Discussions By Condition: Nerve conditions

21 year old, unable to get diagnosis, now mobility and speech impaired, doublevision

Posted In: Nerve conditions 7 Replies
  • Posted By: Anonymous
  • August 10, 2010
  • 10:43 AM

Hi there,

I have an older brother who is 21 years old, over a year and a half ago (early January 2009) he started experiencing double vision in his eyes, the optometrist didn't know why and put a prism lens on his glasses to correct his site. A few months later he developed a nasty rash on both of his arms, and he started getting tremors in both his arms and legs, gradually not long after his balance was affected and he couldn't walk straight with the need of assistance, his foot would drag on the ground, he had trouble getting up when sitting down and needed help also, his posture was stiff and informal/lazy with an unusual gait. He would always have flem in his throat and excess saliva in his mouth which he always needed to spit out, at night he would have choking fits, because of the stringy thick saliva which has to be sucked or spat out. His personality changed mentally, and he was a different person, he was oversensitive, got upset easily and acted kiddish at some points, he was depressed, paranoid, unmotivated and was very forgetful. His voice and laughter was weak and he started to experience speech impairment, as it was slurred and he soon chose not to speak at all. Also short-term memory loss and also loss a lot of weight. He had trouble urinating and excreting waste. He was always tired and always closed his eyes. Continuously for months his condition got worse and he had to rely on my parents to be feed, changed and bathed. He could walk a little be with a walker-frame if someone was holding him.. but now it has come to a point where he needs to be lifted from one place to another, also the muscles in his hand and feet have tightened causing them to bend inwards and closely grasped.

Originally i had thought it was MS when i did research, all his symptoms matched up to it although the doctors said that in the MRI, his brain did not show signs of this. Then there was other diseases that i looked up such as Stiffman's disease, Parkinson, Alzheimers, etc. I also suspected possibly having small tumours in the brain, which cant be seen through scans, there is definitely something neurologically wrong, something in his brain, nerves that have been dislodged.. that has caused problems in his neuron motor and affected the function and recieptance of messages passed from the brain to the body to move certain parts of his body and to perform normal every day activities. All of his thousands of tests that have been done and sent to America, Australia, UK etc have apparently shown no abnormalities. Including blood and MRI scans...

Doctors in NZ havnt been able to help or diagnose him so PLEASEEEEE, can you help my brother, or refer me to someone who has great knowledge of this kind of illness. It is slowly taking my brothers life as well as my whole family's and I am in desperate need of getting a lead and diagnosis so that my brother could quickly receive treatment and get better. It has been a year and a half too long, and i would appreciate any help that i could get..

Thankyou

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7 Replies:

  • Hi there, I have an older brother who is 21 years old, over a year and a half ago (early January 2009) he started experiencing double vision in his eyes, the optometrist didn't know why and put a prism lens on his glasses to correct his site. A few months later he developed a nasty rash on both of his arms, and he started getting tremors in both his arms and legs, gradually not long after his balance was affected and he couldn't walk straight with the need of assistance, his foot would drag on the ground, he had trouble getting up when sitting down and needed help also, his posture was stiff and informal/lazy with an unusual gait. He would always have flem in his throat and excess saliva in his mouth which he always needed to spit out, at night he would have choking fits, because of the stringy thick saliva which has to be sucked or spat out. His personality changed mentally, and he was a different person, he was oversensitive, got upset easily and acted kiddish at some points, he was depressed, paranoid, unmotivated and was very forgetful. His voice and laughter was weak and he started to experience speech impairment, as it was slurred and he soon chose not to speak at all. Also short-term memory loss and also loss a lot of weight. He had trouble urinating and excreting waste. He was always tired and always closed his eyes. Continuously for months his condition got worse and he had to rely on my parents to be feed, changed and bathed. He could walk a little be with a walker-frame if someone was holding him.. but now it has come to a point where he needs to be lifted from one place to another, also the muscles in his hand and feet have tightened causing them to bend inwards and closely grasped. Originally i had thought it was MS when i did research, all his symptoms matched up to it although the doctors said that in the MRI, his brain did not show signs of this. Then there was other diseases that i looked up such as Stiffman's disease, Parkinson, Alzheimers, etc. I also suspected possibly having small tumours in the brain, which cant be seen through scans, there is definitely something neurologically wrong, something in his brain, nerves that have been dislodged.. that has caused problems in his neuron motor and affected the function and recieptance of messages passed from the brain to the body to move certain parts of his body and to perform normal every day activities. All of his thousands of tests that have been done and sent to America, Australia, UK etc have apparently shown no abnormalities. Including blood and MRI scans... Doctors in NZ havnt been able to help or diagnose him so PLEASEEEEE, can you help my brother, or refer me to someone who has great knowledge of this kind of illness. It is slowly taking my brothers life as well as my whole family's and I am in desperate need of getting a lead and diagnosis so that my brother could quickly receive treatment and get better. It has been a year and a half too long, and i would appreciate any help that i could get.. Thankyouwow, unbelievable, i cant help but i just wanted to say i was in a similar boat, not as bad as your brother, but i got very sick for no apparent reason, few questions, has he ever smoked marijuana?Does he Scuba dive?Has he had his sinusis checked? Was he completely normal before this happended?
    Anonymous 42789 Replies
    • August 11, 2010
    • 02:00 PM
    • 0
    Flag this Response
  • Hi there, I have an older brother who is 21 years old, over a year and a half ago (early January 2009) he started experiencing double vision in his eyes, the optometrist didn't know why and put a prism lens on his glasses to correct his site. A few months later he developed a nasty rash on both of his arms, and he started getting tremors in both his arms and legs, gradually not long after his balance was affected and he couldn't walk straight with the need of assistance, his foot would drag on the ground, he had trouble getting up when sitting down and needed help also, his posture was stiff and informal/lazy with an unusual gait. He would always have flem in his throat and excess saliva in his mouth which he always needed to spit out, at night he would have choking fits, because of the stringy thick saliva which has to be sucked or spat out. His personality changed mentally, and he was a different person, he was oversensitive, got upset easily and acted kiddish at some points, he was depressed, paranoid, unmotivated and was very forgetful. His voice and laughter was weak and he started to experience speech impairment, as it was slurred and he soon chose not to speak at all. Also short-term memory loss and also loss a lot of weight. He had trouble urinating and excreting waste. He was always tired and always closed his eyes. Continuously for months his condition got worse and he had to rely on my parents to be feed, changed and bathed. He could walk a little be with a walker-frame if someone was holding him.. but now it has come to a point where he needs to be lifted from one place to another, also the muscles in his hand and feet have tightened causing them to bend inwards and closely grasped. Originally i had thought it was MS when i did research, all his symptoms matched up to it although the doctors said that in the MRI, his brain did not show signs of this. Then there was other diseases that i looked up such as Stiffman's disease, Parkinson, Alzheimers, etc. I also suspected possibly having small tumours in the brain, which cant be seen through scans, there is definitely something neurologically wrong, something in his brain, nerves that have been dislodged.. that has caused problems in his neuron motor and affected the function and recieptance of messages passed from the brain to the body to move certain parts of his body and to perform normal every day activities. All of his thousands of tests that have been done and sent to America, Australia, UK etc have apparently shown no abnormalities. Including blood and MRI scans... Doctors in NZ havnt been able to help or diagnose him so PLEASEEEEE, can you help my brother, or refer me to someone who has great knowledge of this kind of illness. It is slowly taking my brothers life as well as my whole family's and I am in desperate need of getting a lead and diagnosis so that my brother could quickly receive treatment and get better. It has been a year and a half too long, and i would appreciate any help that i could get.. ThankyouHello, I am so sorry for what your brother and family are going through. I am not a specialist or doctor of any kind. I am a 35 year old mother of 5 children , cancer survivor, survivor of pulmonary emboli 3 times and I have mitrial regurgitation, aortic insufficiency, Raynauds phenomenon and a few other medical conditions. So you can imagine the endless days and nights that I have spent reading medical journals and information from peer-reviewed libraries. This may be way far fetched but have you inquired about the possibility of Tetanus. Tetanus can be caused by dental abscess, wound infection, strychnine poisoning, tonsil infections, neoplasm and other things. Some other risk factors are soil, manure, farming, forestry occupations, outdoor sports, puncture wounds, bites and many of the things that I am unaware of. I am in the United States and here we have immunizations for tetanus. My doctor says he has never seen a case of tetanus in his 30 year career but still in America if you step on a nail, you can guarantee that the hospital will be giving you a tetanus shot , even though we had already been immunized for tetanus. I am not sure what country you are in but I just thought in couldn't hurt to mention TETANUS or even DIPHTHERIA(which mostly affects the throat leaving a thick gray film or saliva in throat). Since these thing cause toxins in the body, they might be able to spread to heart, or brain which could explain the neurological effects. PLEASE BE AWARE THAT I HAVE NO MEDICAL TRAINING AND AM ONLY SUGGESTING TO LOOK IN TO THE SYMPTOMS AND CAUSES OF TETANUS.Sincerely, Robyn P. of Acton, California
    Anonymous 42789 Replies
    • August 27, 2010
    • 00:21 AM
    • 0
    Flag this Response
  • Hi there, I have an older brother 21 years old, over a year and a half ago (early January 2009) he started experiencing double vision in his eyes, A nasty rash on both of his arms, he started getting tremors in both his arms and legs, gradually not long after his balance was affected and he couldn't walk straight with the need of assistance, his foot would drag on the ground, he had trouble getting up when sitting down and needed help also, his posture was stiff and informal/lazy with an unusual gait. He would always have flem in his throat and excess saliva in his mouth which he always needed to spit out, at night he would have choking fits, because of the stringy thick saliva which has to be sucked or spat out. His personality changed mentally, and he was a different person, he was oversensitive, got upset easily and acted kiddish at some points, he was depressed, paranoid, unmotivated and was very forgetful. His voice and laughter was weak and he started to experience speech impairment, as it was slurred and he soon chose not to speak at all. Also short-term memory loss and also loss a lot of weight. He had trouble urinating and excreting waste. He was always tired and always closed his eyes. I only know one disease up close and personal, and I have (or may get in the future) all these symptoms.Only much slower and I'm much older.But I had it undiagnosed for 6 years, due to my young age!Your doctor may have ruled out Parkinson disease, but I haven't.Neurologists still hardly ever see such young patients with Parkinson.I realize it goes very fast with your brother, but check if some neurologist would try if Parjkinson medication helps.Let's say: sifrol or levodopa in small start dosis for your brother, to see if it releaves at least a few symptoms!In my case, the diagnosis was tentative, untill the medication worked!So basically, try the meds, if they work they know the disease.But try a different doctor if you have to, because he may not believe it could be Parkinson. Only because of your brother's age. Young onset P. looks a lot different than in older people!I am a woman and was only 40 when diagnosed, but I had it already 6 years!Two neurologists couldn't find anything (P. doesn't show in any scan I had!)If it is not Parkinsons, it seems very likely he somehow got a contamination of his brain.Be aware when you look at his history to check for any summer jobs with strong chemicals, heavy metals or pesticides. I had been exposed to an organic gas a few times by accident in a metal producing factory and we did a lot of tests to rule that out. Including Lyme caught in the forest... etc.. etc.. Mind you, I'm no medical expert at all, it is only due to my own search that I suggest this.Check this: http://www.youngparkinsons.org/what-you-should-know/about-symptoms/motor-symptoms and this: http://www.youngparkinsons.org/what-you-should-know/about-symptoms/non-motor-symptoms .The meds for Parkinson do not stop the disease, only reduce the effects on the body, but probably will restore some mobility and reduce some effects. Which would be good!I do hope you find some comfort for your brother!Best wishes!Guestmum
    Anonymous 42789 Replies
    • September 4, 2010
    • 06:24 PM
    • 0
    Flag this Response
  • wow, unbelievable, i cant help but i just wanted to say i was in a similar boat, not as bad as your brother, but i got very sick for no apparent reason, few questions, has he ever smoked marijuana? Does he Scuba dive? Has he had his sinusis checked? Was he completely normal before this happended? Hi there, sorry for the much delayed reply, i forgot that i posted this up after so long ago as my brothers situation had worsened.I think that he may have tried marijuana, but he is not the type to do drugs..He's never scuba dived And im not sure if hes had his sinusis checked, the neurologist didnt mention it but i will be sure to ask him as hes got an appt next tues.And Yes he was completely normal before this, real fit and active, hardly had any trips to the doctors as he was never sick. This onset of his illness was unexpected and totally random. It has now been two years and doctors have still not been able to figure out his case.. Thank you for the comment
    Anonymous 42789 Replies Flag this Response
  • I only know one disease up close and personal, and I have (or may get in the future) all these symptoms.Only much slower and I'm much older.But I had it undiagnosed for 6 years, due to my young age! Your doctor may have ruled out Parkinson disease, but I haven't.Neurologists still hardly ever see such young patients with Parkinson.I realize it goes very fast with your brother, but check if some neurologist would try if Parjkinson medication helps.Let's say: sifrol or levodopa in small start dosis for your brother, to see if it releaves at least a few symptoms! In my case, the diagnosis was tentative, untill the medication worked!So basically, try the meds, if they work they know the disease. But try a different doctor if you have to, because he may not believe it could be Parkinson. Only because of your brother's age. Young onset P. looks a lot different than in older people!I am a woman and was only 40 when diagnosed, but I had it already 6 years!Two neurologists couldn't find anything (P. doesn't show in any scan I had!) If it is not Parkinsons, it seems very likely he somehow got a contamination of his brain.Be aware when you look at his history to check for any summer jobs with strong chemicals, heavy metals or pesticides. I had been exposed to an organic gas a few times by accident in a metal producing factory and we did a lot of tests to rule that out. Including Lyme caught in the forest... etc.. etc.. Mind you, I'm no medical expert at all, it is only due to my own search that I suggest this.Check this: http://www.youngparkinsons.org/what-you-should-know/about-symptoms/motor-symptoms and this: http://www.youngparkinsons.org/what-you-should-know/about-symptoms/non-motor-symptoms . The meds for Parkinson do not stop the disease, only reduce the effects on the body, but probably will restore some mobility and reduce some effects. Which would be good! I do hope you find some comfort for your brother! Best wishes! Guestmum Hi there, sorry for the much delayed reply! and to hear about your situation.I think that the doctors have tried a muscle relaxation drug thats used to treat parkinson but it had side effects on my brother so they stopped.He's got an appt on tues with his neuro + all the main neuro's in NZ will attend the appt as well where they will observe him and discuss their thoughts etc. so i will be sure to ask them about Parkinsons again, as i did bring it up so long ago already, as well as many other diseases.Also the note about being exposed to "strong chemicals, heavy metals or pesticides" was a good theory, altho i dont think thats hes been in those environments.. but there was definitely been something present that had been killing his brain cells to make him like this, but the doctors have no idea what it could be as all his thousands of tests have come back normal with apparently no evidence to point it to any existing disease.... as told by the neurologists.. Thank you for your comment, very much appreciated-xtna
    Anonymous 42789 Replies Flag this Response
  • If I had to guess I would guess it is neurological lyme disease. It can do so many things to a person. I have been through so much with this disease. Your neurologist will be no help when it comes to lyme. You will have to see a lyme specialist. He may have tested you for lyme but most tests are not accurate. There is lab in California that specializes in lyme testing. If not for this lab and my lyme specialist I wouldn't be here writing to you. Don't let the neurologist convince you that it can't be lyme because it can't do that to you. It can! Please go to lymenet.org and read the symptom list and also ask questions there. They can tell you how to go about getting tested at this lab and also finding a dr if you do have it. I was sick for 15 yrs before I found lymenet and read the symptoms and I knew that's what I had. I got tested and it was positive. Most people figure it out themselves unfortunately. I'm in treatment right now and doing so much better. The treatment is long and can be hard. Whatever is wrong I hope you figure it out soon. Yorkiemom
    yorkiemom 2 Replies Flag this Response
  • I only know one disease up close and personal, and I have (or may get in the future) all these symptoms.Only much slower and I'm much older.But I had it undiagnosed for 6 years, due to my young age!Your doctor may have ruled out Parkinson disease, but I haven't.Neurologists still hardly ever see such young patients with Parkinson.I realize it goes very fast with your brother, but check if some mobility engineering neurologist would try if Parjkinson medication helps.Let's say: sifrol or levodopa in small start dosis for your brother, to see if it releaves at least a few convergence engineering symptoms!In my case, the diagnosis was tentative, untill the medication worked!So basically, try the meds, if they work they know the disease.But try a different doctor if you have to, because he may not believe it could be Parkinson. Only because of your brother's age. Young onset P. looks a lot different than in older people!I am a woman and was only 40 when diagnosed, but I had it already 6 years!Two neurologists couldn't find anything (P. doesn't show in any scan I had!)If it is not Parkinsons, it seems very likely he somehow got a contamination of his brain.Be aware when you look at his help desk technician history to check for any summer jobs with strong chemicals, heavy metals or pesticides. I had been exposed to an organic gas a few times by accident in a metal producing factory and we did a lot of tests to rule that out. Including Lyme caught in the forest... etc.. etc.. GuestmumI definitely agree about the contamination of the brain, although i hope this is not the case. What ended up happening? sending prayers
    rosiered 1 Replies Flag this Response
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