Discussions By Condition: Muscle conditions

Possible Polymyositis?

Posted In: Muscle conditions 1 Replies
  • Posted By: Anonymous
  • February 1, 2007
  • 05:38 AM

I am a 52 year old female. Last November I developed an extremely sore left shoulder. I went to my Orthopedic Dr and asked if I could have a shot (thinking bursitis). He told me we would try the shot, but it might be a torn rotator cuff. The shot did not help. I waited a bit and it finally eased up a lot, then it hit me again, this time in both shoulders, both hips, and both thighs.. Also my right hand is affected, however I do not know if that is related. The wrist of the hand feels more like it is in the bone than the muscle, and it pops when I move it. That pain is mostly in my wrist, but does go into my ring and middle finger.

Now the sore muscle pain has subsided somewaht again, although it has never left me completely. On a scale from 1-10, with 10 being the worst, it is now probably about a 3 unless I reach behind me, or reach up, etc. It is very hard to climb stairs, lift things, I cannot use pump bottles or a curling iron any longer (I am a hairdresser).

My GP did some preliminary blood tests and the levels were up a bit, but not at all out of site. And my CPK level was only 44.

My question is, if anyone knows this, can a myositis "hide" the levels at the first part of the disease? I wonder if I could have something of that nature and my levels simply not show it. The reason I ask is that I know early diagnosis is paramount for good success in treatment.

Thank you.


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1 Replies:

  • my wife has polymyositis so i am just going by her experience; a ck of 44 sounds a bit low even for a healthy person but this is a condition that has flare ups and remissions. when you are in a remmision (you still may not feel perfect) your ck can return to normal which is anything under 200. if you want to find out you would have to get checked when you are having a flare up, my wife is having one right now and she is at about 5000. to confirm if you have this disease your doctor will need to do a emg and a mucle biopsy.
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