Discussions By Condition: Muscle conditions

Perthes Disease in adults - Please help!

Posted In: Muscle conditions 113 Replies
  • Posted By: Anonymous
  • October 21, 2008
  • 06:12 PM

Hello,
I am a 19-year-old girl who was only diagnosed to have Perthes Disease (normally treated in children aged between 3 and 9) last year!
Doctors estimate I had the disease when I was about 8 and was never diagnosed, which has left me with a flatted and shortened left hip bone and my left leg is therefore about an inch shorter than my right, causing me regular discomfort and sometimes horrible pain, especially when walking long distances, laying on my left side, stretching in certain positions (eg. crossing my legs) and sitting for long periods (eg. during long car journeys)
Because I am fully grown I can no longer be treated for Perthes Disease until it becomes unbearable arthritis and then I will most likely be given a hip replacement. My doctors have said this could be within 10 to 15 years, and until then they told me simply to refrain from wearing high heels and not to put on any weight!
I have tried a range of things to ease the pain, including 6 weeks of physiotherapy, a digital pain reliever, perscribed ibuprofen, the Alexandra Technique exercises and swimming. The only thing that has had any helpful effect is swimming, although this only stops the pain for a short period.
IS THERE ANYONE ELSE OUT THERE WITH AN ADULT CASE OF PERTHES DISEASE? The only other cases I have heard or read about have been in children and I wondered if any adults who have a similar problem can suggest any ways to ease my discomfort??? Any suggestion welcome!

Thanks

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  • Hi Chezzi89I am a 48 year old male, and have just had to have a total hip replacement because of perthes disease in my left hip. I was diagnosed with Perthes Disease in my left hip two years ago, I thought originally that something was wrong with my left knee as I felt a stabbing pain in the knee if I knelt down, this was referred pain - a consequence of the Perhes Disease in my left hip, at this time the pain was bearable (just).Like you, the X ray showed a flattened and in my case a severely worn femoroid head and my left leg was an inch shorter than the right. Apparently I have lived with this all my life and because I have always been very active and fit it had never been noticed.After diagnosis, the only way I found could offset any pain was with a lifestyle balance, trying to keep an equal balance of work and rest, in my case I would be in agony with shooting pains from my hip down to the knee if I sat down for two long, I would also have severe pain if I walked any distance (over 200 yards). Only after going on holiday this year and feeling the bones grinding together prompted me to get something done.I asked my consultant about hip resurfacing, where the femoral head is preserved but reshaped to receive a cap, and a bearing surface is screwed into the pelvis, this would have saved the bone and let me have a total hip replacement at a later date but in my case this was not suitable due to the worn and flattened femoral head.I now have a large metal 'magnnum' hip implant that is designed for a young active person and will give almost the same amount of movement as my original hip. My consultant has also corrected my leg length. I was in hospital for only 4 days and have a small scar 3 inches long on the left hip and the pain has all but gone and I am doing excercises to build up the wasted muscles in my left leg/knee.Only you can decide what is right for you, I can only wish you the best of luck with whatever you decide.
    Anonymous 42789 Replies
    • November 3, 2008
    • 01:22 PM
    • 0
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  • Hi Chezzi89 I am a 48 year old male, and have just had to have a total hip replacement because of perthes disease in my left hip. I was diagnosed with Perthes Disease in my left hip two years ago, I thought originally that something was wrong with my left knee as I felt a stabbing pain in the knee if I knelt down, this was referred pain - a consequence of the Perthes Disease in my left hip, at this time the pain was bearable (just). Like you, the X ray showed a flattened and in my case a severely worn femoral head and my left leg was an inch shorter than the right. Apparently I have lived with this all my life and because I have always been very active and fit it had never been noticed. After diagnosis, the only way I found could offset any pain was with a lifestyle balance, trying to keep an equal balance of work and rest, in my case I would be in agony with shooting pains from my hip down to the knee if I sat down for too long, I would also have severe pain if I walked any distance (over 200 yards). Only after going on holiday this year and feeling the bones grinding together prompted me to get something done. I asked my consultant about hip resurfacing, where the femoral head is preserved but reshaped to receive a cap, and a bearing surface is screwed into the pelvis, this would have saved the bone and let me have a total hip replacement at a later date but in my case this was not suitable due to the worn and flattened femoral head. I now have a large metal 'magnum' hip implant that is designed for a young active person and will give almost the same amount of movement as my original hip. My consultant has also corrected my leg length. I was in hospital for only 4 days and have a small scar 3 inches long on the left hip and the pain has all but gone and I am doing exercises to build up the wasted muscles in my left leg/knee. Only you can decide what is right for you, I can only wish you the best of luck with whatever you decide.
    Anonymous 42789 Replies
    • November 3, 2008
    • 02:00 PM
    • 0
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  • i'm a 23 year old male and i have perthes disease in my right hip. it was diagnosed when i was about 6 years old and i had to wear crutches all day everyday. but the thing is, i only used them during school and ran around the rest of the day. now i'm suffering from severe pains.i'm not sure what i can do about this. if there's surgery that can be done or treatment of any kind. another thing, i was wondering if this qualifies for social security disability. i'm stuck as to what to do. get a job and suffer with pain or try to get SS.please help!thanks.
    Anonymous 42789 Replies
    • December 13, 2008
    • 02:06 AM
    • 0
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  • I am a 23 year old female who has been diagnosed with perthes disease in my left hip since I was around 11. It never hurt until the last few years when I've become more active in running, working out, etc. Now, I can't even run a mile without my left hip being in extreme pain. I went to tons of doctors, the last being when I was 15 and he told me to wait it out and I would need a hip replacement. A few months ago I went to another doctor for the first time in 8 years, to see what has changed, and it has progressed much worse. A hip replacement is awful to go through, and he told me he wouldn't do it quite yet. I kind of wish they would, just to get it over with.I am definitely going to ask about the resurfacing, as I vaguely remember the doctor I saw when I was 15/16 talking about it.
    Anonymous 42789 Replies
    • January 28, 2009
    • 06:40 PM
    • 0
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  • Hello,I am a 19-year-old girl who was only diagnosed to have Perthes Disease (normally treated in children aged between 3 and 9) last year!Doctors estimate I had the disease when I was about 8 and was never diagnosed, which has left me with a flatted and shortened left hip bone and my left leg is therefore about an inch shorter than my right, causing me regular discomfort and sometimes horrible pain, especially when walking long distances, laying on my left side, stretching in certain positions (eg. crossing my legs) and sitting for long periods (eg. during long car journeys)Because I am fully grown I can no longer be treated for Perthes Disease until it becomes unbearable arthritis and then I will most likely be given a hip replacement. My doctors have said this could be within 10 to 15 years, and until then they told me simply to refrain from wearing high heels and not to put on any weight!I have tried a range of things to ease the pain, including 6 weeks of physiotherapy, a digital pain reliever, perscribed ibuprofen, the Alexandra Technique exercises and swimming. The only thing that has had any helpful effect is swimming, although this only stops the pain for a short period. IS THERE ANYONE ELSE OUT THERE WITH AN ADULT CASE OF PERTHES DISEASE? The only other cases I have heard or read about have been in children and I wondered if any adults who have a similar problem can suggest any ways to ease my discomfort??? Any suggestion welcome!ThanksI was told I had it at the age of 8. I had a surgery at 10 and was told I would have to have a hip replacement at 20. I am now 32 and need one right away. My hip is so bad i have fragments of the bone that is floating around due to it breaking off. The pain is so bad it takes me a long time to get out of bed and I drag my leg most of the time. Feel free to ask me anything about it I have lived with it most of my life. I hope I can help you and anyone else.
    maggiesmom 4 Replies Flag this Response
  • Hello,I am a 19-year-old girl who was only diagnosed to have Perthes Disease (normally treated in children aged between 3 and 9) last year!Doctors estimate I had the disease when I was about 8 and was never diagnosed, which has left me with a flatted and shortened left hip bone and my left leg is therefore about an inch shorter than my right, causing me regular discomfort and sometimes horrible pain, especially when walking long distances, laying on my left side, stretching in certain positions (eg. crossing my legs) and sitting for long periods (eg. during long car journeys)Because I am fully grown I can no longer be treated for Perthes Disease until it becomes unbearable arthritis and then I will most likely be given a hip replacement. My doctors have said this could be within 10 to 15 years, and until then they told me simply to refrain from wearing high heels and not to put on any weight!I have tried a range of things to ease the pain, including 6 weeks of physiotherapy, a digital pain reliever, perscribed ibuprofen, the Alexandra Technique exercises and swimming. The only thing that has had any helpful effect is swimming, although this only stops the pain for a short period. IS THERE ANYONE ELSE OUT THERE WITH AN ADULT CASE OF PERTHES DISEASE? The only other cases I have heard or read about have been in children and I wondered if any adults who have a similar problem can suggest any ways to ease my discomfort??? Any suggestion welcome!ThanksI am a 32 year old female that has been living with it since the age of 8 years old. What would you like to know. I will try to help you the best I can.
    maggiesmom 4 Replies Flag this Response
  • Hi, my husband has had perthes disease since he was about 8 they did not do anything to help him basicly said he had to live with it and that he eventually would need a hip replacement, he is in constant pain he wont go to the doctors because he says they just tell him to rest and take pain killers. he is only 27! and his life has been so limited because of this disease iv looked on websites and from what they say he could of had it sorted out when he was younger with a brace why???? didn't they do that? Samantha Fox also was diagnosed as a child and she got sorted out (saw a documentry on her) so I dont understand how my husband got nothing as a child!!!!!!!! there most be something that can be done about this as far as im concerend its negligence!
    Anonymous 42789 Replies Flag this Response
  • Well I too was told at the age of 8 and was in traction for months on my back and on cruthces for 3 years and at the age of 10 I had a surgery to try to fix the head of my hip well it did not work as well but i was able to walk and for the pain i total understand where he is comming from I have days I do not want to get out of bed. I was told I would need a total hip replacement at the age of 20 and Iam 32 now and in need. My hip is falling apart i have bone fragments and the pain is the worst it has ever been and it makes it hard to do even the little things. I have been on pain meds since i was 8 so finding something to work is very hard. And for woman it is really hard once you get pregant for me the pain in my hip when everything was spreading was real bad. I hope I have helped you out and feel free to ask me anything.
    maggiesmom 4 Replies Flag this Response
  • Hello,I am a 19-year-old girl who was only diagnosed to have Perthes Disease (normally treated in children aged between 3 and 9) last year!Doctors estimate I had the disease when I was about 8 and was never diagnosed, which has left me with a flatted and shortened left hip bone and my left leg is therefore about an inch shorter than my right, causing me regular discomfort and sometimes horrible pain, especially when walking long distances, laying on my left side, stretching in certain positions (eg. crossing my legs) and sitting for long periods (eg. during long car journeys)Because I am fully grown I can no longer be treated for Perthes Disease until it becomes unbearable arthritis and then I will most likely be given a hip replacement. My doctors have said this could be within 10 to 15 years, and until then they told me simply to refrain from wearing high heels and not to put on any weight!I have tried a range of things to ease the pain, including 6 weeks of physiotherapy, a digital pain reliever, perscribed ibuprofen, the Alexandra Technique exercises and swimming. The only thing that has had any helpful effect is swimming, although this only stops the pain for a short period. IS THERE ANYONE ELSE OUT THERE WITH AN ADULT CASE OF PERTHES DISEASE? The only other cases I have heard or read about have been in children and I wondered if any adults who have a similar problem can suggest any ways to ease my discomfort??? Any suggestion welcome!ThanksYou are not alone. I am a 52 year old male who was treated for Legg Perthes in 1962. I wore a brace on my right leg for almost 3 three years. I have lived a very normal live for many years. About two years ago I seemed to have re-developed the same conditions I had prior. The ortho docs want to perform a hip replacement and the medical docs seem not to have a clue as what to do. I exercise each day; however my pain is worse when I lie down or sit. At this point I am not sure what to do. That said, I will continue to exercise each day and search for a plan that will be best for me. I just wanted you to know I have survived many years with this condition and I pray you will too. I wish you well and want you to understand you are not alone!Jason
    Anonymous 42789 Replies Flag this Response
  • Well I was told I had it at the age of 8 and had surgery at 10. Everything they told you to do for the pain I to have been told and the swimming did not help me much. I was told I would have to have a hip replacement at the age of 20 and Iam now 32 and I have to have it done I can no longer deal with the pain it is the worst it has ever been and the bones are so bad they are breaking apart. If you want to talk about it feel free to hit me up..
    maggiesmom 4 Replies Flag this Response
  • Hello,I am a 19-year-old girl who was only diagnosed to have Perthes Disease (normally treated in children aged between 3 and 9) last year!Doctors estimate I had the disease when I was about 8 and was never diagnosed, which has left me with a flatted and shortened left hip bone and my left leg is therefore about an inch shorter than my right, causing me regular discomfort and sometimes horrible pain, especially when walking long distances, laying on my left side, stretching in certain positions (eg. crossing my legs) and sitting for long periods (eg. during long car journeys)Because I am fully grown I can no longer be treated for Perthes Disease until it becomes unbearable arthritis and then I will most likely be given a hip replacement. My doctors have said this could be within 10 to 15 years, and until then they told me simply to refrain from wearing high heels and not to put on any weight!I have tried a range of things to ease the pain, including 6 weeks of physiotherapy, a digital pain reliever, perscribed ibuprofen, the Alexandra Technique exercises and swimming. The only thing that has had any helpful effect is swimming, although this only stops the pain for a short period. IS THERE ANYONE ELSE OUT THERE WITH AN ADULT CASE OF PERTHES DISEASE? The only other cases I have heard or read about have been in children and I wondered if any adults who have a similar problem can suggest any ways to ease my discomfort??? Any suggestion welcome!Thankshi im tony 27 was diagnosed at 13 and had a opperation didnt realy help , i find my self in pain at night and after any hard work , i drive a truck for a living but had to give it up due to having to unload huge filling cabinets by hand i just couldnt manage it . as for any thing that helps me i find a hot bath helps me alot i did wonder if accupunture would help but like your self i have been told that i will need a hip replacement in time i hope you find a effective treatment good luck with it
    anthonyseabourne 1 Replies Flag this Response
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  • Hi I also had perthes as a child and now in my mid 40's I am awaiting a hip replacement surgery. Its hard to find decent information about perthes in adults, as the medical community consider it to be a childhood condition. They forget that the damage done to our femoral heads is with us for the rest of our lives. Swimming is the best exercise offered to children with perthes and is also brilliant for adults too, as there is no weightbearing involved, but we can achieve reasonably good movement in the water. I have set up a website with lots of info about perthes if you are interested. Google my username for that site (its a bravehost one), as I can definitely put you and anyone else interested in touch with an online support group for adults with perthes, so that you can talk to others in your situation and receive support from people who genuinely understand exactly what you are going through
    perthesnz 1 Replies Flag this Response
  • I was diagnosed with perths disease at the age of 6 after a horse riding accident which brought all of this to light, after about 3 months of trips backwards and forwards they finally noticed i had perths disease, they thought it was for the best if i was put on traction for about 7 weeks which didn't really help, after about 5 years of pysio and xrays every 6 months there was no improvment, i decided not to return as i had been advised by the docor i should start to see improvment when i was around 18 years old, i am now 22 (23 next month) and continue to have problems, from this i have had major problems doing sports and exercise due to heavy pain and as a result have gained alot of weight, i do try daily to do basic exercise but the pain is still there, really not sure where i should go with this, anyone got any idea's as i really dont have much faith in the NHS?Many ThanksAnthonyP.Sfeel free to email me at anthonyholliday86@googlemail.com
    Anonymous 42789 Replies
    • August 31, 2009
    • 10:07 AM
    • 0
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  • I am a 42 yr old women that has perthes disease. I've had it sinse i was 5. I was crippled for 11 yrs. They found it in my right hip so they didn't pay any attention to the left one. They consintrated on the right hip so much that they did not relize that i also had it in the left hip. They found that out when I was 7. I went threw casts, braces, traction and the wheelchair. They finally came to the conclution that the right hip is healed, but the left hip has to be replaced when the cartlidge is gone. The problem I am having is incrediable pain in both hips done to the top of my knees. The pain is so bad that I can only walk about 5 mins till I can no longer lift my legs to keep going. I just was wondering if anyone else with this disease is going threw this? I feel like no one knows what I am going threw. Is this pain from my disease or should I go to the doctors?
    Anonymous 42789 Replies
    • October 12, 2009
    • 01:55 AM
    • 0
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  • hi, my husband has had perthes disease since he was about 8 they did not do anything to help him basicly said he had to live with it and that he eventually would need a hip replacement, he is in constant pain he wont go to the doctors because he says they just tell him to rest and take pain killers. He is only 27! And his life has been so limited because of this disease iv looked on websites and from what they say he could of had it sorted out when he was younger with a brace why???? Didn't they do that? Samantha fox also was diagnosed as a child and she got sorted out (saw a documentry on her) so i dont understand how my husband got nothing as a child!!!!!!!! There most be something that can be done about this as far as im concerend its negligence!it is negligence, my husband was treated as a young boy and has pins in his legs, he is now 27 and is goin to see another specialist as the problems are back, but he got operations and physio for a lot of years from the age of 3, the problem is these doctors don't know what they are doing. I hope he gets the help he needs and deserves
    Anonymous 42789 Replies
    • November 4, 2009
    • 09:21 PM
    • 0
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  • I am 25 yrs old now. I have had Legg perthis since I was 5. I have had casts for a few years when I was younger and I also wore a brace for almost 2 years. The "Good Old Docs" said I had grown out of it and all was ok when I was 14. As a child my mother did collect SSD for my disabilitie but now as I am an adult the only way to recieve SSD in the state of Arizona is a Doctor has to prove you are Disabiled. I have had 4 children all natural and have had many complications after and during my pregnancies. I was told I could live a normal life, they were wrong! I now sit at home with my children and unable to do activities with them. The Doctor his only suggestion is Surgery and Painkillers for the rest of my life. Now if the "Docs" consider that living a normal life then yeah I guess thats my only option. But hey if someone out there knows more about how to get disabilitie due to Legg-Perthis Please contact me.. Paganiss84@gmail.com.. Thank you
    Anonymous 42789 Replies
    • November 13, 2009
    • 09:50 PM
    • 0
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  • I'm 24 yrs old and was diagnosed at 10 yrs old. I was a VERY active child. Dance and gymnastics, 7 days a week. My grandparents (who raised me) were HS gymnastics coached so I lived at the gym. I did not do any activitied from 10-14yrs old. Had a arthoscopic clean out at age 14, had no pain after I recovered. I did competitive cheerleading in HS and college from age 15-20. Along with being an active teen/young adult with friends playing softball and volleyball on teams. I am an RN and have worked 12-14hr shifts since I was 19, as a tech. I know some people are against medications but I am a big believer in an NSAID called meloxicam (mobic) An NSAID is a non-steriod anti-imflammitory drug. Before I was put on meloxicam I was having severe pain with activity and inflamation, I was even hospitalized at one point, because my hip 'locked' up due to joint swelling and narrowing. There are many different treatments for legg perthes it is just a matter of finding a good/experienced doctor. I will have to have a hip replacement eventually, as do most legg perthes patients. Resurfacing can only be done if the integrity of the acetabulum and femeral head are in place. Reconstruction can only be done if the arthritis is in a mild or moderate stage (for me MRI shows mine is in an sever state) I am able to live a healthy, semi active life as an RN in a busy ICU...it is possible with the right treatment and management! thompson115628@avila.edu
    Anonymous 42789 Replies
    • November 15, 2009
    • 04:53 AM
    • 0
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  • hi there, i hope youll take the time to read my story.... if you do please forgive my horrible spellingI was diagnosed with Leg Perthes in my right leg when i was 6 yrs old and had the option of surgery or wear a brace, being afraid of surgery (at 6 yrs old) i decided to wear the brace, which was simular to forest gumps braces but the only difference was on my braces I had a bar in the middle so i walked around like a pinguin haha, this was supposed to grow the hip in properly, anyways i did this for a yr, but still did everything i did before i had them, climbing trees all the kids stuff, after a yr, the Doc said i was good to go i started playing ice hockey at age 7 , skip 10 yrs of hockey and life later, i was playing in the "Whl" Western hockey league which is one of the best leagues for junior hockey players in Canada. I had a lift in my shoes but never thought about having one in my skates.... anyways long story short.... skating no lift....... walking around i had a lift so back and forth back and forth between lift and no lift, i was wearing my back and hips out with out even knowing it until one day my back and hip had enough and shut down, i couldnt walk or skate or anything and after a long period of rest i tried and continued to play hockey but this time having a lift in my skates and in my shoes a year later when i was 18 i saw a doctor for a check up for my hips, knowing i was trying to pursue a proffession in ice hockey and he sat me down and told me that i wont be able to play hockey anymore, and that i would probably need a hip replacement in 10 yrs. I was pretty upset to say the least, but decided that the next 10 yrs better be darn good ones, I kept the same mentallity i had when i was a kid, wearing that brace and climbing trees and adapting to riding a bike with them. The mentallity that "this is what i have so be it how can i still enjoy life"So i got lifts in my right skate to make up the inch of shortness, and orthotics for my shoes that do the same. I have aching pain in my hip once in a while and an absolutley sore right knee and a constant lower back pain, when i sit down for a while ( like i am now) haha my leg falls asleep... couldnt cross my legs for tPraise God that I am now 23 yrs old and in my 3rd year of playing ice hockey professionaly for a living e life of me....i could go on and but i am sure anyone who is reading this knows all these pains and sufferings and has to live with them daily just as i do, so i wont go on whining about all the crap that comes along with having Leg Calves Perthes.Praise God that I am now 23 yrs old and in my 3rd year of playing ice hockey professionaly for a living Any advice i would give to anyone in "our" sittuation is to life life to the fullest, dont let this inconvenience ROB YOU of YOUR LIFE, i know some day, and maybe someday very soon, i will have to stop playing icehockey for a living and work a real job, but i am, thankfull for everyday, and praise God im not paralyzed or something worse than just having a distorted hip and a shorter legI pray that on the days when you cant move or the pains are just horrible or it takes you a bit more to get out of bed (usually a Monday for me after playing 2 games on the weekend) you can allow yourself to have hope and find the pleasure of LIFE and LIVING i know its been a long message, and you may be tired of reading this, but please dont mistake this message as pride or arrogance, i simply want you to find pleasure in life even though we have the excuse of being "handicap" to some extentMay God Bless you and may you allow God to work in your life in a possitive waykeep on keeping on!
    Anonymous 42789 Replies
    • November 17, 2009
    • 02:07 PM
    • 0
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  • Hello,I am a 19-year-old girl who was only diagnosed to have Perthes Disease (normally treated in children aged between 3 and 9) last year!Doctors estimate I had the disease when I was about 8 and was never diagnosed, which has left me with a flatted and shortened left hip bone and my left leg is therefore about an inch shorter than my right, causing me regular discomfort and sometimes horrible pain, especially when walking long distances, laying on my left side, stretching in certain positions (eg. crossing my legs) and sitting for long periods (eg. during long car journeys)Because I am fully grown I can no longer be treated for Perthes Disease until it becomes unbearable arthritis and then I will most likely be given a hip replacement. My doctors have said this could be within 10 to 15 years, and until then they told me simply to refrain from wearing high heels and not to put on any weight!I have tried a range of things to ease the pain, including 6 weeks of physiotherapy, a digital pain reliever, perscribed ibuprofen, the Alexandra Technique exercises and swimming. The only thing that has had any helpful effect is swimming, although this only stops the pain for a short period. IS THERE ANYONE ELSE OUT THERE WITH AN ADULT CASE OF PERTHES DISEASE? The only other cases I have heard or read about have been in children and I wondered if any adults who have a similar problem can suggest any ways to ease my discomfort??? Any suggestion welcome!ThanksI was eventually diagnosed with Perthes at age 11 after a fair bit of investigation and misdiagnoses. I think is because I was a girl and older than average. (Most cases of Perthes are in younger boys) I was on crutches for two years and in traction at night at home. By age 15 I noticed the osteoarthritis that had developed from the odd shape my femur head settled into. I was in serious pain basically all of the time by age 18 and had a total hip replacement at age 19. I never really found anything that made a big difference in the pain. Initially, surgeons did not want to do a hip replacement in such a young adult, but once they saw my x-rays, they decided to go ahead. I've had the prosthetic hip for 15 years. Before and after surgery was like night and day, black and white tv to colour TV. I can't imagine having suffered with the pain much longer than I did without seriously considering checking out. I do worry that I will need a revision one day and am concerned that the outcome may not be as good. I don't run, ski, jump, play tennis, dance, ice-skate, etc but I can walk, bike, swim and best of all, no pain. (I don't wear high heels either - I notice my hip hurts when I do)I've looked into outcomes for Perthes disease and it seems that this condition is still not that well understood. Most of the research I've looked at concludes that, regardless of how aggressive treatment is, the older the child at age of diagnosis, the worse the outcome. (11 is quite old). Best of luck to you.
    Anonymous 42789 Replies
    • November 27, 2009
    • 07:45 AM
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  • Hi,I think you should count your blessings, re-evalute your priorities and get on with your life. I had perthes as a kid (2 years old, had multiple surgeries, and my left leg is 2,5cm shorter now) and never been able to run or walk long at all. Forget participating in any kind of major sport. I can bike or swim recreationnally but nothing else. No or very low impact sports are the way to go. I was a teacher and just standing all day walking throught the rows at school gave me such pains that I had to give up teaching and now work a desk job because I have limitations. Might be hard to accept that you will most likely need to stop playing hockey (well get yourself a kick-**s orthopeadist first that will tell you exactly what is going on) and also make sure they check the rest of your spine because a lot of people with perthes, they have other kinds of skeletal disorders, often overlooked because the pain and the pressing part goes on in the hip. Get yourself thoroughly examined first then see what your options are.There are ways to enjoy life, even with limitations. You just have to focus on what you can do and forget all the things that are not possible. I went to Thailand and spent a week on a live-aboard boat to get my scuba diving license, if that's not enjoying life, I dont know what is. But then, swimming is within my possibilities, you just have to make the most of what you can.Good luck!
    Anonymous 42789 Replies
    • November 29, 2009
    • 05:05 PM
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