Discussions By Condition: Muscle conditions

Trouble walking, can not do squats

Posted In: Muscle conditions 8 Replies
  • Posted By: Anonymous
  • February 8, 2008
  • 06:04 PM

I have trouble walking. My leg muscles are stiff, heavy and hard to move. They are very sore too. I have severe muscle stiffness in the mornings, and after sitting. It is very hard to move for a few minutes. I walk with a stiff, heavy gait. It is hard to lift my legs, they are SO heavy and stiff and sore! And I can not stand too long (about 20 minutes, tops!) This has gotten progressively worse, in the last year. My present doctor is retiring, and he did not diagnose me. He sent me to a physical therapist, and hoped she would figure it out. The only tests that were abnormal were an ANA by EIA test method, which was low positive. Also an MRI showed multi-level degenerative disc disease, but the doctor said he did not think it was causing my symptoms. At my appointment with the physical therapist, she said I was 46% disabled, but DID NOT KNOW WHY!!! I could not walk on my toes, or do any squats at all, and I could not stand on one leg. My whole upper back is stiff, and I could not get up off the examining table. Do I need to see a neurologist, or a spine doctor? Could I have nerve damage? I also get rashes on my chest every day , in the evenings. They look pale purple and itch. The rash lasts less than an hour and ALWAYS comes in the evening, or when I take a bath and the room is steamy! The doctor never saw it, because it does not appear in the day! I think I have some sort of systemic disease. And, I am 1/1/2 inches shorter than in 2003. Because the paper from my visits shows 5"5" in 2003, and 5' 3 1/2" in 2007! I am a female-age 55.

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8 Replies:

  • Hi jjean you have a pretty complicated medical situation, first of all i know i have no medical qualifications whatsoever, but why they reckon your degenerative disk disease is not connected in some way with your legs seems a bit strange, can you post your mri results, maybe the report is not that bad. I think that your next step which you already seem to have realized is to see some kind of specialist it doesnt matter which kind really if you see a neurologist they may say you need a orthopedic surgeon and if you see a orthopedic surgeon they will say you need a neurologist, you need to be patient and persistent as long as they are good they will refer you to some else if they think its appropriate. Your situation reminds me a little bit of mine i have both leg and back problems and i am very stiff all the time, doctors find it incredibly baffling, all they can say i where is the pain and when do you get the pain, i say i am not in much pain as long as i spend most of my day walking and stretching i can stay pain free, they look very disappointed and then write down suffering from low back pain on my file sorry i cant help more good luck.
    Anonymous 42789 Replies
    • February 10, 2008
    • 01:16 PM
    • 0
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  • Thank you. I was researching neurological symptoms, and think I might have nerve compression highee up in my back. I also asked a question about not being able to kneel down and get up, or stand on my toes or stand on one leg, on another website and paid $15.00, because a real MD is suppossed to reply. The doctor who replied said I needed to get an MRI of my brain because if I can not do squats, that means something is wrong wirh my cerribellum. Also, he said I should see a neurologist. But my doctor will not listen to me. I think I have some sort of muscular disease like MD. Or maybe MS. What kinds of tests do they use to diagnose this?
    Anonymous 42789 Replies
    • February 12, 2008
    • 06:23 PM
    • 0
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  • to test for MD and other neurological disease they can do a muscle biopsy, some kind of genetic test, or they can test the level of Creatine kinase (CK) in the blood large amouts can indicate disease. MS is harder to diagnose, it is more a process of elimination that takes time.good luck jjean
    Anonymous 42789 Replies
    • February 14, 2008
    • 08:03 AM
    • 0
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  • hi, i experience a lot of the symptoms you have, i was eventually diagnosed with chronic epstein barr syndrome which caused nerve damage and eventually led to fibromyalgia. see if your md will do an epstein barr titre, not just a postivie/negative result (most people will test positive because they have had this virus and thought it was just the flu) my titre was found to be rising twofold every four weeks for over six months. for some reason my body was unable to fight it off and i developed resulting neurological damage post viral fatigue syndrome. my 13 year old daughter caught it from me and spent last summer recovering from mono. good luck
    cherylanne 13 Replies Flag this Response
  • Thank you all so much...:)Replying to everyone: To cherylanne, I never thought of epstein barr syndrome...but I DO feel ill and tired all the tims...so I will ask my doctor about this...To oscar77, today I went to a NEW rheumatologist and he DID order a test for CK, and ALDOLASE...so maybe he is finally on the right track!!!...your symptoms are the opposite of mine...my legs hurt when I walk, and your pain seems to go away when you walk..so all I can say is keep searching for answers...look up your symptoms on a search engine...look up muscle symptoms...i do not think your doctors have not found the answer yet!
    jeanill 24 Replies Flag this Response
  • Actually your post is could be close. I think EBV was ruled out of the primary cause of CFS (does not mean its 100 out)There is mounting evidence that many autoimmune diseases are started by a virus. They would like to think its a hit and run, meaning the post syndrome is purely autoimmune. If this were the case none of the patients would be expected to show improvement on antivirals. The truth is some of them do improve. Not all.Its probably multifactorial involving more than one bug. The damage is mostly caused from the immune system but something is triggering the immune system. For some reason the reaction in some people is more dramatic vs others.A defect in the immune system probably exists. The damage is real and the treatment is some cases is antivirals which do not have any anti inflammatory effect thus would be expected to offer no improvement if the disease was pure autoimmune.There are tests which can give a Dr. some idea of how much inflammation is going on. They are non specific and usually done in experimental studies. They involve the compliment, cytokines etc. C-reactive protein is a bit more common as there is some link with cardiovascular.As far as which Dr. to see? Sort of a crap shoot. It depends on the Dr. I know some infectious disease Drs that follow lyme protocols to that level where they fit in with older guidelines I know some that don't care about the controversy and look at both Elisa and Western Blots.Within the infectious disease Drs. there are some who will dig further looking for a infectious cause. There are probably some neurologists that feel the same. Not all of them.Some of these Drs. might be considered Cowboys, or maybe working on the bleeding edge, maybe making associations that are not yet mainstream.I suppose for patients that are ill and not getting better these Drs. are a stop that may lead to some relief. Saying something is all in your head is a cop out. Even if it were true what trigger this event? There is always a cause and effect. All in your head is actually a very weak diagnosis with less objective science behind it than newer theories on infectious causes of many autoimmune diseases.hi, i experience a lot of the symptoms you have, i was eventually diagnosed with chronic epstein barr syndrome which caused nerve damage and eventually led to fibromyalgia. see if your md will do an epstein barr titre, not just a postivie/negative result (most people will test positive because they have had this virus and thought it was just the flu) my titre was found to be rising twofold every four weeks for over six months. for some reason my body was unable to fight it off and i developed resulting neurological damage post viral fatigue syndrome. my 13 year old daughter caught it from me and spent last summer recovering from mono. good luck
    rjonesod 5 Replies
    • September 18, 2010
    • 01:16 AM
    • 0
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  • Also be checked for Lyme Disease.
    Anonymous 42789 Replies Flag this Response
  • Hi, I am a physical therapist. I must say that your symptoms are rather unique. One thing to consider is that your leg symptoms and rash may be two completely seperate issues. Often when symptoms occur at the same time we link them together. I would not say that lumbar DDD is completely out of the question, although it sounds more like spinal stenosis if you ask me. If you were my patient I would suggest you see a neurologist but one that has a strong background in treating spine patients. I would also suggest seeing a dermatologist regarding the rash. For info. on spinal stenosis you can read more here: http://www.joint-pain-solutions.com/spinal-stenosis.html Good luck. ~JTrempe PT, ATC
    JTrempe 101 Replies Flag this Response
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