Discussions By Condition: Muscle conditions

Stiff mans disease -- help need doctor

Posted In: Muscle conditions 2 Replies
  • Posted By: erinsmith92
  • November 30, 2008
  • 10:26 PM

My husband has been diagnosed with stiff mans disease and his nuerologist is about to give up on him. After years of severe muscle contractions and different medications he is getting worse and nothing seems to be helping we need a doctor who can help him get better. It has gotten so bad that we are having to travel to Houston Texas from Fort Worth to see a doctor who can do back surgery to untangle the muscles and nerves in his back because of so many muscle contractions. This is a very rare disease and we need help from someone to get these contractions under control so he can have a half way decent life.

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  • I posted my experiences and what I have found to help under muscle conditions. I also have Stiff Person Syndrome. Look for my post and read. Also has my email address on there if you would like to know which neurologist I see. He has three of us and is very good.
    texasannie 11 Replies
    • December 4, 2008
    • 06:58 PM
    • 0
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  • Mam, I'm going through the same thing, and the only thing that I've found to 'help' with the contractions is Diazepam (Valium) in large dosages. And that doesn't work all the times. We do have a few of us that talk about our conditions. My e-mail is dlmontyblues@aol.com Write if you'd like. Good luck, Dave,PS. there is a Dr. In OK city that is doing work on this. I am in AR. so any place for me to go is going to be a drive. Please forward what you find out from others. I'm also in need of a Dr. that works with his. I'm on Disability, and sure could use a Dr. that knows what he's doing, or at least takes interest in this. Around here, all we have are a bunch of 'Hicks'.
    DLMonty 3 Replies
    • December 13, 2008
    • 02:16 PM
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