Discussions By Condition: Muscle conditions

Sever Back Pain/Possible Misdiagnosis, I need Help!

Posted In: Muscle conditions 3 Replies
  • Posted By: Anonymous
  • October 2, 2007
  • 11:54 PM

About 5 years ago I started experiencing back pain, muscle spasm/tightness and stiffness/decreased range of motion. There was no inciting incident that started it all, it just started. The pain has gotten gradually worse. The first doctor told me to change my mattress and after another year finally sent me to PT. That helped while I was there but not after. After changing docs I went on Vicodin eventually reaching 200 per month to relieve the pain. I have tried Myobloc (Botox) injections directly into the trigger points using an EMG machine and have not received much relief. I visit an Acupuncturist once a week and also take herbs he has prescribed. The Neurosurgeon diagnosed me with Fibromyalgia/Myofasial Pain Syndrome. He said is was MPS because it was only in my back. I was then sent to a Pain Mgmt Doctor. He put me on 100mcg Fentanyl patches which help regulate the pain but don't do anything during episodes of breakthrough pain. I also take 2700mg of Neurontin per day and was on Topomax but couldn't handle the side effects. I have taken so many medications over the last 5 1/2 years I can't remember them all. All of my MRIs and EMGs have come back normal. My blood and urine tests also have come back normal. I have not have a pain free day since June 02. Every day I think about how to handle the pain that day and adjust accordingly. Excercise helps but when the pain is too intense I can't do it. The acupuncture helps with the tension and stiffness but not really with the pain for more than maybe a day. To this point the only relief I have gotten is from narcotics. I am 28 and have a baby on the way and am fighting off depression from my disorder...whatever it may be. I can't let the pain beat me, I won't let it. I have to figure out what it is, I just don't think it is Fibromyalgia or MPS. I don't have all the symptoms and it is localized to my Upper Lumbar and Thoracic regions of the back. Does this sound familiar to anyone? Has anyone had this and figured out what it is? Any suggestions? I need them.


P.S> When I don't take the narcotics the pain is so intense I am bedridden.

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3 Replies:

  • I have had severe back pain and had surgery 2 yrs ago. Prior to my diagnosis (severe disc bulge 16mm) I read and tried many alternative treatments. Not suggested since you dont have any evidence in MRI etc. You may try to look back at the onset not for a phsical event but an emotional event. What happened, or took place at that time? Back pain when caused by reasons unknown is usually mucle tension coming from stress (consiously or not). Biofeedback, meditation and working with a good therapist to dig into the emotional cause may find your answer. I wish you good luck....
    Anonymous 42789 Replies
    • October 6, 2007
    • 04:05 AM
    • 0
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  • I have had the suggestion that perhaps there was some emotional trigger to my pain starting. I have to disagree though. I am truly happier than I have ever been and was VERY happy then. I had just started to fall in love with my future wife and that is a very joyous time in anyones life. I go on Tuesday for a second opinion but that is all I have to hope for right now. Does this sound like Fybro to anyone? If no than what about Myofasial Pain Syndrome?THanks,Ian
    Anonymous 42789 Replies
    • October 12, 2007
    • 10:12 PM
    • 0
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  • Sorry to hear about your ongoing back trouble. I can relate! Since you are on 2700mg of Nuerontin-have you heard about Lyrica? Many people are having allot of success with this new medication. It is still a nerve blocker with a pain agent in a more concentrated dose, usually 100-300mg a day. I used to be on 1800mg of Nuerontin and am now on 300mg of Lyrica. Less side effects too! Tramadol/Ultram has also proven very helpful. Have you ever tried a TENS unit? Electrical pulses that help reroute pain signals. The TENS unit has benifits too. No side effects or weight gain yeah!$issues? Ultram is on generic list at Wal-mart $4. Lyrica has hardship program- Connection to Care Program. TENS unit can be prescribed by physical therapy and paid for by most insurances. Some places will loan or rent you a unit to see if you will benefit from this therapy. Lots of Luck Becca318
    Becca318 13 Replies
    • January 2, 2009
    • 01:38 PM
    • 0
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