I am writing this in regards to what is going on with my husband. We have been dealing with this for several years. What we know is that it all started with his feet hurting, painful to stand at work/sore to touch the skin. Then he started having what he describes as charlie horses in random muscles throughout his body(calf, arm, back, neck, leg). Then he started having sore muscles and joints that would swell his skin would hurt when lightly touched. Before a joint would start bugging him he would have a rash that covered the whole area usually a day or 2 before that joint would start hurting. He started having problems sleeping at night due to the pain. Right now we are at the point where everything hurts all day long. He describes the pain at a level of a 7 or 8. About 3 months ago he started having a tingling feeling in all of his torso/chest and both of his arms from wrist to shoulders. At the same time he started having spells where he felt sort of dizzy just walking from one room to another. In the last month I noticed that at night when he is asleep his body has random movement. A leg or a arm will ***k(not violent, just enough to wake me) his body does this all night long every few seconds to every few minutes. Then during the day he can sit down and relax completely and you can see his muscles have spasms/twitches or contract and uncontract, again not voilently. It is very weird to watch, it is all over his body. You can look at a leg and see it then look at his arm and it is also.
Off the top of my head hear are some facts:
Normal blood pressure
Muscle and joint stiffness and soreness
skin sensitive to touch(painful) with no rash
Tingling is chest and arms
Doctors and tests
Rhuematoid Doctor - RA factor normal
Nuerologist - Cat Scan, MRI, muscle test - all "normal"
Regular Family doctor has ran so many blood tests the ladies in the lab know us by first name.
Any ideas, specialist suggestions would be great. We are at a breaking point....in our 30's and have to sleep in different beds!! He is always in pain, medications take the edge off but he still hurts. It is slowly getting worse and we have no answers. One doctor said "well aren't you a mystery" then laughed. I am so frustrated and nothing about this is funny to us. Thanks for any help!