar thing with lower legs that also had numbness and tingling. when I finally had a discogram it showed two of my lower discs were torn and leaking causing pressure on my nerves, sounds very much like yours. Hopes that your myelogram showed something for you. I know how it feel when you think everyone thinks its all in your head!
    abmarkpelle 3 Replies
    • December 14, 2006
    • 04:52 PM
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  • I can (kinda) feel your pain. I have pain in my left leg and hip/waste area. I had surgery to remove an ovary this summer due to endometriosis. The doctors can't figure out why I have pain, because there is no disk abnormalities. However, I have found, through physical therapy, that my muscles have all been compromised. I didn't realize that you can dislocate a muscle as you can a joint. The PT told me that if you dislocate the muscle, it can cause the bones (in which it supports) to move out of place. This then causes the bones to cut off/pinch/smash nerves, causing pain and discomfort in all parts of the body. Double check your range of motion. Can you bend down and touch your toes without pain? If not, when does the pain start? Do you feel as if any muscles are holding you back from bending completely? I was in so much pain from my sciatic nerve being pinched, that I could not stand/sit/walk for more than 10 minutes at a time. With PT, I popped a muscle in between my legs, and did some exercises to force the muscles back around the pelvic bone. I wish I had more answers, but this is the best they've found in me. Maybe your situation is similar. Don't give up, and don't lose hope. Don't let the doctors tell you this is normal. It's not. You are 34, and this should not be how you feel for the rest of your life. Good luck, and God bless.n.
    lkt9205 1 Replies
    • December 17, 2006
    • 06:39 PM
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