Hello all, Let me first say I have posted a similar post to this in another area on the board...not to abuse, but only to find the right place to try to muster up a response...this is a Neurological/nerve disorder...an Auto immune disorder, and a disorder with the muscles.
I have been searching high and low for others who have been diagnosed with SMS. I would like to know more about this disease in real life terms, as opposed to what I read on the Net.
My symptoms range from ringing in the ears, sharp shooting/stabbing pains, electric painful spasms, vision disturbances, pain & Stiff ness, gait/balance problems, muscle weakness, tingling, twitches,Abnormal posture (lordosis) and Hyper startle reflex to name a few.
I started out with a complaint of chronic back pain from which I only got partial releif of the aching if I were to lay down, I took OTC pain relievers, I saw a chiropractor for extended periods of time with no real relief. My neck used to hurt so much, I felt that I couldnt support the weight of my head. Then lastly, I couldnt get up off the floor, or rise from a low seated position, or the bed. I tried to do sit ups (before the real pain set in) and it felt as though my back was braced to the ground and wouldnt "allow" me to raise up...not even for a crunch??? I thought I damaged my back some how, because the pain seemed to be localized there and I have so much more to tell.
I was thought to have possible pinched nerve, MS,lupus, and others but after several MRI's, EMG's, and the other neuro test....I was found to have elevated GAD antibodies....and given the wierd diagnosis of Stiff mans syndrome, aka Stiff persons syndrome, aka Moersch Woltman syndrome.
This is thought to be an autoimmune disorder. SMS is a chronic, progressive (variable) disorder of the central nervous system having no known cause, or cure I am currently being treated with Baclofen and Vicoden which gives me 80% relief from symptoms....but does not improve my balance or gait.
IS there any one else out there who can share anything with me? firstname.lastname@example.org