As I said in my title, I am recently dx'd with PMR. I also have Pulmonary Hypertension caused by chronic pulmonary emboli. I am a retired RN with 42+ years of experience, mostly in crital care areas. I am blessed with above average intelligence and pain management has been my specialty for many years.
I first got sick with the PH in 2009. Since then things have been up and down, mostly down. I had WLS in 2010 and was able to lose 130#s. I have kept that off. I need to use O2 24/7. I was started on a new drug, in January of this year, called Adempas. It has been a miracle drug for me. I now feel better than I have in over 30 years! PH is one of those "rare" diseases for which there is no cure. But Adempas has given me my life back.
I was doing so well and then in April things started going south again for me. I had to have emergency surgery to have my gallbladder removed. Did fine with that, no problems. But it was while I was in hospital recovering that I started having symptoms of PMR. My PMD tested me for auto immune dx but labs came back negative. I continued to be in unbearable pain and he retested me and viola, my ESR and CRP were through the roof. Hence the dx of PMR. I was started on Predinose at a high dose and was being titrated down every 5 days, when I developed the worst case of shingles I've ever had ( had them twice before). The pain this time was excruciating. On Saturday I had reached full crisis mode and felt if I didn't get some relief of the pain I was seriously considering harming myself. Thank God I did not act on this impulse and with some much needed restful sleep and medication I passed the crisis and today feel so much better. I know this is just the start of my recovery and that it may take years or I may never fully recover from either the PMR and/or the PHN from the shingles. I looked for a forum that had others with my same situation and all I could find was one in the UK. I signed up and have received several repies already.
Today I just happened to find this site and decided to register, so here I am. My name is Christine and I have an auto immune disease!
Know the five types of psoriasis and how to spot flares.
Newer diabetes treatments can suppress appetite and aid weight loss.
Try these tips to get your salivary glands back into action.
Constipation is a common side effect of opioid and narcotic pain medicines.
Is it sensitive skin or something else?