Discussions By Condition: Neck conditions

torticollis

Posted In: Neck conditions 2 Replies
  • Posted By: S Craft
  • November 26, 2006
  • 11:04 AM

My 15 year old has left sided torticollis probably since birth. We have seen orthopaedic surgeons who suggested physiotherapy and also a neurologist to rule out cevical dystonia. I would like to know if anyone has had surgery to lenghthen the muscle or Botulinum treatment. Does anyone know of anyone offering these treatments in the south east of England?
I don't seem to be able to get in touch with the right specialist via previous medical routes.

Thanks
Mrs. S Craft

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2 Replies:

  • Ask this question at the dystonia bulletin board. There are several participants from England, some with CD and some who get Botox.http://www.dystonia-bb.org/forums/asd/
    Anonymous 42789 Replies
    • November 28, 2006
    • 09:55 PM
    • 0
    Flag this Response
  • Hi has your daughter been ruled out for grisel's syndrome.
    Anonymous 42789 Replies Flag this Response
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