Discussions By Condition: Muscle conditions

PLEASE HELP ME-Severe muscle cramps

Posted In: Muscle conditions 5 Replies
  • Posted By: iamsuperwoman77
  • May 11, 2008
  • 02:52 PM

I am 6 and a half months pregnant. Yes I know that muscle cramping is common in pregnancy, this is pregnancy #9 for me. This time is something different though. Every muscle in my body cramps when I use it. If I raise my eyebrows too high, my forehead cramps. If I open a door, my whole arm and hand cramp. While I'm walking, my legs cramp; I have fallen over several times. When I stand up from a sitting position, my legs, buttocks, back and neck cramp up. When I'm driving, and I turn to look over my shoulder when changing lanes, my neck, eyeballs and the one side of my back cramp up. Every time I use a muscle, no matter what muscle it is, it cramps up. I can't eat very much because my jaw cramps up about 1/4 a way through the meal. As a result of all this cramping, my body feels like I worked out for 14 hours straight and over worked all my muscles. I'm tired and sore all over my body. I'm also having heart palpitations (every time my heart does this I lose my breath and get dizzy), headaches, and exhaustion.
My OB doc ran every blood test he can think of and they all came back normal. No nutritional deficiencies whatsoever and none of the common diseases. He told me this was over his head as he's just an OBGYN and told me to ask my regular doctor for help. He also said there's not a thing in the world wrong with the baby; he's doing just fine. He used words like autoimmune disease, muscular dystrophy, lupus, cancer, neurological disorder, etc. He told me to ask my PCM to give me a referral to a rheumatologist. I went to my regular doctor and pretty much got blown off because I'm pregnant. He said to wait to see if it went away after the baby is born in August. If not, then we would start running some tests. In the meantime, I'm almost totally disabled. I can't cook, clean, pick up my kids or even hug them for that matter. I normally type at 80 WPM, but am now having to hunt and peck type this as my arms, hands and fingers cramp when I type normally. I've had to take three breaks to type this because my back and neck cramped up from sitting upright too long in this chair. Has anyone out there heard of this before? I'm scared it's something serious and won't get caught in time because I can't get a diagnosis.

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  • You must have had that baby by now?This is interesting. I hope you come back to the board and tell us how you are doing.I have the understanding that muscle cramps have to do with calcium and magnesium.Perhaps you are not getting enough or are not assimilating it.YOu did not say how many years you have been pregnant from #1 to this #9.You may have been giving too much to the babies while sacrificing your own body.And yes, you have spent a lot of your bodies resources taking care of #1 thru 8 also.All this takes its toll.
    Anonymous 42789 Replies Flag this Response
  • Hello, No, I'm having the baby on Aug. 11th (next Monday) via scheduled c-section. Can't wait to get this little guy out of my body. I'm REALLY tired of being pregnant. LOL We've had a crazy heat wave here of temps 100-104 every day. Boy did we pick the wrong time to conceive. LOL Anyway, as for an update, I'm considerably worse. Have degenerated to the point that I'm unable to brush my own hair, walk or get dressed on my own some days. I go through periods of 4-14 days where my muscle cramps are horrible and have severe weakness. So weak that I can't even hold a can of Sprite or chew salad. Then, afterwards, I spend up to 5 days in excruciating pain because every muscle in my body feels like I worked out for 18 hours straight without a break. So sore I scream when I sit down to go to the bathroom because the hard seat presses on my sore muscles. Almost like I was tenderized all over my body with a sledge hammer. Next I go through an undetermined amount of time where my muscles still cramp, but only if I stress them hard; like when someone holds my hand and hoists me up from a sitting position. That makes my hand and arm cramp, but it's not as severe and doesn't last as long as when I'm having a bad day. My OB ran all the blood test for any nutritional deficiencies (magnesium, calcium, sodium, etc.) and they all came back normal. This confused my OB because he said that ALL of my levels are normal. He said that with the levels in my blood, I shouldn't be having ANY muscle cramps, much less the severe problems I'm experiencing. Then he ran so many different blood tests that they took 18 vials of blood from me to run them. Everything he could think of, he tested for. Every single one of them came back normal. So, he referred me to the Rheumatology department, and they kicked back the referral as denied and suggested that I be referred to Neurology. They kicked back the referral as denied also, so my OB got upset and got on the phone with Neurology and demanded that I be seen. They acquiesced and I saw them this last Tuesday. The Neurologist asked me a lot of questions and poked and prodded me for quite some time. Then he told me that he had no idea what was wrong with me and couldn't find out until after the baby because the tests that he wants to run can't be performed on me while I'm pregnant. So, he prescribed me Neurontin and told me to schedule an appointment with the nurse for the first week in September. I went home and started on the meds that night. I was up all of that night with cramping so severe all over my body that they woke me up out of a dead sleep screaming. They were even in my forehead. Has any one out there ever been woken up in the middle of the night by a Charley horse in the forehead? It is not in the least bit fun. Anywho, that was in the wee hours of Thursday morning. Ever since then, I've been completely incapable of getting of the couch. When I have to go to the bathroom, I need help getting up and down, walking and wiping. The pain from my poor overworked muscles is unbearable and I often cry and wish that I wasn't alive to experience this agony. I've had four reconstructive knee surgeries, and an going in for my fourth c-section on Monday. Believe me, I know pain. This is unlike anything I've ever experienced and is too much to bear. To answer your question, it's been 11 years from pregnancy 1-9. I have three live kiddos and the fourth is on his way-God willing the surgery will go well on Monday and he and I will be OK. Their ages are 11, 5, and 4. I had 5 miscarriages in three years between kiddo #3 and this pregnancy. They all spontaneously aborted at 6-8 week gestation. The only explanation I got on that was that my cervix opens up too soon. Who knows why this one made it and all the others didn't. I just wish someone had an answer for me. It's hard not having a name on the monster that has me in it's grips right now. I hope SOMEONE out there has heard of this before. I could really use a miracle. The doctors are all just kind of hoping it will disappear on it's own when my son is born. I kind of do too, but at the same time, I would still like to know what all of this is. It would be nice to have a reason for all of this suffering. You know one doctor actually asked me if I'd considered seeing a psychiatrist for my muscle cramps? He then proceeded to tell me that people manifest all sort of physical ailments with their own minds. I almost slapped him-almost but didn't.
    iamsuperwoman77 2 Replies Flag this Response
  • Wow, this sounds like a horrible condition. First, try to rule out Lyme Disease - most tests for it are very unreliable, need several in-depth tests. If that is ruled out, we'd have to assume this is some sort of poisoning, either from something in your diet or from some medication. You need to simplify your diet down greatly, basically cut out anything that is highly processed and replace with simple fresh natural food (eggs, potatoes, fruits - no oils except olive oil, no sugar except honey). Maybe even fast for a few days. See if this brings any improvement at all. The Neuronitin seems like it just made things worse - if he has no idea what is wrong with you he probably shouldn't prescribe things. It seems doubtful that this is a neurological problem or some sort of rare disease, I'd try the above first - doctors tend to label everything they can't diagnose as neurological or something like "lupus" - you'd think it was as common as chicken pox.
    Non Servium 85 Replies
    • September 18, 2008
    • 08:22 PM
    • 0
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  • Wow, this sounds like a horrible condition. First, try to rule out Lyme Disease - most tests for it are very unreliable, need several in-depth tests. If that is ruled out, we'd have to assume this is some sort of poisoning, either from something in your diet or from some medication. You need to simplify your diet down greatly, basically cut out anything that is highly processed and replace with simple fresh natural food (eggs, potatoes, fruits - no oils except olive oil, no sugar except honey). Maybe even fast for a few days. See if this brings any improvement at all. The Neuronitin seems like it just made things worse - if he has no idea what is wrong with you he probably shouldn't prescribe things. It seems doubtful that this is a neurological problem or some sort of rare disease, I'd try the above first - doctors tend to label everything they can't diagnose as neurological or something like "lupus" - you'd think it was as common as chicken pox.Hey there superwoman..I was saddened and releived to read your post regarding your condition. I am curious to know if you have found any answers. Four years ago I bagan experiencing the same thing. I know the look your doctors gave you. I too felt like slapping a few docs. Once youve experienced this nightmare you almost feel as though the only way for anyone to understad would be for them to experience the pain just once for themselves. I have made a few trips to the ER and they didnt know what to do either. I still dont have an answer. Fortunayely for me this usually only happens at bedtime. Although I have had several occurances troughout the day. Daytime seems to be in arms, hands, neck, shoulders and yes my forehead. Waking up in the middle of the night screaming and pleading to God to help me is a common occurance in my house. Yors sounds even worse than what I have and I truely sympathize with you. Please keep posting any information you might feel is useful and I will do the same.
    Anonymous 42789 Replies
    • February 25, 2010
    • 08:21 PM
    • 0
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  • Hey there superwoman..I was saddened and releived to read your post regarding your condition. I am curious to know if you have found any answers. Four years ago I bagan experiencing the same thing. I know the look your doctors gave you. I too felt like slapping a few docs. Once youve experienced this nightmare you almost feel as though the only way for anyone to understad would be for them to experience the pain just once for themselves. I have made a few trips to the ER and they didnt know what to do either. I still dont have an answer. Fortunayely for me this usually only happens at bedtime. Although I have had several occurances troughout the day. Daytime seems to be in arms, hands, neck, shoulders and yes my forehead. Waking up in the middle of the night screaming and pleading to God to help me is a common occurance in my house. Yors sounds even worse than what I have and I truely sympathize with you. Please keep posting any information you might feel is useful and I will do the same.hi, i am currently pregnant with bby#7 and i am having cramps similar to yours, except mine are no where near as bad...but they are getting steadily worse..... have you or had you ever had your vit d checked? when mines runs low like it usually does during pregnancy it will make u cramp-however mine is fine this go round...my arms cramp as well as everything from my thighs to my toes...my neck cramps, my hands will cramp, i do not know why..i have never experienced this type of cramps.....a friend of mine suggested a product called cal mac made by nutrina..it worked, i slept and for 24 hours had no cramps..however the baby didnt move much during this time. my doctor said it was because he was so relaxed...and the dr n pharmacist said its an all natural product that has the same ingredients as my prenatal. u can google it n find it cheapest on a website by a dr chang.it is helping me thus far, but all my tests cvame back normal as well. however i do have a serious medical condition known as adrenal inusuficiency which i think affects me quite a bit.but just thought i would let ya know about this......take care,Angela in ks due in august of 2011;-)
    Anonymous 42789 Replies Flag this Response
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