Discussions By Condition: Muscle conditions

treatment options

Posted In: Muscle conditions 1 Replies
  • Posted By: Anonymous
  • June 11, 2006
  • 03:39 AM

I have recently been diagnosed with dertmatomyositis after intially being told the rash I had was pityriasis lichenoides. This first diagnosis came with the advice that sun exposure may help the condition. Instead the sun was actually agravating it! I have no muscular symptoms just the nasty skin rash. The diagnosing dermatologist has told me to stay out of the sun and given me a prednisone ointment to apply topically when the rash becomes to intense. While the ointment is making the rash bearable it certainly seems to still be progressing. I'm not keen on taking immunomodulating or cortisone drugs and was wondering if anyone has had any results with other therapies or medications. My thoughts are that because the onset of this seemed to occur after a throat infection I had, that there is a bacterial, viral or parastic reason for the manifestation of the dermatomyositis and that this still may need treating. Simplistic notion maybe but I think it beats treating the symptoms only & at the moment that is not being done well or effectively either. I would be keen to hear others' experiences. Going to a naturopath soon so will post any ideas or results that come out of that.

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  • My Niece 19, Was Diagnosed With Dermatomyositis In May. She Started Out With Being Tired, Couldn't Raise Her Arms To Washed Hair, Kept Getting Weaker, So They Took Her Out Of School And Took Her To Wvu, Where She Was Diagnosed. They Started Her On Steroids To Get It Under Control. She Is Back In Hospital And Has Been For Going On 8 Weeks This Time, And Has Had Every, I Mean Every Sympton There Is With It. She Is Really Sick, She Could Not Even Swallow A Spoon Of Water Her Musles Are So Week. She Has A Feeder Tube In, Had To Be Put On A Ventilator, And Not A Trake, Every Time They Had To Give Her Something To Treat One Thing Another Thing Would Go Wrong. She Can't Do Anything For Herself, Can Only Raise Her Hands Very Little. Before Easter She Could Lift Weights About 250 Lbs. Not She Can't Do One Thing For Herself. You Need To Get To A Dr. Right Now!!! Hope This Helps Some.
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