Discussions By Condition: Muscle conditions

undiagnosed hip pain in 7 year old girl

Posted In: Muscle conditions 8 Replies
  • Posted By: Anonymous
  • April 6, 2009
  • 00:50 PM

hi
our daughter has had hip pain (felt in groin) for 15 months (mainly in one side, sometimes both) as well as some knee/thigh/occasional neck pain
it started out of the blue and has never gone away
has had whole range of investigations (x-rays, MRI, uss, bloods) - all normal
originally transient synovitis suggested but as has gone on so long, was referred to a rheumatologist who said could be possible juvenile arthritis before we moved countries, but new GP reluctant to investigate this further as results were previously normal
has been found to have mild scoliosis (3%) and seems to walk with uneven gait (+ feet point outwards)
pain present pretty much all the time on movement, although worse when she has flare ups - then she walks painfully with a limp, and can find it difficult to move leg
she cannot comfortably cross her legs
pain relief only mildly effective
we have considered a psychological element in our attempts to make sense of it but having witnessed her in pain - hard to see that it is totally made up - even at school teachers have told us how it affects her

any thoughts gratefully received - we have found the medical profession recently to be quite irritated by us (and the problem)
we just feel not entirely convinced it is caused by nothing at all!

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8 Replies:

  • hiour daughter has had hip pain (felt in groin) for 15 months (mainly in one side, sometimes both) as well as some knee/thigh/occasional neck painit started out of the blue and has never gone awayhas had whole range of investigations (x-rays, MRI, uss, bloods) - all normaloriginally transient synovitis suggested but as has gone on so long, was referred to a rheumatologist who said could be possible juvenile arthritis before we moved countries, but new GP reluctant to investigate this further as results were previously normalhas been found to have mild scoliosis (3%) and seems to walk with uneven gait (+ feet point outwards)pain present pretty much all the time on movement, although worse when she has flare ups - then she walks painfully with a limp, and can find it difficult to move legshe cannot comfortably cross her legspain relief only mildly effectivewe have considered a psychological element in our attempts to make sense of it but having witnessed her in pain - hard to see that it is totally made up - even at school teachers have told us how it affects her any thoughts gratefully received - we have found the medical profession recently to be quite irritated by us (and the problem) we just feel not entirely convinced it is caused by nothing at all!Take her to an orthopedic. This could be several things. They can order a MRI that will show any bone or nerve issues even arthritis
    Anonymous 42789 Replies
    • November 10, 2009
    • 09:29 PM
    • 0
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  • Your 7 year old's hip issues sound so very similar to those of my 8 year old. Transient synovitis diagnosis at 2 1/2 yrs, followed by recurrent pain, limp, pain at morn, day or night, no fever or rash/swelling, but pain on one side (rarely the other) of hip. Flare-ups often caused by physical exertion. Pain can cause her to wake up crying at night. Normal x-rays and blood work (CBC, ESR, CRP, checked for lupus, leukemia, etc.). Referred to an orthopedic surgeon who them referred us to rheumatology. Still waiting for that appt. Physiotherapist and chiropodist see evidence of hypermobility and muscle weakness. She now has orthotics and is attending physiotherapy but the pain persists. It is so prevalent that she can't run normally.If you see this post, please write with follow-up on your daughter's condition. I have never heard of another case like our daughter's.
    Anonymous 42789 Replies Flag this Response
  • Your 7 year old's hip issues sound so very similar to those of my 8 year old. Transient synovitis diagnosis at 2 1/2 yrs, followed by recurrent pain, limp, pain at morn, day or night, no fever or rash/swelling, but pain on one side (rarely the other) of hip. Flare-ups often caused by physical exertion. Pain can cause her to wake up crying at night. Normal x-rays and blood work (CBC, ESR, CRP, checked for lupus, leukemia, etc.). Referred to an orthopedic surgeon who them referred us to rheumatology. Still waiting for that appt. Physiotherapist and chiropodist see evidence of hypermobility and muscle weakness. She now has orthotics and is attending physiotherapy but the pain persists. It is so prevalent that she can't run normally.If you see this post, please write with follow-up on your daughter's condition. I have never heard of another case like our daughter's.My 3 yr old son was diagnosed with Toxic Synovitis a month ago. He is now having the same type of pain in his shoulder. Now what do we do?
    Anonymous 42789 Replies Flag this Response
  • hiour daughter has had hip pain (felt in groin) for 15 months (mainly in one side, sometimes both) as well as some knee/thigh/occasional neck painit started out of the blue and has never gone awayhas had whole range of investigations (x-rays, MRI, uss, bloods) - all normaloriginally transient synovitis suggested but as has gone on so long, was referred to a rheumatologist who said could be possible juvenile arthritis before we moved countries, but new GP reluctant to investigate this further as results were previously normalhas been found to have mild scoliosis (3%) and seems to walk with uneven gait (+ feet point outwards)pain present pretty much all the time on movement, although worse when she has flare ups - then she walks painfully with a limp, and can find it difficult to move legshe cannot comfortably cross her legspain relief only mildly effectivewe have considered a psychological element in our attempts to make sense of it but having witnessed her in pain - hard to see that it is totally made up - even at school teachers have told us how it affects her any thoughts gratefully received - we have found the medical profession recently to be quite irritated by us (and the problem) we just feel not entirely convinced it is caused by nothing at all! hi there i read your story about your girl and it felt like i was reading about my 10 year old girl!!! my daughter started with a click in her hip one night then the next day pain got worse and travelled down her leg to her knee she couldnt walk on it hurt too much, alot has happened since then shes been in and out of hospital one we trying to get answers and two the pain too much for her to handle and myself to handle! shes had it for 6 weeks now! we thought artheritis and had blood tests mri and xrays etc and seen peditrician and ortherpedic and we have now been told its not artheritis and its inflamation in the hip and it travelled down to foot and their was alittle bit of fluid on hip and that caused the reaction to rest of leg there is nothing they can do for it it could take 6 months to heal or less or longer and shes to take nurofen for pain which doesnt seem to help! and i feel angry because i feel we are still no better off and when she gets out of hospital we have to still cope with seeing her in this much pain! i still think theres something more to it but trying to be positive and help her on the road to recovery and telling her that it will get better! id love to know how you are getting on and chat! and im sorry to hear that you have been through this but helps me to know im not the only one!
    katdogg 2 Replies
    • November 13, 2010
    • 09:44 AM
    • 0
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  • hi there i read your story about your girl and it felt like i was reading about my 10 year old girl!!! my daughter started with a click in her hip one night then the next day pain got worse and travelled down her leg to her knee she couldnt walk on it hurt too much, alot has happened since then shes been in and out of hospital one we trying to get answers and two the pain too much for her to handle and myself to handle! shes had it for 6 weeks now! we thought artheritis and had blood tests mri and xrays etc and seen peditrician and ortherpedic and we have now been told its not artheritis and its inflamation in the hip and it travelled down to foot and their was alittle bit of fluid on hip and that caused the reaction to rest of leg there is nothing they can do for it it could take 6 months to heal or less or longer and shes to take nurofen for pain which doesnt seem to help! and i feel angry because i feel we are still no better off and when she gets out of hospital we have to still cope with seeing her in this much pain! i still think theres something more to it but trying to be positive and help her on the road to recovery and telling her that it will get better! id love to know how you are getting on and chat! and im sorry to hear that you have been through this but helps me to know im not the only one!also they thought it was transient synosis(sorry my spelling shocking)as well but as it has gone on to long its now not! also she has been using crutches to get around.
    katdogg 2 Replies
    • November 13, 2010
    • 09:50 AM
    • 0
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  • also they thought it was transient synosis(sorry my spelling shocking)as well but as it has gone on to long its now not! also she has been using crutches to get around.Our daughter has had similar pains for the last nine weeks and we are very frustrated with the whole thing. We are just wondering how you have got on since your post.
    Anonymous 42789 Replies Flag this Response
  • HAS ANYONE GOT ANY FURTHER DIAGNOSIS ON THEIR CHILDREN CHRONIC TRANSIENT SYNOVITIS.Apparently when there is chronic transient synovitis, the synovitis is then a symptom of some underlying disease.
    Anonymous 1 Replies
    • August 16, 2014
    • 02:05 PM
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  • If any one has gotten an answer on their daughters condition please let me know. My daughter is about to turn 10 and is going through the same thing described here. X-rays nothing but MRI showed fluid buildup around the hip. Ortho has now referred us to rheumatologist so now just awaiting appt. It seems that the pain is worsened with stress and she does have anxiety. Just a wonder if anyone's children were on ADHD meds? Any help would be great as I fell helpless for my daughter at this time.
    Anonymous 1 Replies
    • October 2, 2015
    • 06:15 PM
    • 0
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