I am a 19-year-old girl who was only diagnosed to have Perthes Disease (normally treated in children aged between 3 and 9) last year!
Doctors estimate I had the disease when I was about 8 and was never diagnosed, which has left me with a flatted and shortened left hip bone and my left leg is therefore about an inch shorter than my right, causing me regular discomfort and sometimes horrible pain, especially when walking long distances, laying on my left side, stretching in certain positions (eg. crossing my legs) and sitting for long periods (eg. during long car journeys)
Because I am fully grown I can no longer be treated for Perthes Disease until it becomes unbearable arthritis and then I will most likely be given a hip replacement. My doctors have said this could be within 10 to 15 years, and until then they told me simply to refrain from wearing high heels and not to put on any weight!
I have tried a range of things to ease the pain, including 6 weeks of physiotherapy, a digital pain reliever, perscribed ibuprofen, the Alexandra Technique exercises and swimming. The only thing that has had any helpful effect is swimming, although this only stops the pain for a short period.
IS THERE ANYONE ELSE OUT THERE WITH AN ADULT CASE OF PERTHES DISEASE? The only other cases I have heard or read about have been in children and I wondered if any adults who have a similar problem can suggest any ways to ease my discomfort??? Any suggestion welcome!
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